... He has lost a lot of weight in the past year, and he tires very easily. I should point out that prior to the onset of his symptoms over a year ago, he was healthy, vivacious, and robust. He looked and acted a good 15 years younger than his chronological age. ... (2 replies)
... Hi muggins, what is your vitamin regimen for this if you don't mind my asking? (5 replies)
... I am 69 and just diagnosed with Bulbar als.... I am and so is my whole family reserching diet concerns, as well as vitamins, minerals and ways to detoxify the body. The doctors are of no help. ... (5 replies)
... I am so sorry to hear about your mom. My mom died from bulbar ALS in October, 2005. She was 70. She was diagnosed in Spring 2003. ... (5 replies)
... I personally had limb onset, I am most certain bulbar onset doesn't consist of a sore throat :) (4 replies)
... Bulbar then progresses to other parts of body just like limb onset can do. ... (4 replies)
... Did u end up having ALS? I have almost identical symptoms to yours. I am scared (4 replies)
... My mother's ALS was bulbar onset. She did not experience any of the symptoms you have. ... (3 replies)
... nce a week to check in and an aide twice a week but they were not there all day. My brother took family leave and I used vacation days toward the end. Call the ALS foundation and ask about volunteers instead of using private duty. Hospice also has a group of volunteers to help. ... (4 replies)
... I'm in the same boat that you are - my mother was diagnosed with late stage bulbar onset ALS on 3-16-2012. Hospice started on 3-19-12. 24/7 in home care began 1 month ago. My mother does not want any life saving measures taken, hence no feeding tube, oxygen, etc. Her DNR document is on the fridge. Mother works to get down what she is able to "eat" at this point (from a... (4 replies)
... Can bulbar palsy begin in the lip? ... (3 replies)
... My mother was diagnosed with Bulbar onset March 2012. At that point she was in late stage. As we look back on it now we think she started the initial symptoms about 2 years ago. ... (4 replies)
... it feels sharp. It also feels like someone is pinching my throat glands. Is it possible for ALS symptoms to progress this quickly from throat to body, or even all at once, within a two months or within a few weeks? ... (4 replies)
... your husband are going thru this time. My husband was also diagnosed with ALS, bulbar onset and we believe he has had the disease for 2 yrs or so. ... (6 replies)
... Breathing problems occur with bulbar onset als. Does she also have trouble swallowing or changes in her speech? ... (1 replies)
... I lost my mother to ALS this past January. She had limb onset. She died after 10 months. The disease progresses different for everyone. ... (6 replies)
... My question is the same as yours only my husband has bulbar onset and went directly from diagnosis to bipap. In 4 weeks his deterioration is just astonishing. ... (1 replies)
... law had bulbar onset but ideas were raised of stroke and other possibilities. ... (21 replies)
... That is where my mom went. She saw Dr. Barkhaus there. Lori is in charge of ALS patient services, I think. I think she travels around the state as well. She is wonderful. ... (5 replies)
... Thank you so much for your reply. My mother sees a doctor at the Als clinic at Froedert Hospital in Milwaukee from time to time, but we live about 150 miles north, so distance is a problem for us. ... (5 replies)
