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Amyotrophic Lateral Sclerosis (ALS) Board Index
Pages: 1 Showing 1 - 20 of 23 for what is bulbar onset. (0.742 seconds)


... hen I say I couldn't swallow I mean I would chew and chew and chew my food and it's like the swallow reflex didn't kick in. This of course freaked me out and it is now the middle of July and I've still had no such luck. ... (2 replies)
... in home care began 1 month ago. My mother does not want any life saving measures taken, hence no feeding tube, oxygen, etc. Her DNR document is on the fridge. ... (5 replies)
... Hi muggins, what is your vitamin regimen for this if you don't mind my asking? ... (5 replies)

... I am 69 and just diagnosed with Bulbar als.... I am and so is my whole family reserching diet concerns, as well as vitamins, minerals and ways to detoxify the body. The doctors are of no help. ... (5 replies)
... can anyone tell me the typical prognosis for a person diagnosed with bulbar onset als? ... (5 replies)
... That's what I was wondering. Is slurred speech usually the 1st sign of bulbar onset ALS? ... (6 replies)
... Can it be labored for a hour or so one day, then OK the next, then labored the 3rd day, or is this not possible? ... (6 replies)
... rd to control. He has difficulty swallowing, and he drools quite a bit. He chokes when eating, and he also chokes spontanteously even when he isn't eating, which is usally followed by several minutes of serious coughing and wheezing. He sleeps very little at night. ... (2 replies)
... your husband are going thru this time. My husband was also diagnosed with ALS, bulbar onset and we believe he has had the disease for 2 yrs or so. ... (6 replies)
... I'm sorry that you are dealing with this horrible disease. I most sorry that you feel "used". Please realize that most people don't know what to say. Many people use this board searching for help and answers. ... (6 replies)
... That is where my mom went. She saw Dr. Barkhaus there. Lori is in charge of ALS patient services, I think. I think she travels around the state as well. She is wonderful. She has so much information available to you and she is so available..just to talk to. ... (5 replies)
... days with a swallowing problem. I currently feel like there is a small bump or something down my throat that is making me gag something awful. ... (6 replies)
... marky, what makes you think it is ALS? ... (6 replies)
... law was diagnosed with ALS about 18 months ago. Her ALS was bulbar onset, so her speech was the first thing affected. She is now in a wheelchair and has a feeding tube, although she can eat soft foods. ... (1 replies)
Brand New Journey
Jun 14, 2010
... My name is Amy. ... (55 replies)
... First let me say that I am so sorry to hear of your mother's ALS dx. I understand what you are feeling and going through. I know how hard it is. I know the pain. My dad passed away on March 9 of this year from ALS. ... (9 replies)
... Hi. I am 34 and my dad passed away this past March from bulbar onset ALS. He was 60 yrs. old. ... (2 replies)
... I am so sorry for the loss of your father. I lost my dad on March 9 of this year. He had Bulbar onset ALS. He was dx in Dec. 2002. I know what it's like to lose a father and I'm here if you need to talk. He was only 60. I all happened so fast a year after his dx. ... (4 replies)
... Sorry to hear about your husband. My dad was just diagnosed in August with bulbar onset als. My dad has not lost weight yet tho. He is eating whatever he can confortably chew and swallow. He no longer eats bread, only toasted whole grain types. He takes his pills with a spoonful of oatmeal. ... (2 replies)
How do I help?
Oct 12, 2003
... Sorry to hear about your mom. My dad was just diagnosed too. He has what is called "bulbar onset als" which is what your mom has. ... (10 replies)




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