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I am 29 years old, and recently went to the dr to investigate possible thyroid issues as I have been having lots of symptoms. Loss of hair, extreme fatigue, anxiety attacks, numbness/tingling in hands & feet, stomach issues, inability to lose weight, just mentally fogged...well my thyroid is normal. I got a copy of my lab results and a few of the numbers were off/borderline so I looked them up and kept coming back to Pernicious Anemia. My grandfather had this and it says it can run in blood relatives, and some of the symptoms fit but not all...anyway I asked my dr who looked a little skeptical but said fine we will test you, its easy enough and it will put your mind at ease. 1 month later I go back and she says, well, I'm honestly shocked but you have the parietal antibodies, which means your body is attacking the cells of your stomach that make intrinsic factor so you are not absorbing b12. We started injections yesterday starting with 2 ccs, and I have to self adminster monthly and go back for blood levels. I am just kind of lost and confused, I can find a lot of info as to what the actual process behind this disease is, but not what I should expect as to progression, how it will alter/affect my life, and so forth. My husband is acting like its no big deal but I am seriously kind of crushed by this and desperately looking for someone to help me shed some light? What is going to happen to me? Will I get worse over time? Will the B12 injections help me feel better, will they keep working? How young is too young to get my children tested for the gene? I am just feeling very lost and alone and depressed about the whole thing, and everyone seems to hear the word anemia and go with "oh honey you'll be fine just take a vitamin and eat red meat" well thats not what this is...and i feel like no one cares that this life altering thing has happened to me.

Thanks in advance for any and all help!

Laurel
[QUOTE=PAMama;4639682]I am 29 years old, and recently went to the dr to investigate possible thyroid issues as I have been having lots of symptoms. Loss of hair, extreme fatigue, anxiety attacks, numbness/tingling in hands & feet, stomach issues, inability to lose weight, just mentally fogged...well my thyroid is normal. I got a copy of my lab results and a few of the numbers were off/borderline so I looked them up and kept coming back to Pernicious Anemia. My grandfather had this and it says it can run in blood relatives, and some of the symptoms fit but not all...anyway I asked my dr who looked a little skeptical but said fine we will test you, its easy enough and it will put your mind at ease. 1 month later I go back and she says, well, I'm honestly shocked but you have the parietal antibodies, which means your body is attacking the cells of your stomach that make intrinsic factor so you are not absorbing b12. We started injections yesterday starting with 2 ccs, and I have to self adminster monthly and go back for blood levels. I am just kind of lost and confused, I can find a lot of info as to what the actual process behind this disease is, but not what I should expect as to progression, how it will alter/affect my life, and so forth. My husband is acting like its no big deal but I am seriously kind of crushed by this and desperately looking for someone to help me shed some light? What is going to happen to me? Will I get worse over time? Will the B12 injections help me feel better, will they keep working? How young is too young to get my children tested for the gene? I am just feeling very lost and alone and depressed about the whole thing, and everyone seems to hear the word anemia and go with "oh honey you'll be fine just take a vitamin and eat red meat" well thats not what this is...and i feel like no one cares that this life altering thing has happened to me.

Thanks in advance for any and all help!

Laurel[/QUOTE]
Hi there,

1st rule of thumb is "not to panic" because if you do...you'll feel worse. Also, I have pernicious anemia also and my husband thinks it's the same thing like he has....reflux! It is a step up from reflux...I can assure you. Pernicious Anemia affects people differently depending upon how early you caught your B12 deficiency + how early you were treated thereafter. For myself...my doc told me that she can correct nerve damage going back "only" 6 months. She didn't know how long I had pernicious anemia prior to her treatment with B12 shots. My daughter told me that she read somewhere that people who have pernicious anemia have to watch the things that they eat otherwise you'll get alot of discomfort in the stomach, including air locked in there, and you'll reflux.

I do have the brain fog as you do, the muscles in my eyes are very weak where it's hard for me to focus, I feel fatigue, shooting nerve pains throughout my body, I get out of breath too but that's when you have to go lye down and relax your body. I am 52 and I get the hot flashes, headaches, dizziness. Doctor told me to eliminate the foods that cause you a problem and stick with those that don't make you sick.

You'll be fine! You'll see





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