It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Epilepsy Message Board


Epilepsy Board Index
Board Index > Epilepsy | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


I had brain surgery to remove a tumor & I was having right temprol lobe seizures, so my situation is different. But I did have a co-worker have brain surgery for seizures, and as far as I know, it had worked for her. Brain surgery is the RISKIEST kind of surgery, you can suffer hemrage, stroke, brain damage or dealth if something goes wrong. I had a stroke during mine, took me years to recoup (again mine was diff) but the brain is the most sensitive organ. RESEARCH other peoples outcomes, search all over the web & get as much research about your medical facility & surgeon as you can.
I was diagnosed with seizures 15 yrs ago, and I underwent Right Anterior Temporal Lobectomy April/2008 (age 26), and so far I been seizure free. Its not a easy decision to make, It wasnt for me, but it was the best decision I could have made in my life. To begin, they will need a series of test done to figure out what type of seizures you have and where they originated. To decide wether you are or not a candidate they must make sure that surgery is not going to effect your motor skills, speech, or memory. My surgery was a success Thank God, Im still on meds, but Neuro is thinking of taking me off next April so I can finally Become pregnant... The surgery itself was not bad, but post surgery recovery annoyed me since I had to wait months 2 get back on my feet. Anyways I hope you are a candidate and that surgery could help you, since nowdays its a very common procedure. If u have other concerns write, but remember to write all major questions down, to ask your neuro..
Laura
I had a left anterior lobectomy.I am 45 and starting having seizures
at age 4.I can tell you since surgery I haven't any problems as
far as speech,my memory is not any worse than it was before due
to all the seizures I had in my life.But,unfortunately my seizures have
not all went away,I still have seizures,but, no where the amount I did
prior.Before surgery I had them every two weeks,due to hormones,
I have catamenial epilepsy.The month right before surgery I had 32
seizures that month,now I might have one every 6 or 8 weeks.I have
also noticed since surgery I have a little blurred vision,and I had to
get much stronger reading glasses, and if I read too long I will get a
very bad headache that may last a few hours,since then they started
me on migraine pills,but,it only controls a little.Sorry for the bad news,
but,don't let this discourage you,my family keeps reminding me how bad
everything was before surgery.If you have questions,I'll be more than
glad to help the best I can.
Kyestar, Im very sorry to hear of your first surgery, but due hope things turn better on your second surgery next year. I had my right temporal surgery also in 2007 but thankfully been fine since. I due hear the left temporal is more complexed. I will keep you on my prayers, but let us know how it goes... Best of luck to you
laura
which lobe is your surgery R/L? This surgery will be similar to mine. I had Right Anterior Temporal Lobectomy for Mesial Sclerosis (hardend tissues) due to brain injury, and I had intractable epilepsy (which meant meds couldnt help my problem, only surgery)... I had a quarter of my right temporal lobe and medial Hyppocampus removed, but it was necessary for my freedom. Have you had all your exams done (EEGs, MRIs, and pre-surgical test, such as the WADA test done?) What is the surgeon's prognosis on your case? make sure your satisfied with their findings and decisions before you undergo such procedure. In my case I must say I was scarred but very hopeful of a brighter seizureless future, so if this is what it takes I tell you to go on. Do study lots I did for 2 years, any other questions you'll like to ask, Im here... Things will be just fine :)
laura
I've had epilepsy since I was 3 after falling down a flight of stairs. My complex partial seizures could never be controlled with medication. I had 2 to 3 seizures per week until the neuorsurgery in 1990. I had right temporal lobe surgery performed at Tufts Medical Center in Boston. I'm 40 now and have not had a seizure in over a decade. Last one I had was when I forgot to take tegretol that morning. I still have epilepsy but the seizures are controlled with 1500mg of Keppra per day.
The nerosurgery had no effect on my brain function. I got a BSEE degree with a 3.8 GPA in 1994. The neurosurgery was life risking but was well worth it.:)
Jim,

