... I'm in the same boat that you are - my mother was diagnosed with late stage bulbar onset ALS on 3-16-2012. Hospice started on 3-19-12. 24/7 in home care began 1 month ago. My mother does not want any life saving measures taken, hence no feeding tube, oxygen, etc. Her DNR document is on the fridge. Mother works to get down what she is able to "eat" at this point (from a... (4 replies)
... I am 69 and just diagnosed with Bulbar als.... I am and so is my whole family reserching diet concerns, as well as vitamins, minerals and ways to detoxify the body. The doctors are of no help. thanks god for friends andmy son (5 replies)
... Breathing problems occur with bulbar onset als. Does she also have trouble swallowing or changes in her speech? ... (1 replies)
... can anyone tell me the typical prognosis for a person diagnosed with bulbar onset als? ... (5 replies)
... have a shooting pain that comes out of the blue many times a day. On top of all of this, my neck has been hurting really bad, and I am hoping that it is not an ALS symptom because I have read that people with ALS can find it difficult to hold their head up. I am really scared to death. ... (6 replies)
... That's what I was wondering. Is slurred speech usually the 1st sign of bulbar onset ALS? ... (6 replies)
... I just turned 49 in December, and have been having strange symptoms in my tongue and throat, plus on/off labored breathing over the past 2 months. Can someone help me with some of the initial symptoms of bulbar-onset ALS?
If the breathing is effected first, is it an on/off progression, that is, once the labored breathing begins, will it stay labored due to the muscle... (6 replies)
... Bulbar then progresses to other parts of body just like limb onset can do. ... (4 replies)
... I am sorry to hear of this new diagnoses. My father passsed away last year from Limb onset ALS. He lived with ALS for 22 months after his diagnoses. He had symptoms for much longer though. Like your father, his symptoms started in his legs and also his feet. ... (3 replies)
... e symptoms usually happen in people diganosed with the bulbar onset. Sometimes you will get those symptoms "later" in the disease if you were diagnosed with Linb onset ALS. My father just recently passed away from limb onset ALS. He also was taking lipitor and had the same symptoms you describe. ... (2 replies)
... Did u end up having ALS? I have almost identical symptoms to yours. I am scared (4 replies)
... My mother's ALS was bulbar onset. She did not experience any of the symptoms you have. ... (3 replies)
... nce a week to check in and an aide twice a week but they were not there all day. My brother took family leave and I used vacation days toward the end. Call the ALS foundation and ask about volunteers instead of using private duty. Hospice also has a group of volunteers to help. ... (4 replies)
... Please please I am begging for help. I have posted and posted and gotten no answers. I began with body wide fasics in march.
Can bulbar palsy begin in the lip? When I open my mouth the right side of my upper lip slightly droops and the left side of my lower lip droops and shakes. I am29 years old. Im going to be having a bulbar and repeat emg this week. I had a six site emg... (3 replies)
... My mother was diagnosed with Bulbar onset March 2012. At that point she was in late stage. As we look back on it now we think she started the initial symptoms about 2 years ago. ... (4 replies)
... it feels sharp. It also feels like someone is pinching my throat glands. Is it possible for ALS symptoms to progress this quickly from throat to body, or even all at once, within a two months or within a few weeks? ... (4 replies)
... of cases are termed sporadic.. which means anyone, anywhere, no rhyme or reason. But.. onset is usually in your early 50's. ... (3 replies)
... It really doesnt sound like ALS as you are really too young and ALS is more or less gradual onset and progresses a little slower than what you explain. ... (7 replies)
... Hi muggins, what is your vitamin regimen for this if you don't mind my asking? (5 replies)
... I also posted about this on the neuromuscular board. My mother had a sudden onset of an undiagnosed neuro-degenerative disease in the summer of 2007. My father would and my mother would go for walks everyday and he noticed her leaning to the right; he assumed she had had a stroke, although she had not. She used to be a larger woman compared to now, she was probably 220lbs... (1 replies)
