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Down Syndrome Board Index
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... a (7 replies)
... There is a book, "Mental Wellness in Adults With Down Syndrome," by Dr. Chicoine. Dr. Chicoine began and still runs the oldest adult down syndrome health clinic in the U.S., and possibly the world. Unfortunately it is just outside of Chicago, and due to overwhelmig response, they only see residents of Ill.. ... (12 replies)
... Hello, My daughter is 47 and has Down syndrome. (12 replies)

... Hashimoto's Encephalopathy is underdiagnosed in the general and in the Down syndrome population. ... (19 replies)
... Hello I am new to the discussion thread and I am in need of seeking help and advice from mothers with Down Syndrome Children diagnosed with Hashimoto Encephalitis. My sister who is 13 years old was diagnosed with Hashimoto Encephalitis 7 months ago. ... (19 replies)
... He does get SSI not much and he is on the Wyoming waiver that gives out money to help but that money goes towards caregiving due to both of us having to work.He does well with his sitter, for now, but we just want to make him happy and it breaks my heart to see him this way. (12 replies)
... Wow- After searching for Disability services in Wyoming, I see what you mean. There must be something. Does he receive SSI? We're in California and are lucky to have easy access to resources. I'll check with my Regional Center Worker to see if she knows of resources for you in Wyoming. (12 replies)
... I forgot to add- Reward the "Good Behaviors" with lots of praise, sometimes treats- to encourage more good behaviors. Be really enthusiastic about his good behavior like- "I really love how you were being gentle, it makes me very happy"- etc. He really needs to be acknowledged when he's doing good. I have a tendency of getting too caught up in things and have to remind myself... (12 replies)
... Thank you the info is helpful. Living in Wyoming we don't have a lot of resources to draw from. We know we need to get Cruz to a Dr. It's just with him fighting and it seem we have to find a new Dr. all the time as Dr. Don't hang around here for long and that just adds to the frustration. Cruz loves music and we play the for him but when he acts out there are no warning signs... (12 replies)
... sgtbulldog- Bless you for being patient and loving with your stepson I know it is even more difficult when it's not your own child. My downs/autistic son (Tyler) will be 22 in Feb. and in the past had gotten very aggressive with me (mom) and some of teachers/aides a couple of years ago and it was scary. Violent outbursts would seem to come out of nowhere and scared the #@&%... (12 replies)
... I could use some help. My step son is 21 and before this summer he and I were so close. We went everywhere just had a great time goofing around together. Then we went camping like we have done before and things were great when all of a sudden it was like a light switch he attacked me very violently and to this day we don't know what set him off. Needless to say he is hitting... (12 replies)
... I have a 26 year old with downs. I know what you mean, alot of baby info. (12 replies)
... Hello I have a 13 year old sister diagnosed 7 months ago with Hashimoto Encephalitis and who also has DS. I am also seeking advice from mothers or relatives that have children diagnosed with HE. I wanted to know what type of treatments are most common or that have helped children with DS. My sister has has been through several treatments and none has worked how we though it... (1 replies)
... Thank you so much for updating on your daughter's experience at University of Penn.. If you don't mind sharing, what was the treatment for auto-immune disease? I hope that what I wrote was of some help. I have come to believe that we, parents, learn more from one another's experiences than from the medical profession. I believe that Doctors would like to help, but... (19 replies)
... Hi all, I have a 13 (soon to be 14) year old daughter with down syndrome. She got her period when she was 11, I was taken by total surprise and it took her a long time to get used to it, and the care of it has been very hard. My problem is that she has such a short cycle every 20 to22 days, so it seems as if we never get a break and it's becoming increasingly hard to manage it... (1 replies)
... n syndrome. She has very similar symptoms like you are writing about. I too have an open thread "HASHIMOTO'S ENCEPHALITIS" Clyde, a mom with a daughter with Down syndrome is very knowledgeable and has been a godsend to us. ... (4 replies)
... ly. It's now the end of Sugust and no testing as of yet but I am keeping my fingers crossed for tomorrow morning. I know it has to do with the fact that the Down Syndrome marks her. its a calling card that leads to immediate profiles that shadow judgement even at UPenn. I will let you know. ... (19 replies)
... Hi BriMom, you are taking your daughter to the very best Neurology Clinic to learn if what she has is Hashimotos Enscephalopathy. Overall, it took 5 years for us to learn that she has HE. The problem we ran into and which all parents of persons with DS are familiar with is that when something unusual occurs with our children's health it is always "it's his/her Down... (19 replies)
... I don't know how close you are to San Diego. What I do know is that the top doc in all matters Down syndrome in the world is located in San Diego. His name is Dr. William Mobley at UCSD. ... (4 replies)
... Great that they did an Echo; that is how they found the Sub-aortic stenosis in my daughter. So it appears that you can check that off your 'worry list.' I would hope that you will follow up on the thyroid antibodies tests. Has your daughter had EEG? How is your daughter's balance? Does she have any involuntary movement, i.e. Jerks or seizures? How is her speech, as compared to... (19 replies)

Associated Tags: autism, behavior issues, down syndrome, medicaid waiver program, ostomy care, risperdal, transition to adulthood

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