... I had two episodes in 2012 where I felt like I had an outer body experience. I felt detached and felt like I was watching a distorted movie of myself.
I wanted to communicate but couldn't. English sound foreign to me.
Then one day I had a full on seizure. Tests, MRIs etc all done. Brain scans all Negative results. Dilantin prescribed. Finally off.
I had another episode... (0 replies)
Feeling a mixture of emotions at the moment. I'm 45 and recently had 2 seizures within 8 weeks, before that was 11 years ago and then first one when I was 21.
2 seizures were brought on by been in horrific pain, so bad that I remember thinking couldn't cope with the pain and then without warning I'm laid on the floor with my family around me who say I was shaking on the... (0 replies)
I am the mother of a 14 yo girl, who has had 6 seizures in the last one year. Couple were grand mal, others myoclonic.
One Dr says its partial epilepsy, 2 say its primary general idiopathic.
there have been 3 eeg's. one that helped the diagnosis initially, and after a year 2 recent ones.
the dr who did the eeg's and calls it the PGI type, says these disturbances are... (0 replies)
... I had a seizure on 9/18 an am eight months pregnant, I didn't want to but I got goated in to taking Keppra. I was almost 2 years seizure free with out any meds. I just had to make sure I took good care if myself and sleep the right hours. I was doing well, my old neurologist said that what caused my seizures to happen was lack I feel sleep and high stress. With in six months... (0 replies)
... My 3 year old son has absent episodes and epilepsy is being investigated. He has a severe speech delay and global delay and possible autism. ... (0 replies)
... I have seen a Neuro and had an EEG done, it came back normal. no doctor atm due to insurance, so I am here. not epileptic i guess. I am
19 years, started smoking at 14. Very heavy daily from start to current.
I have only had about 12 seizures, MOSTLY within the past 1.5 yrs, first seizure at 15 yrs old.. For one I have horrible anxiety, ad/d, stupid anger hourly basis I... (0 replies)
... I also have juvenile myclonic epilepsy, and I also take keppra. When I was first diagnosed two years ago I felt a bit off after I had my first gramole seziure, I still have partial seziures everyday and if I have a lot of them then I start to feel kind of loopy and I forget what I'm talking about mid sentence. It's really annoying but I am not good at remembering to take my... (2 replies)
... Hi new too this forum was diagnosed with juvenile myclonic epilepsy I suffer from tonic clonic seizures usually 2-4 at a time been put on keppra since my last seizures 3 weeks ago which was 4 seizures 2 at home and 2 in hospital had too get adreline during 4th seizure I've noticed I've been suffering from short term memory loss have too write everything down or text my fiance... (2 replies)
... Sounds sort of how I felt when I said yes to surgery over 3 years ago. Options had pretty much been used up at that point.
Are they looking at other medicine options, or possibly surgery/implant?
The Neuropace only recently was given approval from FDA for use in epilepsy.. Different than the other implants (VNS/DBS) that go off in programmed cycle, the RNS NeuroPace is... (2 replies)
... Hello All,
My son was recently diagnosed with abdominal epilepsy. We are planning on treating this with neurofeedback which I understand is very effective. I am looking for others who have this condition and can offer feedback.
Lisa (0 replies)
... I have been diagnosed with temporal lobe epilepsy by the Mayo Clinic. I am not having a lot of luck finding a medication to control my seizures. ... (0 replies)
... Hi there everyone I'm in a place safe. I've been here before where they keep track of all your epilepsy seizures. Your on camera etc. I've been threw this so many times its to the point where nothing can be done. All meds used brain surgery done. Now what. ... (2 replies)
... I have had epilepsy since I was 14 and am now way over the hill. ... (5 replies)
... ...with loss of consciousness?
what is "Patial Epilepsy?" is that like ordering a steak Medium Rare as opposed to Well Done?" (3 replies)
... I, in no way, know or have self diagnosed her as having epilepsy. I have used a lot of epilepsy sites to help myself understand what might be going on, and to make sure I know what I am doing to help her is right. ... (12 replies)
... Hello AlChelle,
What you describe, sounds like a small seizure, BUT, I am not in a position to say "your daughter has epilepsy". The brain is a complicated thing and sometimes these disturbances in our consciousness and our body's autonomous function, are the symptom and not the cause. I understand your concern and potential frustration if they do not find anything. (How... (12 replies)
Sorry no one has answered your question yet. I should come here more than I do. To answer your questions,
1. It is unusual for seizures to recur in clusters like you described and to be unconscious for so long. It is dangerous to have several seizures within a few minutes of each other. There's something called status epilepticus where someone has a seizure for over 3... (1 replies)
... after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. ... (1 replies)
... Hi Welderguy,
I'm glad your daughter is doing a bit better. The drowsiness should taper a bit as she gets used to the meds. It can take a few months. The headaches could be related. When my seizure stopped (on meds), I developed migraines and for me, it's all intertwined. I also inherited headaches since my mother had them for years when I was young. For me, I assume the... (12 replies)
... but they seem to be slowly tapering off. No more "black out" episodes, but she still gets headaches almost daily. I'm not sure if they are related to the epilepsy or not. ... (12 replies)