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Acid Reflux / GERD Message Board


Acid Reflux / GERD Board Index


So I'm posting up here for one purpose alone, to try and help others that deal with the everyday torture of on going burning stomach pain. Maybe what I have learned will help someone else. My stomach issues began about 7 years ago out of the blue. Before then I had a rock of a stomach, never any problems. At this time in my life however, my stress level was really at a peak. I had battled with anxiety disorder and panic attacks before this time, but had gotten beyond that. I had chosen to hold my stress in and not allow myself to have anxiety attacks any longer. I was trying to plan a wedding, build or buy a home, and adjusting to a newer supervisory position at work. And on one of those days that year I started getting burning pain in my stomach every time I would eat. My first thought was, I must have an ulcer. My family physician agreed since I had no stomach issues prior and two of my family members had a history of that. I was introduced to the PPI. I hate medication and I never take anything or go to doctors unless I have to. The PPI helped but everytime I was off of it my symptoms came right back. So at my request he treated me with 2 heavy rounds of antibiotics along with the PPI hoping to kill h. pylori if that indeed was perpetuating my symptoms. I was deathly scared to have a scope done, so he didn't make me. Nothing, he gave me was eradicating my issues. So then, it was well, you have acid reflux disease. I continued trying to wean myself off the PPI everyday, and everyday no avail. The pain I experienced would always make me go back to taking my PPI. Two years into this cycle I got fed up. I was depressed, my PPI only worked partially, and even though I was taking them it seemed as if I was getting worse. So I tried going to a different family doctor. He examined me and due to some added pain in my shoulder blades now and pain in my upper right quadrant after the exam he gave me, he said I should have my gallbladder checked for issues. In the days following, my upper right quandrant kept hurting to the point where I could not go to work and stock shelves anymore. An ultrasound revealed no stones. He then told me to get a Hida Scan done to check the function of my gallbladder. Results were that it was only working between 4-8%!! So I thought well this really sucks, I took care of myself, ate healthy, did not drink, did not smoke, and at the age of 32 I would have to face my first surgery. I was scared to death but I couldn't work and I wanted more that anything to get better. When you wake up everyday with burning pain in your stomach it eats at you in every way, physically, spiritually, mentally.....
So I did it, I got my gallbladder removed. And felt somewhat better....no upper quadrant pain, no shoulder blade pain, not as much burning in my stomach but I took it easy on my diet too. And then about 30 days later I ventured to eat 2 chili dogs. I couldn't finish them, burning pain was back, and I was so upset I started crying. I questioned everything, why me?? After all of this 5 years later still can't feel normal and enjoy something normal like normal people?? So back on the PPI's I went. I would have tangents when I would go off of them for a couple weeks or a month but eventually the PPI would win and take me prisoner again. I didn't want my body dependant on them. So I went back to the surgeon who took my gallbladder out and told him how I was feeling....his reply.........oh it's stress. Really??? Is that all?? I told him the only thing stressing me out is that no one can tell me what is wrong with me!! So I went through more anger, depression, and gave up again. And then I finally decided I had to go get the scope done. I was just as scared of that as my surgery but I needed answers and wellness and peace of mind and consolation. So my doctor did the scope and I didn't know what hit me when it happened because I told him to drug me up!! It was kind of fun cuz I couldn't remember **** and I was loopy when I came out of it. But as high as I felt, these words brought me right back down to earth....." We didn't find anything, you have a perfectly healthy stomach, we didn't even find physical evidence of acid reflux." And I sat there and finally said even though I was out of it, " What do you mean there is nothing wrong?? I've been sick all this time??" And then a wave of guilt hit me and I apologized to God because after all nothing wrong was the best news I could get but.......I wasn't accepting it.
