... Sounds sort of how I felt when I said yes to surgery over 3 years ago. Options had pretty much been used up at that point.
Are they looking at other medicine options, or possibly surgery/implant?
The Neuropace only recently was given approval from FDA for use in epilepsy.. Different than the other implants (VNS/DBS) that go off in programmed cycle, the RNS NeuroPace is... (2 replies)
... Keppra for the most part works good. It's a common starting medication for seizures/epilepsy today. I guess first question that comes to mind is the neuro just a general neurologist or does it seem he/she has good knowledge relating to epilepsy?
From what you are saying it sounds like simple partial to absence seizures. It sounds like he doesn't lose consciousness, but... (2 replies)
... Hello All,
My son was recently diagnosed with abdominal epilepsy. We are planning on treating this with neurofeedback which I understand is very effective. I am looking for others who have this condition and can offer feedback.
Lisa (0 replies)
... I have been diagnosed with temporal lobe epilepsy by the Mayo Clinic. I am not having a lot of luck finding a medication to control my seizures. ... (0 replies)
... Hi there everyone I'm in a place safe. I've been here before where they keep track of all your epilepsy seizures. Your on camera etc. I've been threw this so many times its to the point where nothing can be done. All meds used brain surgery done. Now what. ... (2 replies)
... It's definitely not a dead end street. My fiance was having several seizures a day, and finally, the neurologist found a combo of drugs that has helped him immensely. Fycompa was the most recent that has helped him a lot.
BUT, the one thing that I think has helped with the stress, and the actual seizures is cannabis. It might be something to look into. Best of luck! (2 replies)
... Hi Everyone! I was diagnosed with Temporal Lobe Epilepsy roughly 7 years ago and was put on Tegretol, (200mg, twice a day). I have only ever had one grand mal seizure, but I've had "auras" off and on for during those years. However, I have not had an aura in a little over a year.
I've recently talked to a Neurologist (not the same one who diagnosed me...he is no longer in... (4 replies)
Sorry, I don't have any answers for you. I have epilepsy, but haven't had surgery for it. My first seizure was a kind of black out. I lost 2 hours of time. I complained of a headache at the beginning of a gym class when I was 8 and then two hours later I was outside my classroom and the teacher wanted to know what I was doing there. I had no idea. I must have been on... (1 replies)
... Ok I've had epilepsy my whole life. I've had brain surgery my seizures now are like blackouts. People say I mumble my words and my left side shakes. ... (1 replies)
... I was started having seizures at 20, every seizure except 1 has been in my sleep, ive had all the nessesary testing, mri, eeg, ecg, all of those came back clear, and thats left me feeling confused as to why suddenly this occured and no explaination can be found, ive researched so much with no answers and ive read many doctors dont know the reasons behind some peoples epilepsy,... (0 replies)
... I have had epilepsy since I was 14 and am now way over the hill. ... (5 replies)
... ...with loss of consciousness?
what is "Patial Epilepsy?" is that like ordering a steak Medium Rare as opposed to Well Done?" (3 replies)
... I, in no way, know or have self diagnosed her as having epilepsy. I have used a lot of epilepsy sites to help myself understand what might be going on, and to make sure I know what I am doing to help her is right. ... (12 replies)
... Hello AlChelle,
What you describe, sounds like a small seizure, BUT, I am not in a position to say "your daughter has epilepsy". The brain is a complicated thing and sometimes these disturbances in our consciousness and our body's autonomous function, are the symptom and not the cause. I understand your concern and potential frustration if they do not find anything. (How... (12 replies)
Sorry no one has answered your question yet. I should come here more than I do. To answer your questions,
1. It is unusual for seizures to recur in clusters like you described and to be unconscious for so long. It is dangerous to have several seizures within a few minutes of each other. There's something called status epilepticus where someone has a seizure for over 3... (1 replies)
... after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. ... (1 replies)
... Hi Welderguy,
I'm glad your daughter is doing a bit better. The drowsiness should taper a bit as she gets used to the meds. It can take a few months. The headaches could be related. When my seizure stopped (on meds), I developed migraines and for me, it's all intertwined. I also inherited headaches since my mother had them for years when I was young. For me, I assume the... (12 replies)
... but they seem to be slowly tapering off. No more "black out" episodes, but she still gets headaches almost daily. I'm not sure if they are related to the epilepsy or not. ... (12 replies)
... I live in CT and have Epilepsy and doctors here are required by law to report their patients with epilepsy to the DMV. I had to go to my doctor for him to fill out a DMV form every 6 months about my condition and if anything had changed. ... (12 replies)
... Hi there,
Sorry to hear about your daughter. I know it's scary for the both of you. There's questions about the future, the immediate now, what it means for her health, her peer network, the whole thing.
EEG results can vary.
Seizures can improve, or worsen. I'm being honest. The reality is the sooner she finds the best treatment that works for her, the better.... (12 replies)