... Hi... I'm new to this healthboard. I'm active on another site as a caregiver for my daughter, who was diagnosed with epilepsy in 2011. She is 25 and was misdiagnosed and was probably having blank absent seizures for years. ... (1 replies)
... My son has recently been diagnosed with epilepsy based on symptoms, has autism, cystic fibrosis and tremors. He is having complex partial partial seizures based on symptoms. ... (1 replies)
... The only pattern I've noticed with the episodes is that they are usually in the morning when I'm waking up. One doctor thought I might be hyperventilating in my sleep and having episodes of respiratory alkalosis, though changing my breathing patterns during one of the episodes did nothing to help stop it.
I'll ask my doctor next time I see her and see what she says. The... (2 replies)
... It wouldn't hurt to see an epileptologist or neurologist and see what they say. It could exclude epilepsy.
A dose of 600mg/day of Neurontin is *way* below the dosage they would use for epilepsy. I'm on it to treat nerve pain and only taking 1800/day. Even that level would be considered low if a patient was on it for seizures.
Have you figured if anything else could be... (2 replies)
... I don't know if what I have is epilepsy/seizures or not.
It started when I was in 3rd grade or so and I'm now almost 29. I don't think I got any warning or aura then. I apparently passed out and when I came out of it, I had difficulty knowing which way was up and had to wait a couple minutes before I could stand up again. It would completely exhaust me and I would... (2 replies)
... Is there any swelling at the base of your head, behind the ears, top center of the head? I was recently diagnosed with a form of encephalopathy. Your symptoms are almost identical to the way mine were in the beginning. As for seizures? Unless you have a seizure during eeg it is almost impossible to diagnose. I saw numerous doctors re. your symptoms and no one found... (1 replies)
... I also have juvenile myclonic epilepsy, and I also take keppra. When I was first diagnosed two years ago I felt a bit off after I had my first gramole seziure, I still have partial seziures everyday and if I have a lot of them then I start to feel kind of loopy and I forget what I'm talking about mid sentence. It's really annoying but I am not good at remembering to take my... (2 replies)
... Hi new too this forum was diagnosed with juvenile myclonic epilepsy I suffer from tonic clonic seizures usually 2-4 at a time been put on keppra since my last seizures 3 weeks ago which was 4 seizures 2 at home and 2 in hospital had too get adreline during 4th seizure I've noticed I've been suffering from short term memory loss have too write everything down or text my fiance... (2 replies)
... Sounds sort of how I felt when I said yes to surgery over 3 years ago. Options had pretty much been used up at that point.
Are they looking at other medicine options, or possibly surgery/implant?
The Neuropace only recently was given approval from FDA for use in epilepsy.. Different than the other implants (VNS/DBS) that go off in programmed cycle, the RNS NeuroPace is... (2 replies)
... Hello All,
My son was recently diagnosed with abdominal epilepsy. We are planning on treating this with neurofeedback which I understand is very effective. I am looking for others who have this condition and can offer feedback.
Lisa (0 replies)
... I have been diagnosed with temporal lobe epilepsy by the Mayo Clinic. I am not having a lot of luck finding a medication to control my seizures. ... (0 replies)
... Hi there everyone I'm in a place safe. I've been here before where they keep track of all your epilepsy seizures. Your on camera etc. I've been threw this so many times its to the point where nothing can be done. All meds used brain surgery done. Now what. ... (2 replies)
... I have had epilepsy since I was 14 and am now way over the hill. ... (5 replies)
... ...with loss of consciousness?
what is "Patial Epilepsy?" is that like ordering a steak Medium Rare as opposed to Well Done?" (3 replies)
... I, in no way, know or have self diagnosed her as having epilepsy. I have used a lot of epilepsy sites to help myself understand what might be going on, and to make sure I know what I am doing to help her is right. ... (12 replies)
... Hello AlChelle,
What you describe, sounds like a small seizure, BUT, I am not in a position to say "your daughter has epilepsy". The brain is a complicated thing and sometimes these disturbances in our consciousness and our body's autonomous function, are the symptom and not the cause. I understand your concern and potential frustration if they do not find anything. (How... (12 replies)
Sorry no one has answered your question yet. I should come here more than I do. To answer your questions,
1. It is unusual for seizures to recur in clusters like you described and to be unconscious for so long. It is dangerous to have several seizures within a few minutes of each other. There's something called status epilepticus where someone has a seizure for over 3... (1 replies)
... after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. ... (1 replies)
... Hi Welderguy,
I'm glad your daughter is doing a bit better. The drowsiness should taper a bit as she gets used to the meds. It can take a few months. The headaches could be related. When my seizure stopped (on meds), I developed migraines and for me, it's all intertwined. I also inherited headaches since my mother had them for years when I was young. For me, I assume the... (12 replies)
... but they seem to be slowly tapering off. No more "black out" episodes, but she still gets headaches almost daily. I'm not sure if they are related to the epilepsy or not. ... (12 replies)