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Acid Reflux / GERD Message Board


Acid Reflux / GERD Board Index


Hello Where is everyone? Kacyc my mentor where are you? Bec how are you doing. You haven't posted in a while. I am glad to say at long last I have had a few good days all in a row. By a good day for me I mean no nausea that makes me off balance and feeling lousy. I still get the pulsing in my chest on and off but I am hoping to continue going forward and seeing the light at the end of this long long tunnel I have been in since February. Love to hear from everyone as the support is great on this forum - thank you.
[QUOTE=imlily;5285922]Hello Where is everyone? Kacyc my mentor where are you? Bec how are you doing. You haven't posted in a while. I am glad to say at long last I have had a few good days all in a row. By a good day for me I mean no nausea that makes me off balance and feeling lousy. I still get the pulsing in my chest on and off but I am hoping to continue going forward and seeing the light at the end of this long long tunnel I have been in since February. Love to hear from everyone as the support is great on this forum - thank you.[/QUOTE]

A few good days in a row is very promising, it shows you are rebalancing. I really hope you have more and more good days and will soon be ready to do your next reduction. As I have said before, don't rush, trying to speed things up usually ends up taking longer in the long run. you are doing really well. Hope you continue moving forward.
Thanks Kacyc, I think I spoke too soon. This afternoon the nausea and off balance, headache feeling returned but I don't know why. I also have maybe sinus or I am heading for a cold which isn't helping. I hope tomorrow is a good day at least I don't have awful burning to cope with as well. Have you tried any Quorn products? Thanks for the encouragement - lily.
Hi Everyone, I hope it is a better day for all. Beccppihater where are you and how are you doing? You haven't posted in a while. has your stomach settled down a bit now. The months are rolling along and I hope time has healed you.
Kacyc How about you are you off the PPI altogether did you take the plunge and not take any more?
I thought I was doing well last week only to have a terrible day of nausea again yesterday. I can handle the pain when I have it but the nausea and the thought of food just puts me off eating. Still losing a lot of weight and when I saw the doctor last week he said it wasn't good. But, he didn't tell me how not to or give me any tips. I so want off this PPI but just dare not reduce it again yet. Going into my 8th week and it is the nausea that is the worst for me rather than the pain. Does anyone else suffer from it and not want to eat?
[QUOTE=imlily;5287717]Hi Everyone, I hope it is a better day for all. Beccppihater where are you and how are you doing? You haven't posted in a while. has your stomach settled down a bit now. The months are rolling along and I hope time has healed you.
Kacyc How about you are you off the PPI altogether did you take the plunge and not take any more?
I thought I was doing well last week only to have a terrible day of nausea again yesterday. I can handle the pain when I have it but the nausea and the thought of food just puts me off eating. Still losing a lot of weight and when I saw the doctor last week he said it wasn't good. But, he didn't tell me how not to or give me any tips. I so want off this PPI but just dare not reduce it again yet. Going into my 8th week and it is the nausea that is the worst for me rather than the pain. Does anyone else suffer from it and not want to eat?[/QUOTE]

Dear Imily,
I am sorry that you had a bad day. I can not beleive that your doctor just told you that it was not good?? Anybody can say those words! Did he say anything else? I can not beleive it. Is he a Gastro? I do not have nausea myself. How is your throat? I hope you are feeling better today. I must tell you that the vinegar seems too strong for me. I will try the Aloe vera more. The Slippery Elm Lozangers help me. I wish everybody here a good good fay and a great night. Let's keep up the faith! Hugs.
[QUOTE=imlily;5287800]Thank you pazshalom, Yes my doctor is a gastro doctor. I don't think he is saying too much until after I have done the endo and colonoscopy in a couple of weeks. Meanwhile I have to deal with it myself. I haven't had nausea every day but it seems to come and go. When I do get it I am miserable sweating and off balance headache feeling. On days like that I feel like I am never going to get well. It is now into my 8th week since I switched from the 40mgs nexium to the 20mgs Prilosec and I have read of other people having a difficult time as well and some just never make it. I hope after my tests I can start to reduce again. I think this is going to be a long road as I have to go slowly. I was on a PPI for many years. Some people can get off easily, it looks like I am not one of those people.[/QUOTE]

