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Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1Showing 1 - 17 of 17 for misdiagnosed als. (0.004 seconds)


... What are the odds of an incorrect diagnosis of ALS being Lyme Disease? ... (7 replies)
... This is NOT ALS and is generally a benign condition. ... (5 replies)
... Foot drop could be a symptom of Lyme too? Where can u get tested for it in Australia? (6 replies)

... Ohiohunter has posted on this board...you might want to look for his posts as he was misdiagnosed with ALS. ... (6 replies)
... We too struggled w/ "misdiagnosis"~~My father-in-law had bulbar onset but ideas were raised of stroke and other possibilities. When the ALS didn't progress as rapidly as initially expected, one MD said it was possibly PMA: Progressive Muscular Atrophy. Unfortunately same ultimate outcome but people w/ this condition can expect a slightly better prognosis. Never give up... (21 replies)
... your spirits up and remain hopeful, but if you put all your confidence in finding some other diagnosis, you may be disappointed. It is rare to find out that and ALS diagnosis is actually something else, even though it does happen. I really hope for your sake and your family's sake, that you are some of the lucky ones! ... (21 replies)
... I'm so sorry! The doctors think a family member of mine has ALS. Is it THAT hard to diagnose? I'm hoping someone will tell me if it is ever misdiagnosed..... we are clinging to a straw, I know. (21 replies)
... Hi Back in the saddle There have been several cases of Lyme disease misdiagnosed as ALS You might havew them look into this which can be a slow moving neurological didsorder /infection Take a look at the lyme boards and I am aloso aware of a doctor out of colorado that was mis diagnosed with ALS when acually he had Lyme disease and is doing 80 % better now . Just... (3 replies)
ALS onset???
Mar 26, 2007
... this weird twitching I began to develop severe cramping, legs, feet and hands. Once it all happened at once while I was driving with no place to pull over. I was misdiagnosed by a neurologist who told me I had ALS. That was 5 years ago and I am fine although still twitching. ... (3 replies)
... My husband has CIDP and was misdiagnosed by 3 Neurologists as having ALS. ... (2 replies)
... use the symptoms of Lyme disease can so closely mimic the symptoms of other diseases. Although no official numbers exist on this subject, Lyme patients have been misdiagnosed with chronic fatigue syndrome, fibromyalgia, multiple sclerosis, menopause, depression, Alzheimer's disease, and Lou Gehrig's disease. ... (10 replies)
... I would make sure that you get your friend to an LLMD (lyme literate M.D.) and make sure his blood test is conducted at IgeneX labs in Palo Alto for lyme and tick borne coinfections. I became very ill a year ago and after going to Johns Hopkins and over 15 doctors - having two negative lyme tests finally found an LLMD in my area - went through IgeneX and was extremely... (7 replies)
... I was informed that Sadly Terry passed away a few years after, death was unrelated to als or Polymyositis. ... (4 replies)
... THat's such a wonderful story........GREAT ENDING..... My mom was diagnosed with ALS in April and her neuroligist here wanted to do a muscle biobsy but no one here has done it in so long... ... (4 replies)
Lymes
Oct 9, 2004
... it seems that someone could actually have als but could be misdiagnosed as lymes and vice versa? ... (7 replies)
... My sympathy to you and your family. My father in law passed away on May 17th of this year. Unfortunately for him, he was misdiagnosed for over a year and found out that he had Bulbar ALS about a week before he died. This is a horrible, horrible disease that needs to be stopped. ... (4 replies)
... I'm 21. My dad died of ALS on March 1999. The symptoms started a year before, but he didn't get diagnosed until 4 months before he passed. He was misdiagnosed. ... (11 replies)




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