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Down Syndrome Board Index
Pages: 1 2 3 4 5 6 7 8 9 10 11 ... 40Showing 1 - 20 of 806 for syndrome. (0.089 seconds)


... I don't know how close you are to San Diego. What I do know is that the top doc in all matters Down syndrome in the world is located in San Diego. His name is Dr. William Mobley at UCSD. ... (3 replies)
... So happy that you were able to make contact with Mobley's office. Near the other side of the continent, my daughter is too fragile to travel to Cal., or I would try to have her in Mobley's care in a heartbeat. She was taking a med that she should never have been taking on a daily basis, and only because I was fortunate enough to hear him speak at a conference in Nashville, my... (3 replies)
... Thank you Clyde! I just made an appointment. We are having her evaluated at UC Irvine tomorrow, at another well recommended center. And then there is another place we found through the Harbor Regional Center. But Dr. Mobley is coming back from Denmark on Friday, and his secretary said she would make an appointment for us after consulting with him. Thank you so much!... (3 replies)

... Prior to learning that what she has is an auto-immune disorder, I often wished that our daughter could have MRI, unfortunately, she has the pacemaker, as well as the metal clamps that were used in 96 to close her sternum after she had open-heart surgery. So, no MRI's for her. Trying to get appropriate treatment always seems so slow. It is confusing, understanding about the... (8 replies)
... Great that they did an Echo; that is how they found the Sub-aortic stenosis in my daughter. So it appears that you can check that off your 'worry list.' I would hope that you will follow up on the thyroid antibodies tests. Has your daughter had EEG? How is your daughter's balance? Does she have any involuntary movement, i.e. Jerks or seizures? How is her speech, as compared to... (8 replies)
... I am the adopted father of a 28 year old adult daughter with Down Syndrome. Her name is Corinne. About three years ago, my wife and I had to move away from our home in Orange County. At that time, had you asked me about Corinne, I would have told you she was about the happiest little thing I had ever met, without a care in the world. Almost as soon as we arrived in... (3 replies)
... of the medical profession sees is their Down syndrome and then it is so convenient to blame their DS for everything, instead of trying to learn what is wrong with them. ... (8 replies)
... I was amazed to read a post and I see it was from 2010 on down syndrome and H.E. ... (8 replies)
... Hello I have read a little about GABA and Trisomy 21, and about the testing of a new drug that is in trial and accepting applicants for the study. I also have noticed how a lot of tranquilizer meds increase GABA and I have tried to see which we're GABA Antagonists. And which were agonist but it is very difficult to understand and especially when my daughter has been... (8 replies)
... Hello I have read a little about GABA and Trisomy 21, and about the testing of a new drug that is in trial and accepting applicants for the study. I also have noticed how a lot of tranquilizer meds increase GABA and I have tried to see which we're GABA Antagonists. And which were agonist but it is very difficult to understand and especially when my daughter has been... (8 replies)
... Hi Yes I am going to have to try the Kennedy Krieger institute. I am not getting anywhere here in NJ. It's impossible to even get the tests done to even check these things out here. And in the meantime she's not getting treated and getting worse. My daughter also had open heart surgery as a baby. She had a follow up appointment a few months ago. I didn't know about the... (8 replies)
... Hi. Thank you for explaining this to me. It is very valuable information and so important to us. Can't thank you enough! My daughter never had any neurological testing done at all except for a cat scan in the ER when this initially occurred last September. The ER said she was fine medically and released her and since she is developmentally disabled, the state of NJ sent an APN... (8 replies)
... Have your daughter's anti-thyroid peroxidase antibodies levels been tested? That is usually the first test that is done, and then the enolase antibodies. In HE, these antibodies are elevated. To confirm, a lumbar puncture to test for elevated protein is sometimes done. My daughter was tested last year, and her's were both elevated. Three drs., primary care, rheumatologist,... (8 replies)
... My older sister has Down Syndrome. She is 38, and is on citalopram (antidepressant), abilify, and lamictal. She also was recently diagnosed with hypothyroidism. I grew up with her so I can give you the sibling's point of view. :) (3 replies)
... I am hoping to find other parent's that also have an adult with Down Syndrome. I am finding that there is several subjects for baby's etc. but very little groups that focus on "adults with Down Syndrome". :angel: (3 replies)
... My partners sister has a Downs syndrome son who is twenty six years old. She has found "naked women" on his websites visited history and wants me to put on parental controls. ... (1 replies)
... People with Down Syndrome are very much like other people. They have different temperments and personality traits. ... (2 replies)
... r this dog and she herself no matter how high functioning is still someone that truly may need supervision herself. From what I have been advised regarding Down Syndrome individuals is that they cannot adapt to situations that are not learned. ... (2 replies)
... My experience with Downes Syndrome individuals has been minimal. ... (2 replies)
... Hi- I hope your baby is doing better since I just read your post and your baby is probably 18 months old now. My DS child, who is 2 years old, has severe sensory issues. He will eat only eat sweet potatoes and occasionally peas, everything pureed. With some children there are several issues involved- probably you as a mom together with a good team of doctors can figure out... (1 replies)


Associated Tags: autism, babies, behavior issues, down syndrome, down syndrome issues, feeding, risperdal, stomach problems with babies

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