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Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1 2 3 Showing 1 - 20 of 61 for bulbar als onset. (0.008 seconds)


... He has lost a lot of weight in the past year, and he tires very easily. I should point out that prior to the onset of his symptoms over a year ago, he was healthy, vivacious, and robust. He looked and acted a good 15 years younger than his chronological age. ... (2 replies)
... They put a feeding tube in on the 19th. By the 20th i knew I had Bulbar ALS. In February and March I climbed ladder to do a friends security cameras. In April 4 I was confined to a wheel chair or a hanging on something to walk. ... (5 replies)
... Hi muggins, what is your vitamin regimen for this if you don't mind my asking? (5 replies)

... I am 69 and just diagnosed with Bulbar als.... I am and so is my whole family reserching diet concerns, as well as vitamins, minerals and ways to detoxify the body. The doctors are of no help. ... (5 replies)
... I am so sorry to hear about your mom. My mom died from bulbar ALS in October, 2005. She was 70. She was diagnosed in Spring 2003. ... (5 replies)
Bulbar ALS
Sep 2, 2004
... I personally had limb onset, I am most certain bulbar onset doesn't consist of a sore throat :) (4 replies)
Bulbar ALS
Sep 1, 2004
... Bulbar then progresses to other parts of body just like limb onset can do. ... (4 replies)
... Does anyone have any experience with respiratory onset als? ... (0 replies)
ALS blues
Jun 2, 2014
... ou have so much love around feed of this stay positive and please don't give up. I to have ALS upper and lower limb and onset Bulbar was diagnosed in March 2012 and was put on Rilutek since then and am still taking and hope is better than none. ... (2 replies)
... earing people's stories I went into panic mode. By the way, I'm only 26 years old and I have always been healthy up to this point. Also, I read somewhere that bulbar onset symptoms almost ALWAYS start out with speech difficulties first. I don't know if I mentioned in the previous post but this all came on sudden as well. ... (2 replies)
... I'm definitely scared now about bulbar onset ALS and it is reeking havoc on my mind and probably just making the situation worse. ... (2 replies)
... law was diagnosed with ALS about 18 months ago. Her ALS was bulbar onset, so her speech was the first thing affected. She is now in a wheelchair and has a feeding tube, although she can eat soft foods. ... (1 replies)
Tongue Twitches
Jun 22, 2013
... I have been checking out the ALS board and just reading stories. I hope for the both of us that this isn't what we have. ... (2 replies)
... Did u end up having ALS? I have almost identical symptoms to yours. I am scared (5 replies)
... My mother's ALS was bulbar onset. She did not experience any of the symptoms you have. ... (3 replies)
... nce a week to check in and an aide twice a week but they were not there all day. My brother took family leave and I used vacation days toward the end. Call the ALS foundation and ask about volunteers instead of using private duty. Hospice also has a group of volunteers to help. ... (5 replies)
... I'm in the same boat that you are - my mother was diagnosed with late stage bulbar onset ALS on 3-16-2012. Hospice started on 3-19-12. 24/7 in home care began 1 month ago. My mother does not want any life saving measures taken, hence no feeding tube, oxygen, etc. Her DNR document is on the fridge. Mother works to get down what she is able to "eat" at this point (from a... (5 replies)
... Can bulbar palsy begin in the lip? ... (3 replies)
... My mother was diagnosed with Bulbar onset March 2012. At that point she was in late stage. As we look back on it now we think she started the initial symptoms about 2 years ago. ... (5 replies)
... it feels sharp. It also feels like someone is pinching my throat glands. Is it possible for ALS symptoms to progress this quickly from throat to body, or even all at once, within a two months or within a few weeks? ... (5 replies)


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