... refused feeding tube, cannot, walk, talk, barely move, is incontinent. Well, to me she is near the end stages of life. ... (16 replies)
... Hello simoncat1...I understand, as I am expected to be the "rock" in my family. Please know that you can come here to express your feelings and feel "cloaked" in the support of those of us who care.
As for your SIL, yes she must state her wishes (explicitly) in writing and have them legally witnessed, including the DNR (explicitly). Regarding her desire to not be "end... (16 replies)
... Thank u for being there, even tho u don't know me, or her, I see that we r both on the same page, that is what I needed to know, that someone out there that doesn't know us, can see clear headed, bout what I am thinking. This way I can feel at ease (somewhat), bout how I am feeling. No it is not easy, and I see that u have had yr share of heartache as well, and I am sorry... (16 replies)
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... end stage als what to expect (0 replies)
... symptom of end stage ALS. The dr has now determined that the original diagnosis of nueropathy was wrong, and that, in fact, he has ALS. ... (0 replies)
... Are you all aware that ALS/Lou Gehrigs disease can have Chronic Lyme Disease as the underlying cause? (18 replies)
... My freind had ALS and he's dead now I have Ataxia he went fast thhats all I can tell you!! ... (18 replies)
... My mothers doctor has given her sleep aids and nothing helps..i know in the end stages they have terrible nightmares and muscle spasams but my mom fell in early sept. and has a spinal injury, she is totally paralized from the chest down. ... (18 replies)
... My uncle started showing signs of ALS over 9 years ago. I remember I was staying with them when he first started showing. ... (18 replies)
... Hello, I am so sorry to hear about your father. My mother passed away with ALS 9 years ago. I still miss her! ... (18 replies)
... I'm terribly sorry for you and your father. There is nothing anyone can say to prepare you for this disease. I lost my Grandfather to ALS and my Mother has been suffering with ALS for approximately a year now. ... (18 replies)
... My friend passed away in the early hours of Wednesday morning. He'd had ALS for 7 1/2 years. We are sad, but at the same time I am so glad that his struggle is over. He hung on for his girls and his wife as long as he could, but the human body is only built to take just so much. They let us keep him sedated and easy at the end, and it was very quiet and peaceful.
I know that... (21 replies)
... We too struggled w/ "misdiagnosis"~~My father-in-law had bulbar onset but ideas were raised of stroke and other possibilities. When the ALS didn't progress as rapidly as initially expected, one MD said it was possibly PMA: Progressive Muscular Atrophy. Unfortunately same ultimate outcome but people w/ this condition can expect a slightly better prognosis. Never give up... (21 replies)
... your spirits up and remain hopeful, but if you put all your confidence in finding some other diagnosis, you may be disappointed. It is rare to find out that and ALS diagnosis is actually something else, even though it does happen. I really hope for your sake and your family's sake, that you are some of the lucky ones! ... (21 replies)
... I'm so sorry to hear about your father, my heart goes out to you. My mother had ALS for 8 years and passed away in 2000. ... (21 replies)
... My dad can no longer walk & he can barely speak, he did 2 christmas cards this year for me & my 17 month old daughter it was halmark card's that record your voice it took him a long time to get it all out & doesn't sound like him as much but i'll tell you its was the best gift i got this year, Amazing!!!!
His neck muscles are going now as well & he really does not like... (21 replies)
... I did not know your has been sick for so long. It is the worst thing to watch. I have started to become more involved with the ALS accociation in hopes that it woud help me through this process. Can your father still talk or walk? ... (21 replies)
... I'm so sorry! The doctors think a family member of mine has ALS. Is it THAT hard to diagnose? I'm hoping someone will tell me if it is ever misdiagnosed..... we are clinging to a straw, I know. (21 replies)
... I am very sorry to hear about your father. I can only tell you how things have been going for us. My mom was diagnosed in Feb of 08 and she has the most agressive form of the disease. It is a hard road the only advice I can give you is hold this time close and spend as much time with him as you can. These are the days you will want to make sure you have no regrets. It is... (21 replies)