... I'm actually very knowledgeable about fibro as I set up a charity for those with it shortly after my own dx 15 years ago, and to be honest, I really don't fit the criteria for fibro any longer (there's now a query as to whether I ever actually did!), as I don't have widespread muscle pain, nor any sleep deficits and have never had more than 4-6 tender points, usually less. ... (4 replies)

... Yes i have the deep muscle pain, can be so tearful pain. i have Fibromyalgia and other arthritis but from what i am reading here is much what i have everyday with Fibromyalgia. ... (4 replies)

... minutes at a time, but during that period the pain, as I said, is overwhelming beyond measure. I've had a return of the bone pain because of ischemia, but it's easily treated with overnight heatpacks. ... (4 replies)

... Appreciate your thoughts and help - will keep you updated if I do ever get some idea of the cause. Thanks again :)) (4 replies)

... i wished i could have been of more help. i do understand how you are feeling so frustrated trying to figure all this out. Other than a Rheumatologist, i also see a neurologist which has been very helpful. Hopefully you have some answers soon. Wish you Well BeHappy2 (4 replies)