So another year went by, no improvement. I decided I would suffer for life with whatever this was. It was hard. And I fall down, but I always try to get back up. God didn't put me here to give up and I know that. So I thought, I'm almost 34 years old, no kids, and I don't think I would even want to carry one feelin like this everyday. I just accepted it. And then I went to my routine gyno exam. My doctor asked me if me and my husband were wanting to start a family. I told her no and why. She wanted me to go see her affiliate who is a gastroenterologist. I told her, "I dunno, they don't listen to me, they tell me it's stress and I'm healthy and I can't afford anymore answers like this. With the economy, I'm pretty broke". She convinced me to go anyway. I went to him a couple weeks later. He looked over all I had been through. He told me everything had been ruled out except for a condition called "visceral hypersensitivity". I never had heard of it?? It is nerve pain of the stomach, esophagus, intestines. Your digestive tract is like in hyper mode and doesn't want to shut down after you eat or when ur stressed. Certain foods and too much stomach acid can aggravate it. This condition can be treated with low dose antidepressant and the side effect is that it calms the nerves down in your stomach. So I was a sceptic but I tried the medication. The medicine makes u tired, especially when you first take it, your body has to have time to adjust, but I noticed pain relief right away. In fact you have to take it for 2 weeks before it will take full effect in your body. I work third shift so it's pretty hard taking a pill that makes you sleepy but my body does seem to adjust. And this past year I have felt better than I have in 7 years! Praise God!! I had in the past, gotten to a point where I couldn't eat anything tomato, citrus, pop, or caffeine and now I can even enjoy those things in moderation. I'm not on a PPI anymore. Sometimes I will pop one on a day of stress as stress effects me. Most of the time an occasional tum will do the trick if the burning begins. I'm much happier. My only concern is now that the Amitryptiline I'm on isn't safe for pregnancy, as I'm reading online. I take the lowest dose out there. Any input on that would be helpful. I dunno maybe I'll adopt! My quality of life and my daily functioning is back and I'm thankful for that!! Please let me know if my very long thread helps anyone. Don't give up, don't accept what every doctor tells you, follow your heart, and don't quit praying!I just got the internet, so I'm trying to make use of it!! God bless!!
[QUOTE=BiancaB97;4945949]So I'm posting up here for one purpose alone, to try and help others that deal with the everyday torture of on going burning stomach pain. Maybe what I have learned will help someone else. My stomach issues began about 7 years ago out of the blue. Before then I had a rock of a stomach, never any problems. At this time in my life however, my stress level was really at a peak. I had battled with anxiety disorder and panic attacks before this time, but had gotten beyond that. I had chosen to hold my stress in and not allow myself to have anxiety attacks any longer. I was trying to plan a wedding, build or buy a home, and adjusting to a newer supervisory position at work. And on one of those days that year I started getting burning pain in my stomach every time I would eat. My first thought was, I must have an ulcer. My family physician agreed since I had no stomach issues prior and two of my family members had a history of that. I was introduced to the PPI. I hate medication and I never take anything or go to doctors unless I have to. The PPI helped but everytime I was off of it my symptoms came right back. So at my request he treated me with 2 heavy rounds of antibiotics along with the PPI hoping to kill h. pylori if that indeed was perpetuating my symptoms. I was deathly scared to have a scope done, so he didn't make me. Nothing, he gave me was eradicating my issues. So then, it was well, you have acid reflux disease. I continued trying to wean myself off the PPI everyday, and everyday no avail. The pain I experienced would always make me go back to taking my PPI. Two years into this cycle I got fed up. I was depressed, my PPI only worked partially, and even though I was taking them it seemed as if I was getting worse. So I tried going to a different family doctor. He examined me and due to some added pain in my shoulder blades now and pain in my upper right quadrant after the exam he gave me, he said I should have my gallbladder checked for issues. In the days following, my upper right quandrant kept hurting to the point where I could not go to work and stock shelves anymore. An ultrasound revealed no stones. He then told me to get a Hida Scan done to check the function of my gallbladder. Results were that it was only working between 4-8%!! So I thought well this really sucks, I took care of myself, ate healthy, did not drink, did not smoke, and at the age of 32 I would have to face my first surgery. I was scared to death but I couldn't work and I wanted more that anything to get better. When you wake up everyday with burning pain in your stomach it eats at you in every way, physically, spiritually, mentally.....
So I did it, I got my gallbladder removed. And felt somewhat better....no upper quadrant pain, no shoulder blade pain, not as much burning in my stomach but I took it easy on my diet too. And then about 30 days later I ventured to eat 2 chili dogs. I couldn't finish them, burning pain was back, and I was so upset I started crying. I questioned everything, why me?? After all of this 5 years later still can't feel normal and enjoy something normal like normal people?? So back on the PPI's I went. I would have tangents when I would go off of them for a couple weeks or a month but eventually the PPI would win and take me prisoner again. I didn't want my body dependant on them. So I went back to the surgeon who took my gallbladder out and told him how I was feeling....his reply.........oh it's stress. Really??? Is that all?? I told him the only thing stressing me out is that no one can tell me what is wrong with me!! So I went through more anger, depression, and gave up again. And then I finally decided I had to go get the scope done. I was just as scared of that as my surgery but I needed answers and wellness and peace of mind and consolation. So my doctor did the scope and I didn't know what hit me when it happened because I told him to drug me up!! It was kind of fun cuz I couldn't remember **** and I was loopy when I came out of it. But as high as I felt, these words brought me right back down to earth....." We didn't find anything, you have a perfectly healthy stomach, we didn't even find physical evidence of acid reflux." And I sat there and finally said even though I was out of it, " What do you mean there is nothing wrong?? I've been sick all this time??" And then a wave of guilt hit me and I apologized to God because after all nothing wrong was the best news I could get but.......I wasn't accepting it.
