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Epilepsy Board Index
Board Index > Epilepsy | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
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... I had some issues with Trileptal because of my dose. They had me on MAX dose (whatever that is, 2400/day) originally 2x/day. I had issues with that and consulted my doctor and he approved of me adjusting it to TID (sorry, 3x/day) to spread out the dose and not have the reactions to the medication peaking (peak is when it reached max serum in the body). The symptoms when at... (12 replies)
... I, in no way, know or have self diagnosed her as having epilepsy. I have used a lot of epilepsy sites to help myself understand what might be going on, and to make sure I know what I am doing to help her is right. ... (12 replies)
... Hello AlChelle, What you describe, sounds like a small seizure, BUT, I am not in a position to say "your daughter has epilepsy". The brain is a complicated thing and sometimes these disturbances in our consciousness and our body's autonomous function, are the symptom and not the cause. I understand your concern and potential frustration if they do not find anything. (How... (12 replies)

... Though my daughter has had epilepsy for years and has been to the ER many times, this is my first time looking for info on a message board. ... (1 replies)
... No one wants anything to be wrong with their child. But having valid answers for what is happening is the tool to help empower one to fight back, or treat the underlying condition. I am guessing it will take a few days before you hear back about the EEG results. Wishing you and your daughter the best. (12 replies)
... Hello, I am new the the board and this post alone as helped me a ton. My daughter started getting really severe headaches last year that lasted all day every day. She was having numbness and tingling and just awful pain with them. Finally we got her to a Neurologist and he started treating her for migraines. Just before we saw him she started having dizzy spells. We... (12 replies)
... Anything you can say will be helpful. I have epilepsy myself but this is the first time I've ever had to help someone take care of their seizures I've always been the one being taken care of. ... (1 replies)
Keppra paranoia
Sep 23, 2014
... Hi All, Essentially, I have the BEST partner in the world. He is the most kind, caring, sweet, selfless person I know. He has tonic-clonic seizures, nasty ones. He has broken his nose countless times, chipped his teeth, hit his head, bit his tongue... everything. They cannot pinpoint the location of the seizures, and in February- May of 2013, he went from having three... (0 replies)
... Hello, Sorry no one has answered your question yet. I should come here more than I do. To answer your questions, 1. It is unusual for seizures to recur in clusters like you described and to be unconscious for so long. It is dangerous to have several seizures within a few minutes of each other. There's something called status epilepticus where someone has a seizure for over 3... (1 replies)
... When treating epilepsy with it is it genuinely taken with medication OR can it be taken on its own ? ... (0 replies)
... after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. ... (1 replies)
Need answers...
Sep 13, 2014
... ant my keppra changing as it is controlling the grand mals I just want something additional to in hope that I will eventually have no symptoms at all. Catamenial epilepsy has never been suggested to me but I'm thinking now this may be what I have. Thanks again for the advice. ... (4 replies)
Need answers...
Sep 11, 2014
... Mits, I've experienced the same exact thing. My seizures are triggered by my hormones before and during my period. It has a name- catamenial epilepsy. You are having simple-partial seizures. My seizures are almost completely controlled, except I will have some breakthrough simple-partials when I have my period. Your doctor could try adjusting your meds. I'm on both Keppra and... (4 replies)
Need answers...
Sep 8, 2014
... where the trigger of your epilepsy is. That would be the first thing I would want to have known. ... (4 replies)
Need answers...
Sep 8, 2014
... I was diagnosed with epilepsy 6 years ago after having 2 grand mal seizures to which the cause was never found. ... (4 replies)
... I began to have seizures two years ago and was diagnosed with epilepsy last year. I had the VNS device inserted last year and it has helped, but I'm still having seizures. ... (0 replies)
... Hi Welderguy, I'm glad your daughter is doing a bit better. The drowsiness should taper a bit as she gets used to the meds. It can take a few months. The headaches could be related. When my seizure stopped (on meds), I developed migraines and for me, it's all intertwined. I also inherited headaches since my mother had them for years when I was young. For me, I assume the... (12 replies)
... but they seem to be slowly tapering off. No more "black out" episodes, but she still gets headaches almost daily. I'm not sure if they are related to the epilepsy or not. ... (12 replies)
... I live in CT and have Epilepsy and doctors here are required by law to report their patients with epilepsy to the DMV. I had to go to my doctor for him to fill out a DMV form every 6 months about my condition and if anything had changed. ... (12 replies)
... Hi there, Sorry to hear about your daughter. I know it's scary for the both of you. There's questions about the future, the immediate now, what it means for her health, her peer network, the whole thing. EEG results can vary. Seizures can improve, or worsen. I'm being honest. The reality is the sooner she finds the best treatment that works for her, the better.... (12 replies)

Associated Tags: eeg, epilepsy, keppra, relationships, seizures

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