... What To Look For Last Stages Of Als. Patient Is Still To Walking But Falling Alot. ... (1 replies)
... stages of ALS. She is totally dependant on the care giver. She is completely immobile and often uses a breathing machine. Whether it's denial or grasping at the last straws of hope, she wants to be tested again for lyme disease. I understand we all need to have hope... ... (2 replies)
The bulbar onset of ALS just signifies that the ALS started in the muscles that control speech/swallowing and therefore moves to the respiratory system much quicker.
The most common form of ALS is the extremity onset in which a person has involvement in a foot or a hand first and it takes longer to move up to the respiratory system- but it definitely takes away more... (7 replies)
... You have my condolences in the loss of your Mom. ... (7 replies)
... nice thoughts. My Mom has since died of ALS! We were told she was ready for hospice. ... (7 replies)
... Hi there. My 59 year old mother has ALS. She has had it I would say around 5 years. She has been on oxygen since January of 2009. She started just using the bipap at night only but now is on bipap 24x7. ... (1 replies)
... Hello heidi My name is Vicky and unfortunately my mother is on her last stages of als. ... (2 replies)
... Do you have the help of a Hospice team? ... (1 replies)
... we visited a lymes disease doc after my husband was diagnosed with als in nov. he told us that he believed tim had lymes but also didnt take the als diagnosis away. ... (2 replies)
... yes there is hope. i have a story of person from pa who was bedfast with a feeding tube in 1997 with an als dx and was then dx with lyme. after 7 years of agressive antibiotic theropy and coloidial silver he is fine. ... (2 replies)
... use it to remind me of these things! Thanks again for your Perspective. I appreciate it! ... (7 replies)
... I lost my Mom to ALS 5 years ago. ... (7 replies)
... My Mom is 79 and was just diagnoised with ALS last year. She is going very quickly! She is ready for hospice services. ... (7 replies)
... rays and was sent to a pulmonologist who gave me a preliminary dx of sarcoidosis which is primarily a disease of the lungs. The day after I saw the pulmonologist on June 2 '04 all my symptoms for sarcoid kicked in. ... (1 replies)
... mth629 I am sorry about your mother's diagnosis. Last week after many months of wondering what was wrong with my mother she was diagnosed with ALS. ... (6 replies)
... I am 30 years old female. Many, many men in my family have died of ALS. My father died 3 years ago at 56. ... (5 replies)
... Thank you for you kind words! I did not hear the word bulbar mentioned. That may have been why she went fairly fast too!
Pam (7 replies)
... What beautiful advice. It's true...we all need to be grateful for the time we are given both for ourselves and with those we love.
May you and your mother find peace. Please keep reaching out to others for support, be there and love your mom, and appreciate every wonderful moment you have.
God bless. (7 replies)
... The younger the better, it is almost unheard of for somebody under 35 to get ALS. Most people who get this horrible disease are 65 and older. ... (4 replies)
... tips, suggestions, information, etc... I've been browsing around now for awhile and thought it was time to post. My mother who just turned 65 is now in the end stages of ALS and things are just getting rough. It has been helpful to me to read all of the past words of encouragement. ... (1 replies)