So another year went by, no improvement. I decided I would suffer for life with whatever this was. It was hard. And I fall down, but I always try to get back up. God didn't put me here to give up and I know that. So I thought, I'm almost 34 years old, no kids, and I don't think I would even want to carry one feelin like this everyday. I just accepted it. And then I went to my routine gyno exam. My doctor asked me if me and my husband were wanting to start a family. I told her no and why. She wanted me to go see her affiliate who is a gastroenterologist. I told her, "I dunno, they don't listen to me, they tell me it's stress and I'm healthy and I can't afford anymore answers like this. With the economy, I'm pretty broke". She convinced me to go anyway. I went to him a couple weeks later. He looked over all I had been through. He told me everything had been ruled out except for a condition called "visceral hypersensitivity". I never had heard of it?? It is nerve pain of the stomach, esophagus, intestines. Your digestive tract is like in hyper mode and doesn't want to shut down after you eat or when ur stressed. Certain foods and too much stomach acid can aggravate it. This condition can be treated with low dose antidepressant and the side effect is that it calms the nerves down in your stomach. So I was a sceptic but I tried the medication. The medicine makes u tired, especially when you first take it, your body has to have time to adjust, but I noticed pain relief right away. In fact you have to take it for 2 weeks before it will take full effect in your body. I work third shift so it's pretty hard taking a pill that makes you sleepy but my body does seem to adjust. And this past year I have felt better than I have in 7 years! Praise God!! I had in the past, gotten to a point where I couldn't eat anything tomato, citrus, pop, or caffeine and now I can even enjoy those things in moderation. I'm not on a PPI anymore. Sometimes I will pop one on a day of stress as stress effects me. Most of the time an occasional tum will do the trick if the burning begins. I'm much happier. My only concern is now that the Amitryptiline I'm on isn't safe for pregnancy, as I'm reading online. I take the lowest dose out there. Any input on that would be helpful. I dunno maybe I'll adopt! My quality of life and my daily functioning is back and I'm thankful for that!! Please let me know if my very long thread helps anyone. Don't give up, don't accept what every doctor tells you, follow your heart, and don't quit praying!I just got the internet, so I'm trying to make use of it!! God bless!![/QUOTE]
[QUOTE=BiancaB97;4945949]So I'm posting up here for one purpose alone, to try and help others that deal with the everyday torture of on going burning stomach pain. Maybe what I have learned will help someone else. My stomach issues began about 7 years ago out of the blue. Before then I had a rock of a stomach, never any problems. At this time in my life however, my stress level was really at a peak. I had battled with anxiety disorder and panic attacks before this time, but had gotten beyond that. I had chosen to hold my stress in and not allow myself to have anxiety attacks any longer. I was trying to plan a wedding, build or buy a home, and adjusting to a newer supervisory position at work. And on one of those days that year I started getting burning pain in my stomach every time I would eat. My first thought was, I must have an ulcer. My family physician agreed since I had no stomach issues prior and two of my family members had a history of that. I was introduced to the PPI. I hate medication and I never take anything or go to doctors unless I have to. The PPI helped but everytime I was off of it my symptoms came right back. So at my request he treated me with 2 heavy rounds of antibiotics along with the PPI hoping to kill h. pylori if that indeed was perpetuating my symptoms. I was deathly scared to have a scope done, so he didn't make me. Nothing, he gave me was eradicating my issues. So then, it was well, you have acid reflux disease. I continued trying to wean myself off the PPI everyday, and everyday no avail. The pain I experienced would always make me go back to taking my PPI. Two years into this cycle I got fed up. I was depressed, my PPI only worked partially, and even though I was taking them it seemed as if I was getting worse. So I tried going to a different family doctor. He examined me and due to some added pain in my shoulder blades now and pain in my upper right quadrant after the exam he gave me, he said I should have my gallbladder checked for issues. In the days following, my upper right quandrant kept hurting to the point where I could not go to work and stock shelves anymore. An ultrasound revealed no stones. He then told me to get a Hida Scan done to check the function of my gallbladder. Results were that it was only working between 4-8%!! So I thought well this really sucks, I took care of myself, ate healthy, did not drink, did not smoke, and at the age of 32 I would have to face my first surgery. I was scared to death but I couldn't work and I wanted more that anything to get better. When you wake up everyday with burning pain in your stomach it eats at you in every way, physically, spiritually, mentally.....