Hi Dear Imlily,

I will be praying for your endo/ colonoscopy. Everything is going to be alright. I do not have nausea, but I have a friend who has the reflux and she has some. Did you tell your gastro that you reduced the prilosec? What did he say? Have you noticed that the more we worry the worst it gets? We all have the same feeling you have in bad days, but we have to keep trusting. There is no other way. I need to work on that. I hope everybody has a good day. a big hug.
Hi Kacyc, I really admire the fact you have been so strong and followed through with this to get to where you are now. I know that I am not alone in this journey and that you have just about made it to where I want to be. I think slow and steady is the best way to go rather than jumping ship so as to speak.
I get really down and depressed some days. Nausea is the worst thing I have to cope with now. Oh yes I get weird feelings in my stomach and quivering in my chest as well from time to time. Food is a issue with me as well. I have always had a good appetite until this last few months. I feel like my year is lost so far. I can't go out and eat anywhere and everyone looks at me and sighs kind of thing. I am the party pooper that I never was prior to February and I think everyone gets fed up with me. I can't help it and worry about what I am going to eat all the time wondering if it will be the right thing. For 10 years I haven't really had to worry so much although I did try and avoid the triggers and I didn't drink soda ever or juices even. a huge challenge for me is going to be this prep for the colonoscopy. Having to drink 64ozs Gatorade is not going to sit well at all. I hope you continue to do well and keep on posting on here because you are an inspiration to us all.
Hi Rebecca, Yes I have had lots of different symptoms so far. I was in a dark place in February this year when I started to have symptoms being on Nexium. My doctor told me to switch to famotidine and I was sooooo sick with pains in my chest etc. That lasted for 3 days. I insisted on an EKG because I was worried about my heart. He then said to try alternating days with the nexium. That lasted one week. After several visits to him he rolled his eyes and threw up his hands because he didn't know what else to do as he didn't know anything about acid rebound and neither did I. He sent me to a GI doctor. He gave me omezeprazole, told me to alternate days with the nexium then switch to it. I went from 40mgs nexium to 20mgs Omezeprazole. I had about 6 good days then the rebound started. Nausea, headaches, pain in the chest, pain in the stomach, off balance feelings sore throat, post nasal drip and the feeling of something stuck in the throat as well. I didn't have these things all at once for the most part but some days. Some days I felt Ok and would have maybe 2 days together feeling well then back it would come again. For me it is now 71/2 weeks and I am still on the 20mgs. I wanted to wait until I had some stability before I reduce again. I am going for the colonoscopy and endoscopy on May 19th Ugh! then after that if all is well I will start to reduce.
I hope you start to soon feel better but rest assured we all know what you are going through and can sympathize with you.
[QUOTE=Allan marsh;5288842]well i have knocked 20mg morning to 15 mg morning and 150 mg zantac at night
so far day 6 seems fine but a long way to go
the nex side effects have reduced with this first step so time will tell!
allan[/QUOTE]
Allen, It sounds like your schedule is working for you. How long have you been taking nexium and were you on 40mgs or 20mgs? I took Nexium for several years (40mg) until February this year when all of a sudden I thought it stopped working. I went to see my GP several times for nausea and off balance feelings and weird feelings in my stomach. I ended up in a GI's office and he switched me to 20mgs Omeprazole. I told him I wanted to get off any PPI as I think I have been on it in error for so long. I wish I had been more proactive along the way but I wasn't and I didn't know anything about rebound until this year. I have now been taking the 20mgs so in actual fact I reduced my PPI by half. I have had some awful days but slowly I am having more good days. I am scheduled for endoscopy and colonoscopy on May 19th so if all is well with those I will start my reduction again. Good luck on your journey and keep on posting as we all need to know it can be done.
Hi everyone and thank you all for the good wishes for my tests. Thank goodness they are all over. The only thing I know is I had mild inflammation in the stomach and some little pockets in the colon. I have to wait for the results of the biopsies before I can ask all my questions. I am assuming at this point that the inflammation in my stomach has lessened since February as I don't have so many days feeling nausea although it is still there and some days I feel horrible or it may last a morning or an afternoon. I have no pain anymore from reducing the PPi from 40mgs to 20mgs. I am now about to start to reduce again in order to get off it but I am going very slowly.
I notice there have been questions about how to guess the amount of the PPI. The health food stores have clear empty pills so I aim to put the whole amount of one pill into the clear one and measure 3/4 of the pill (I might mark it) then return the 3/4 amount to the empty omeprazole shell and swallow that. I am going to alternate days with the full 20mgs and the 3/4 amount which would be around 15mgs for approx. 2 weeks then get right onto the 3/4 amount (15mgs) and stay there for a while. Then repeat the whole scenario again and again.
I am going to be very interested to ask the doctor if I really have GERD or acid reflux as there was no mention of it on the report.
Bec I was so pleased to see you back on here again. I do hope you are soon feeling better and not having so much pain. I think you were very brave to jump right off the PPI and you have been strong to stay off it. What is dyspepsia? Are the good days more now than the bad days?
I hope everyone has a nice memorial week-end.
Hi Kacyc, I can certainly understand your apprehension to discarding your PPi for ever. I know you have been on them a long time as I was too. I am also very nervous as to how I am going to handle it with food etc. For me, I feel back when I started on them it should only have been for a very short time to clear up the inflammation that I was told I had. they didn't say where the inflammation was but I suspect it was in my stomach as it is now. I also had a lot of stress in my life plus I popped aleve like it was candy, which I think started the inflammation up. So that I had nausea almost every day. I started on Aciphex but it seemed to take forever to help, if it ever did. Or the inflammation could have cleared up itself again it took around 3 months before I started to feel better. I want to find out from the doctor if the inflammation in my stomach was the cause of my distress for so long this time. I think when I cut the PPI by 20mgs that was another issue that made things worse. I don't know if by endoscopy they can tell if you have gerd/acid reflux so I need to find out and if he saw anything. so far there has been no mention of it. Today I have only taken the 15mgs and I am feeling that 'throat thing' again so I am sure the acid is rising again. I hope eventually when my body balances out I can get back to pre PPI without the inflammation in the stomach.
I feel sure you are careful with your diet and you can only find out how you will do without the PPI by trying it. I would start on a week-end when you don't have to work and then see what happens. Keep some tums or an otc handy for the early days to maybe help balance things. Let us know if and when you try it and I wish you lots of good luck and hope it all works and you feel wonderful without the PPI. then maybe gradually you can introduce some different food little by little.





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