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Amyotrophic Lateral Sclerosis (ALS) Message Board


Amyotrophic Lateral Sclerosis (ALS) Board Index


I'm sorry to here that your family is going through all this. I have had 3 family members die from ALS and now my aunt is showing symptoms of this nasty, heart breaking disease. You are correct to say that there are many diseases that mimic ALS, and yes one is lymes disease, but the docter who told your dad that it looks to be ALS, should have or is in the process of ruling everything else out. See with this disease there is no one test to say yes it is ALS or no its not. The diagnoses is done by proccess of elimanation. When all test are complete such as MRI's and blood work also some pysch work along with the neoro work up its then they can say wether its ALS or not. It is not a qiuck process at all. MY aunt started her testing back in September with a neuro doc here in MI and then at the end of october she was sent for further testing in ILL at North Western University, she has to go back again on november 21 for more nerve condution testing and again in December for psch testing. After every test comes back normal, its then they will tell her yes it is in fact ALS. Ofcourse with our family history we already have our gut feeling. Some of the early signs in our family is the muscle twitches and dragging of the left foot it progresses to the right hand weakness and atrophy in the left calf area. Useally tripping and falling are soon following.
Remember that this is how it happens in our family so it doesn't mean if your dad has the same symptoms thats infact what he has. We know for a fact my dad has the gene, Its almost like you just sit and wait for the bomb to go off again. I will be thinking of you and your dad, please write and let me know how things are going. JEN





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