So I did it, I got my gallbladder removed. And felt somewhat better....no upper quadrant pain, no shoulder blade pain, not as much burning in my stomach but I took it easy on my diet too. And then about 30 days later I ventured to eat 2 chili dogs. I couldn't finish them, burning pain was back, and I was so upset I started crying. I questioned everything, why me?? After all of this 5 years later still can't feel normal and enjoy something normal like normal people?? So back on the PPI's I went. I would have tangents when I would go off of them for a couple weeks or a month but eventually the PPI would win and take me prisoner again. I didn't want my body dependant on them. So I went back to the surgeon who took my gallbladder out and told him how I was feeling....his reply.........oh it's stress. Really??? Is that all?? I told him the only thing stressing me out is that no one can tell me what is wrong with me!! So I went through more anger, depression, and gave up again. And then I finally decided I had to go get the scope done. I was just as scared of that as my surgery but I needed answers and wellness and peace of mind and consolation. So my doctor did the scope and I didn't know what hit me when it happened because I told him to drug me up!! It was kind of fun cuz I couldn't remember **** and I was loopy when I came out of it. But as high as I felt, these words brought me right back down to earth....." We didn't find anything, you have a perfectly healthy stomach, we didn't even find physical evidence of acid reflux." And I sat there and finally said even though I was out of it, " What do you mean there is nothing wrong?? I've been sick all this time??" And then a wave of guilt hit me and I apologized to God because after all nothing wrong was the best news I could get but.......I wasn't accepting it.
So another year went by, no improvement. I decided I would suffer for life with whatever this was. It was hard. And I fall down, but I always try to get back up. God didn't put me here to give up and I know that. So I thought, I'm almost 34 years old, no kids, and I don't think I would even want to carry one feelin like this everyday. I just accepted it. And then I went to my routine gyno exam. My doctor asked me if me and my husband were wanting to start a family. I told her no and why. She wanted me to go see her affiliate who is a gastroenterologist. I told her, "I dunno, they don't listen to me, they tell me it's stress and I'm healthy and I can't afford anymore answers like this. With the economy, I'm pretty broke". She convinced me to go anyway. I went to him a couple weeks later. He looked over all I had been through. He told me everything had been ruled out except for a condition called "visceral hypersensitivity". I never had heard of it?? It is nerve pain of the stomach, esophagus, intestines. Your digestive tract is like in hyper mode and doesn't want to shut down after you eat or when ur stressed. Certain foods and too much stomach acid can aggravate it. This condition can be treated with low dose antidepressant and the side effect is that it calms the nerves down in your stomach. So I was a sceptic but I tried the medication. The medicine makes u tired, especially when you first take it, your body has to have time to adjust, but I noticed pain relief right away. In fact you have to take it for 2 weeks before it will take full effect in your body. I work third shift so it's pretty hard taking a pill that makes you sleepy but my body does seem to adjust. And this past year I have felt better than I have in 7 years! Praise God!! I had in the past, gotten to a point where I couldn't eat anything tomato, citrus, pop, or caffeine and now I can even enjoy those things in moderation. I'm not on a PPI anymore. Sometimes I will pop one on a day of stress as stress effects me. Most of the time an occasional tum will do the trick if the burning begins. I'm much happier. My only concern is now that the Amitryptiline I'm on isn't safe for pregnancy, as I'm reading online. I take the lowest dose out there. Any input on that would be helpful. I dunno maybe I'll adopt! My quality of life and my daily functioning is back and I'm thankful for that!! Please let me know if my very long thread helps anyone. Don't give up, don't accept what every doctor tells you, follow your heart, and don't quit praying!I just got the internet, so I'm trying to make use of it!! God bless!![/QUOTE]

Thanks a bunch for all the information. Just wanted to let you know that i have exactly the same thing!!! When i had the scope done and they told me there was nothing there i almost fell out of the chair. Feels like fire down my esophagus and stomach. Also wanted to let you know there is another medication called "ketotifen" that also treats visceral hypersensitivity. I'm not sure how it compares, but it's not an antidepressent.





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