In general due to memory and speech locations in the brain, left lobe surgery is more complexed than right lobe surgery. I underwent right temporal and prior to my surgery I had very bad memory and my neuro-psych eval. showed problems in short term memory either through vision or verbal.. Post-surgery neuro-psych showed the opposite effects, my memory had been restored, and even my reflexes were better. According to the doctor, the bad tissue in my right lobe was suppressing my left lobe causing memory problems, but since they removed it, my memory had return and my left hemisphere is much stronger since it's what my brain is depending on..lol i can say for sure that same results can or cant result in your case, but I have spoken to individuals who underwent your type of surgery and they had amazing results, 10 yrs seizure free, no memory problems and better lives. Once again only your neuro surgeon knows for sure how your outcome will turn out depending on where he's cutting. Make sure you ask if it's necessary to invade and cut through such areas, what will the outcomes be, and if they can be avoidable? So far how was your neuro-psych eval?
Yes,my memory has gotten worse since surgery,not right away,
but,I have noticed when talking to friends and family I don't
remember alot they are talking about(mainly short term).My seizures
have lessened,but,a few weeks before Christmas I had a GM and it
was the worst seizure I have ever had in 40 years,sorry to say,first
time during a GM I lost bladder control and cannot tell you much about
the next 48 hours,worst I ever chewed up my tongue and I mainly
always had complex partials just a very few GM seizures before surgery.
Like I said before though the amount of seizures I have now at this
point seems to have cut back a little,I was having them every 2 weeks
and 32 one month,now I have maybe 1-3 every 4-6 weeks,until this GM
I was only having very mild ones,did not take as long to get myself back
together afterwards.Feel free to ask any questions.Good-luck
[QUOTE=030free;3833135]

Laura:

I am set for my left temporal lobe surgery(amygdalohippocampectomy). The surgery will take place this upcomming Tuesday, February 3. I have been "nesting" for the past three weeks. You would think I'm pregnant but that (thank god) is impossible. I needed to get the yard and other areas of my property taken care of before it all goes to H#!!88%$#.

The doctor and I reviewed the MRI together. The lesions in the left temporal lobe were quite obvious. There was also a notable difference in the corresponding regions. The area of focus (left temporal lobe) was notably smaller than the corresponding area in the right temporal lobe.

Hopefully I will realize my dreams to be free of this condition that has impacted my life for half a century.

Regardless of what happens, I will keep you posted.

Thanks for your support.

Jim
Jim,

CONGRATULATIONS, this was a big mile stone and you came out good. I remember that feeling, still its only been a few weeks so you need lots of rest and take it easy. I was waitting for you to reply and Im so glad to hear your ok, you haven't had any spells post surgery due to brain swelling?


Hi, Amber Jewell Lets begin by asking what type of surgery will you be undergoing? left or right? what's your diagnosis? I joined this site years ago when I was having my surgery and I had the same questions you have.. surgery went well and today I hit 23 months seizure free Post surgery :D yeah so we'll asnwer your questions to the best of our abilities. I didnt get my hair shaved but an inch which is where the surgeon cut, and my hair grow back quick, noone can tell I had surgery. I have no speech, hearring or motor skills problems, intead my memory inproved post surgery. Give us more info...

laura
Thanks! So, my surgery will be for the Left temporal lobe. I have partial complex due to abuse when I was younger; sometimes I have grand mals. I have a similar scar on the right side but it is not yet causing seizures. I was taking two medications but got off Keppra because it was making everything worse. During my WADA test I couldn't speak at all with the left side and my vision got really bad. My doctor said they will wake me up during the surgery to test my speech; they do that to you, Jim? I usually heal really well so I hope it will go well but my surgery was origonally scheduled for after my college graduation in May. Last week they moved it up because my doctor is resigning (sp?)! I was told to ask off work and school for about eight weeks. So, now, I just am not prepared and it's a little overwhelming.
And Jim, that is funny that you shaved your head anyway!
[QUOTE=zachboy;3824590]I've had epilepsy since I was 3 after falling down a flight of stairs. My complex partial seizures could never be controlled with medication. I had 2 to 3 seizures per week until the neuorsurgery in 1990. I had right temporal lobe surgery performed at Tufts Medical Center in Boston. I'm 40 now and have not had a seizure in over a decade. Last one I had was when I forgot to take tegretol that morning. I still have epilepsy but the seizures are controlled with 1500mg of Keppra per day.
The nerosurgery had no effect on my brain function. I got a BSEE degree with a 3.8 GPA in 1994. The neurosurgery was life risking but was well worth it.:)[/QUOTE]

how does the Keppra affect you? Ive had two doses and feel drunk!
I wont be able to work taking this. Does it get better? If so, how ling does it take?





All times are GMT -7. The time now is 02:36 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!