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... My husband's DR is in the process of switching him from Dylantin and Depakote to Keppra. He has been on the old medication for years and is only switching because his hand tremors and getting very bad. ... (2 replies)
... My son is 13 and a half, mild Cerebral Palsy, and just began having seizures. The first was about 7 weeks ago, and his second was today. They did CT scans both times, normal. Blood work both times was normal. Because he had the second one, they put him on dylantin. I am not sure if I agree with this or not. What are the expected side effects, what is the "average"... (2 replies)
... just a few days ago I was switched from dylantin to depakote due to an allergic reaction on dylantin. I was off of dylantin for over a week before i started depakote. ... (1 replies)

Dilantin
Mar 12, 2008
... I have epilepsy and so does my uncle, however we take different meds due to different types of seizures. My uncle take Dylantin and had grand mals. He has been on it about 30 years now. Usually when you are diagnoses as an adult, you have seizures for life. ... (3 replies)
... I have been taking Epilim for nearly 2 years and has left me with hand tremor. My doctor prescribed me to change over to Primidone (Mysoline). Obviously i have to ween off the Epilim onto the Primidone. I have suffered from one seizure this week for the first time in over a year and I feel very groggy. Ever since my last seizure I have this constant high pitch tinging sound in... (2 replies)
... I think I would get another opinion before switching since he has been seizure free for so long. Why mess with success? Good luck. (2 replies)
... Hey, I'm just wondering if anyone out there has seizures like me. I haven't been diagnosed as Epileptic. When I had my first one back in 2002, they ran all the tests (MRI, CTscan, and the one with the electrodes they place on your head and put you in a dark room, sorry I can't remember the name of it now). They couldn't find anything unusual so they told me sometimes people... (3 replies)
... I'm new here (but I've been on the back board for a few months - back surgery!) and I want to know what you guys think. I've had seizures since I was 8. Petit-mal, I would usually wake up between 7 and 10 am with an aura, then have my seizure. When I was a teenager, I would usually throw-up and be sick and groggy all day, but as I got into my 20's the after-symptons... (4 replies)
Roll call time
Oct 28, 2003
... name- Jessie age-22 how long have you had epilepsy- since i was 15 meds- not currently taking any but i have been on carbamazapine,depakote,dylantin,trileptol,keppra,zonegran,gabitral,neurontin,topamax,mysoline,and diamox children with E-no (29 replies)
Epilepsy
Oct 14, 2003
... e that someone else is also getting the "battery" taste. She thought she was nuts or something and never wanted to tell anyone about it. Anyway, she also is on Dylantin and Pnenabarbitol, and says that the taste is her sign that she is going to have "one of those days" and knows not to leave the house. ... (10 replies)
... hi amy i know how you feel i have been on depakote ,dylantin,Carbamazepine,trileptol,keppra,zonegran,gabitral,neurontin,topamax,diamox,and mysoline.and none of them worked or i had really bad side effects i know it really sucks when you are trying all these different meds and nothing works.myself i am out of medication options i have tried everythign available to me and... (12 replies)
... thats right jb since january 8,1997 i have been on depakote ,dylantin,Carbamazepine,trileptol,keppra,zonegran,gabitral,neurontin,topamax,diamox,and mysoline.i think that is all of them so now im at this point that i dont know what to do and neither does my epileptologist(sp) i am a 22 year old mother of 3 smal children and i intend to see my kids grow up but i am running out... (12 replies)
... ITS SIDE EFFECTS. MY HUSBAND WAS RECENTLY SWITCHED FROM DYLANTIN TO KEPPRA. MY HUSBAND IS 35 YEARS OLD SUFFERING FROM UNDIAGNOSED MULTIPLE BRAIN LESIONS. ... (15 replies)
... hi kittymom i have had 2 of the eegs like you are talking about i was in the hospital for 5 days each time but with mine i had a video camera watching me the whole time so they could see what my body does while i am having a seizure i guess it is suppose to help them with pinpointing where my seizures are coming from but both times i was in i didnt have any seizures and they... (9 replies)
... The 1st med I tried was dylantin which made me break out in a big rash all over my body for a few days untill it got it out of my system. Then I tried depakote, which for about 1. ... (11 replies)
... Hi. I've been having these strange sensations in my head that are so strong I feel like someone has pushed me. Like I'm gonna fall over or out of my chair. I frequently feel I have to hold on to anything/one solid to feel safe(just had one). My symptoms vary. They include tingling, muscle spasm like with sharp stabbing pains, spacey-disorientation, sudden episodes of not... (2 replies)
... I was on Dylantin and had to get off it because I became toxic. ... (1 replies)
... Hi. My son has an unusual condition that has some similarities. He had a stroke at birth, and subsequently lost about 50% of the "useful" brain - we were told that if he lived he would be retarded and paralyzed. Well, he is now 13 and a half. He is a "normal" kid in almost every sense of the word, except he has mild Cerebral Palsy and a VP-shunt in his brain. Seven weeks... (5 replies)




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