... I have almost identical symptoms to yours. ... (4 replies)
... your husband are going thru this time. My husband was also diagnosed with ALS, bulbar onset and we believe he has had the disease for 2 yrs or so. ... (6 replies)
... The Bulbar form of ALS is very rare. My husband was diagnosed a little over 2 years ago. He lost his voice last year and gradually the use of his right hand and arm. ... (6 replies)
... hi . yes the bulbar is MUCH faster. my dad was diagnosed last may with als. he died january 1, 2008. his health fell quickly. we noticed daily changes in his ability to function. ... (3 replies)
... It's seems like to me!!!! I was dianoised in sept, but couldn't talk since may. I went to a ent first,then to a neurogoist, and my left leg and left hands hurts. I am know wearing a thing on my leg. I am on oxygen at night. I am working out of baylor in texas. (1 replies)
... symptoms of ALS. Her neurologist is sending her to an ALS specialist to confirm his suspicions. If she has bulbar onset, is that a faster progressing form of ALS? ... (1 replies)
... mom has been having slurred speech, swallowing and some walking difficulties. She went to see a neurologist a few weeks ago and he suspects ALS. She will see an ALS specialist next week. My question is, if she has bulbar onset ALS, is that a more aggressive form of the disease? ... (3 replies)
... ligament disease from the muscle test. I don't think I have myasthenia gravis because it wasn't found in my blood work and I don't have the eye symptoms and other things like the improvement you get when your muscles are at rest. My weakness stays the same, if not worse, as the day progresses. ... (9 replies)
... Hi. Just to inform you about the drooling and swallowing diffeculities that come along with ALS. Those symptoms usually happen in people diganosed with the bulbar onset. Sometimes you will get those symptoms "later" in the disease if you were diagnosed with Linb onset ALS. ... (2 replies)
... My mother's ALS was bulbar onset. She did not experience any of the symptoms you have. She had started with difficulty saying certain words like her tongue did not roll over the words correctly. ... (3 replies)
... Can bulbar palsy begin in the lip? ... (3 replies)
... My mother was diagnosed with Bulbar onset March 2012. At that point she was in late stage. As we look back on it now we think she started the initial symptoms about 2 years ago. In March 2011 she began having problems clearing her throat and was using cough drops constantly. ... (4 replies)
... it feels sharp. It also feels like someone is pinching my throat glands. Is it possible for ALS symptoms to progress this quickly from throat to body, or even all at once, within a two months or within a few weeks? ... (4 replies)
... First I noticed very fine twitches in my face whenever I smile
in the muscles around my mouth, cheeks, and eyes. (i can't feel them)
if I try to hold a smile, my mouth shakes/quivers.
At this time I also started getting pulsating twitches in my foot,
and random twitches throughout my body.
they've gone away for the most part and return occasionally
What worries me the... (3 replies)
... vigilant. My husband was diagnosed with ALS and also Lyme disease. I believe lyme may have been a trigger mechanism for underlying ALS. He was only 40 when he was dx, which is very young.. ... (5 replies)
... The fact that your EMG came back normal is great news! Muscle twitches with ALS don't come and go. My mothers were more like fasciculations than twitches, meaning we could see creepy crawlers under her skin but she couldn't feel them. ... (5 replies)
... I will jump right into it with my symptoms and what i have done so far to find out exacting what is wrong with my body. its a bit long but i would definately appreciate everyones opinion. ... (5 replies)
... law had bulbar onset but ideas were raised of stroke and other possibilities. ... (21 replies)
... thanks karen. I really feel sorry for ur mom. Actually, when I had muscle twitching I was not that much worried. But when I start getting pain while swallowing, I am totally upset and lost my peace of mind. You said ur mom had difficulty in swallowing rite? Does she had any pain while swallowing? I can feel some sort of burping sound while swallowing with mild pain. (4 replies)
... My mother had bulbar ALS. She started with an increasingly constant nagging cough. ... (4 replies)
