I've been suffering from severe myclonic jerks for three years. They happen at the onset of sleep and go on all night. They are accompanied by a flash of light sometimes or a poping or clicking noise. They happen all night over and over again so I rarely sleep. Does anyone have any experience with this? No doctor will listen to me! (0 replies)
... My son has epilepsy and so I have to give him 4 medicines twice a day. I've tried everything!! ... (3 replies)
... Hi there was on vimpat a few years ago kind of worked kind of didn't. My question today is im on a 100mg tablet in morning only. My seizures have kind of stopped just a warning but very very mild which is great. Now my girlfriend and friends have said my moods are up and down. They say we say something to you and the raise of your voice they said not like your starting to... (0 replies)
... Hi there I've had epilepsy all my life petite seizures all my life got them under control now it's grandmals what warnings do you get. ... (0 replies)
... I also want to add, to see an Epileptologist.
An EEG read by the wrong doctor can say anything. And considering your son has headaches, tics, and an Abnormal EEG - it's important to get a correct diagnosis.
And FWIW, headaches/migraines go hand in hand with Epilepsy. (4 replies)
... Stay positive. I am sorry that this has taken form in your life. There are people that want to help improve your life. That's good that you are not on meds. Do you have a healthy diet? I am huge into health and love talking to people. What is the cause of epilepsy? I honestly do not know a thing
Be well (3 replies)
... Hi there I have had epilepsy all my life. Been threw brain surgery but still get the seizures but worse now. I use to have the the petite ones. ... (3 replies)
... Sounds sort of how I felt when I said yes to surgery over 3 years ago. Options had pretty much been used up at that point.
Are they looking at other medicine options, or possibly surgery/implant?
The Neuropace only recently was given approval from FDA for use in epilepsy.. Different than the other implants (VNS/DBS) that go off in programmed cycle, the RNS NeuroPace is... (2 replies)
... Hello All,
My son was recently diagnosed with abdominal epilepsy. We are planning on treating this with neurofeedback which I understand is very effective. I am looking for others who have this condition and can offer feedback.
Lisa (0 replies)
... I have been diagnosed with temporal lobe epilepsy by the Mayo Clinic. I am not having a lot of luck finding a medication to control my seizures. ... (0 replies)
... Keppra for the most part works good. It's a common starting medication for seizures/epilepsy today. I guess first question that comes to mind is the neuro just a general neurologist or does it seem he/she has good knowledge relating to epilepsy?
From what you are saying it sounds like simple partial to absence seizures. It sounds like he doesn't lose consciousness, but... (4 replies)
... It's definitely not a dead end street. My fiance was having several seizures a day, and finally, the neurologist found a combo of drugs that has helped him immensely. Fycompa was the most recent that has helped him a lot.
BUT, the one thing that I think has helped with the stress, and the actual seizures is cannabis. It might be something to look into. Best of luck! (2 replies)
... Hi there everyone I'm in a place safe. I've been here before where they keep track of all your epilepsy seizures. Your on camera etc. I've been threw this so many times its to the point where nothing can be done. All meds used brain surgery done. Now what. ... (2 replies)
... I have had epilepsy since I was 14 and am now way over the hill. ... (5 replies)
... ...with loss of consciousness?
what is "Patial Epilepsy?" is that like ordering a steak Medium Rare as opposed to Well Done?" (3 replies)
... I, in no way, know or have self diagnosed her as having epilepsy. I have used a lot of epilepsy sites to help myself understand what might be going on, and to make sure I know what I am doing to help her is right. ... (12 replies)
... Hello AlChelle,
What you describe, sounds like a small seizure, BUT, I am not in a position to say "your daughter has epilepsy". The brain is a complicated thing and sometimes these disturbances in our consciousness and our body's autonomous function, are the symptom and not the cause. I understand your concern and potential frustration if they do not find anything. (How... (12 replies)
Sorry no one has answered your question yet. I should come here more than I do. To answer your questions,
1. It is unusual for seizures to recur in clusters like you described and to be unconscious for so long. It is dangerous to have several seizures within a few minutes of each other. There's something called status epilepticus where someone has a seizure for over 3... (1 replies)
... after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. ... (1 replies)
... Hi Welderguy,
I'm glad your daughter is doing a bit better. The drowsiness should taper a bit as she gets used to the meds. It can take a few months. The headaches could be related. When my seizure stopped (on meds), I developed migraines and for me, it's all intertwined. I also inherited headaches since my mother had them for years when I was young. For me, I assume the... (12 replies)