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Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1 2 3 4 5 Showing 1 - 20 of 109 for onset als. (0.005 seconds)


... Does anyone have any experience with respiratory onset als? ... (0 replies)
... I'm definitely scared now about bulbar onset ALS and it is reeking havoc on my mind and probably just making the situation worse. ... (2 replies)
... people's stories I went into panic mode. By the way, I'm only 26 years old and I have always been healthy up to this point. Also, I read somewhere that bulbar onset symptoms almost ALWAYS start out with speech difficulties first. I don't know if I mentioned in the previous post but this all came on sudden as well. ... (2 replies)

... I'm in the same boat that you are - my mother was diagnosed with late stage bulbar onset ALS on 3-16-2012. Hospice started on 3-19-12. 24/7 in home care began 1 month ago. My mother does not want any life saving measures taken, hence no feeding tube, oxygen, etc. Her DNR document is on the fridge. Mother works to get down what she is able to "eat" at this point (from a... (5 replies)
... I am 69 and just diagnosed with Bulbar als.... I am and so is my whole family reserching diet concerns, as well as vitamins, minerals and ways to detoxify the body. The doctors are of no help. thanks god for friends andmy son (5 replies)
My mom has als
Sep 6, 2010
... Breathing problems occur with bulbar onset als. Does she also have trouble swallowing or changes in her speech? ... (1 replies)
... can anyone tell me the typical prognosis for a person diagnosed with bulbar onset als? ... (5 replies)
... have a shooting pain that comes out of the blue many times a day. On top of all of this, my neck has been hurting really bad, and I am hoping that it is not an ALS symptom because I have read that people with ALS can find it difficult to hold their head up. I am really scared to death. ... (6 replies)
... That's what I was wondering. Is slurred speech usually the 1st sign of bulbar onset ALS? ... (6 replies)
... I just turned 49 in December, and have been having strange symptoms in my tongue and throat, plus on/off labored breathing over the past 2 months. Can someone help me with some of the initial symptoms of bulbar-onset ALS? If the breathing is effected first, is it an on/off progression, that is, once the labored breathing begins, will it stay labored due to the muscle... (6 replies)
Bulbar ALS
Sep 1, 2004
... Bulbar then progresses to other parts of body just like limb onset can do. ... (4 replies)
... I am sorry to hear of this new diagnoses. My father passsed away last year from Limb onset ALS. He lived with ALS for 22 months after his diagnoses. He had symptoms for much longer though. Like your father, his symptoms started in his legs and also his feet. ... (3 replies)
... e symptoms usually happen in people diganosed with the bulbar onset. Sometimes you will get those symptoms "later" in the disease if you were diagnosed with Linb onset ALS. My father just recently passed away from limb onset ALS. He also was taking lipitor and had the same symptoms you describe. ... (2 replies)
... Hi, Your new onset of excessive sweating (hyperhidrosis) could be related to changes in the autonomic system. Scientists are just beginning to really look into autonomic changes as early markers for the disease. My husband was recently diagnosed with Respiratory Onset ALS (aggressive) because of dyspnea on exertion and inappropriate fatigue for the task. His hyperhidrosis... (5 replies)
ALS blues
Jun 2, 2014
... ou have so much love around feed of this stay positive and please don't give up. I to have ALS upper and lower limb and onset Bulbar was diagnosed in March 2012 and was put on Rilutek since then and am still taking and hope is better than none. ... (2 replies)
... nd I have not had any issues swallowing, breathing, or noticeable problems speaking. I guess my question is, do these symptoms sound like the beginning of bulbar onset ALS? ... (0 replies)
... None of these are signs or symptoms of ALS. There is no pain involved with ALS symptoms, merely a gradual onset of weakness in one hand or foot. ... (3 replies)
... Anybody would be scared about the possibility of contracting this terrible disease. That said, here is something for you to consider. Do not be so quick to dismiss the anxiety/stress opinion as telling you you are a "mental case". Your nervous system can send a lot of your bodily functions awry and this happens to people all the time. Your swallowing reflex is under the... (2 replies)
... law was diagnosed with ALS about 18 months ago. Her ALS was bulbar onset, so her speech was the first thing affected. She is now in a wheelchair and has a feeding tube, although she can eat soft foods. ... (1 replies)
... In February 2012 my voice got slightly bad. By October I could barely speak and choking on the food. November my left foot was dragging. December 2012 I choked on almost every bite. I went to the ER on 12/14/2012. They put a feeding tube in on the 19th. By the 20th i knew I had Bulbar ALS. In February and March I climbed ladder to do a friends security cameras. In April 4 I... (5 replies)


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