... Hi there my doc cut me off of all meds and then said I don't have seizures mind u I've been threw surgery
They do not know what causes mine (I was told when a teenager)
Hope you keep free of them as they are scary for us and onlookers!
I have been 4 years plus free but that's with pills. (5 replies)
... Hi there my doc cut me off of all meds and then said I don't have seizures mind u I've been threw surgery (5 replies)
... dn't know what was going on. I had a grandmal seizure which I don't get them at all. Just the mild ones. Has anyone been threw this where the Drs think there not epilepsy at all. I've been threw brain surgery and she still says you don't have seizures at all.the emergency could not beleve what she has said. ... (0 replies)
... I have had epilepsy since I was 14 and am now way over the hill. ... (5 replies)
... I had my first seizure at 14 months of age and officially diagnosed with epilepsy in early childhood. I have only been officially diagnosed with tonic clonic seizure, the last of which I had 11 years ago. ... (0 replies)
... OH!!! How they LOVE to try new drugs on us, but I wonder if they would be as :jester:willing to push them down their throats as quickly as ours. Our book should be a CORKER!! You stay well as well!!! (5 replies)
I was put on phenobarbitone when 14 all was okay. Then a new Doctor said try Epanutin as well ? I did as I was told and my gums began to shrink so not onlyhaving seizure, when I smiled I had a gap appearing in my lovely teeth.
So I stop the Epanutin tabs and they gave me Keppra !! They didn't help me just gave me a swollen ear ha ha.
Good job we can laugh... (5 replies)
... I back you 100%!!! Years ago, they started trying different medications on me because they wanted to totally control me. All they did was drug me and make me a zombie. After three and a half years, the neuro told me he did not know what he was going to do with me because everything had been tried. I looked at him and said, "You are going to put me on the medication I was on... (5 replies)
... ...with loss of consciousness?
what is "Patial Epilepsy?" is that like ordering a steak Medium Rare as opposed to Well Done?" (3 replies)
... I, in no way, know or have self diagnosed her as having epilepsy. I have used a lot of epilepsy sites to help myself understand what might be going on, and to make sure I know what I am doing to help her is right. ... (12 replies)
... Hello AlChelle,
What you describe, sounds like a small seizure, BUT, I am not in a position to say "your daughter has epilepsy". The brain is a complicated thing and sometimes these disturbances in our consciousness and our body's autonomous function, are the symptom and not the cause. I understand your concern and potential frustration if they do not find anything. (How... (12 replies)
... could mean "partial seizures"- which means seizures without loss of consciousness. On the other hand, "partial complex seizures" means with loss of consciousness.
Partial because it only affects one hemisphere of the brain. (3 replies)
... When seizures appear to result from abnormal activity in just one area of your brain, they're called focal (partial) seizures. (3 replies)
... I'm thinking it might mean focal seizures...but you'd have to clarify that with the doctor.
--Travis (3 replies)
... I had some issues with Trileptal because of my dose. They had me on MAX dose (whatever that is, 2400/day) originally 2x/day. I had issues with that and consulted my doctor and he approved of me adjusting it to TID (sorry, 3x/day) to spread out the dose and not have the reactions to the medication peaking (peak is when it reached max serum in the body). The symptoms when at... (12 replies)
... Though my daughter has had epilepsy for years and has been to the ER many times, this is my first time looking for info on a message board. ... (1 replies)
... No one wants anything to be wrong with their child. But having valid answers for what is happening is the tool to help empower one to fight back, or treat the underlying condition. I am guessing it will take a few days before you hear back about the EEG results. Wishing you and your daughter the best. (12 replies)
... Hello, I am new the the board and this post alone as helped me a ton. My daughter started getting really severe headaches last year that lasted all day every day. She was having numbness and tingling and just awful pain with them. Finally we got her to a Neurologist and he started treating her for migraines. Just before we saw him she started having dizzy spells. We... (12 replies)
... Anything you can say will be helpful. I have epilepsy myself but this is the first time I've ever had to help someone take care of their seizures I've always been the one being taken care of. ... (1 replies)
... Hi All,
Essentially, I have the BEST partner in the world. He is the most kind, caring, sweet, selfless person I know. He has tonic-clonic seizures, nasty ones. He has broken his nose countless times, chipped his teeth, hit his head, bit his tongue... everything.
They cannot pinpoint the location of the seizures, and in February- May of 2013, he went from having three... (0 replies)