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Autism Spectrum Message Board


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[QUOTE=idaphne63;2968049]I am sorry to hear this about your son. Perhaps it is just a stage? My son, PDD-NOS (3.5) has periods where he will babble (he is verbal), but then he stops.

I am wondering why your doctors have told you that as your son gets older, he will regress?? The only ASD diagnosis w/a known regression, I thought, was Childhood Disintegrative Disorder. However, I am by NO MEANS an expert, just a parent.

If your son is receiving therapies, what are his therapists take on the new behaviors and how to handle them? If the new behaviors are nearly constant and out of the ordinary for him, then I would probably get another opinion on diagnosis and interventions from a new developmental ped.

Also, perhaps there is a new anxiety/stressor in his life (something school-related?) that is causing him to engage in these behaviors. I have heard other parents of ASD kids say that their kids engage in stimming behaviors as a way to decompress/handle stress.

So sorry you are going through this.

Daphne[/QUOTE]

Hi Daphne,
I was just told by the doctors that it was normal for more symtoms to develop as he gets older. Last year there was never really any problems with him. But this year he is doing alot of stimming, and can be very diafient. We do not have therapists to work with him, because we can not afford it not when we have 3 other kids.
My son does have his days though when he can be a little sweety, he does like to cuddle and give hugs on his terms, catch him off guard and he's off and running. I do have an app't with a doctor who deal with Autistic children and I'm hopeing for advice on how to make things a little bit more manageable at home and in my sons life.
In the mean time I do alot of reading, if you or anyone else know of any good books to read on autism let me know.
thanks
[QUOTE=canadian mom;2970608]Hi, I have heard a lot about vitamins and minerals that are supposed to help kids like ours, do you have any idea what they are?
And have you ever heard anything about gluten and castin free diets? I'm just wondering if my son would benifit from something like that. I don't like to have him on medication unless there's no other way.
canadian mom[/QUOTE]

Hi Canadian Mom,

My own son has used Omega 3s, vitamins & minerals for many years. He has also been gluten free for 7 years. We tried the casein free diet as well, but for my son casein was less of an issue. For him, these things are quite important. We've tried a number of other "biomed interventions," but for the most part, these are the mainstays for us because they seem to be helpful when used & sorely missed when they are not taken. (The GF diet is absolute for my son due to a severe gluten allergy.)

There are many opinions about these "biomedical" interventions for kids on the spectrum. Most regular docs don't believe in them, only use Rx meds. And, some kids need the Rx meds. When a child is a danger to himself or others, meds are called for, at least in the short term. Sometimes a child with serious behavioral disorder can reduce med dose when nutrients are optimized.

In my experience, modest doses of Omega 3 cod liver oil are one of the most helpful things for most kids on the spectrum. The essential fatty acids in CLO are generally deficient in the modern diet. For [B]all[/B] children, those Omega 3 EFAs are critical for brain development, and also for smooth emotional functioning. When our son relapses on taking his fish oil (he takes EPA caps right now), he has a much more difficult time with communication, obsessions, and anxiety. Omega 3 oils are now being added to infant formula, because there is a general recognition of their importance in neurological development & function.

It cannot be used by children with coagulation disorders like hemophilia, or those who are on blood thinner meds (fairly rare in children). I recommend that you research fish oils & CLO, and look for a brand that is third party-lab certified for purity (you don't want to be giving your child mercury or PCBs), as well as one that is deodorized & flavored. The last part their helps your child's willingness to take the CLO. In the USA, my 2 favorite brands are Nordic Naturals & Carlsons. We've tried cheaper dept. store brands & they just don't get used up because of nasty after-burps, etc.

Some good resources for learning about diet & nutrition: 1) find a DAN!
(Defeat Autism Now!) doctor who can help guide & educate 2) The book, [B]Children with Starving Brains[/B] by Jacquelyn McCandless 3) The book, [B]Autism: Effective Biomedical Treatments -- Have we done all we can for this child? [/B] by Pangborn & Baker.

If financial resources are limited, start with reading. You may be able to get the books at your local public library. The McCandless book is less technical & an easier place to start than the Pangborn book.

The difficult thing about making dietary interventions is that there is no absolute guarantee that nutrient A, B, or C will have a major observable impact on your child's behavior. Yet sometimes nutrient D will, or A, B & C combined. It takes a great deal of patience. Biomed helps many -- some even 'recovered' -- but not all. On the other hand, the biomed interventions seem like a relatively safe gamble, compared to the side effects from long-term med use.

Best wishes.





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