... Are you in the UK receiving services from the NIH? Just curious. If you're going through a public system, many doctors and specialists can be quick as a fiddle. The last time I saw a neurologist was oh, about 10 years ago and was seeking to come off my meds to see if I still had epilepsy, but I had to taper off and was seeking a stabilizing support drug so I didn't... (3 replies)
... Hello! I have temporal lobe epilepsy. My seizures are very small and last 5-7 seconds and I will just appear confused. I normally have some weird vision auras and panic auras to let me know the seizures are coming. However, once I have the seizure, the anxiety and waves of panic that follow for the next few days are worse. The morning is the toughest time and in general it's... (0 replies)
... I have had epilepsy since I was 14 and am now way over the hill. ... (5 replies)
... Hi there my doc cut me off of all meds and then said I don't have seizures mind u I've been threw surgery
They do not know what causes mine (I was told when a teenager)
Hope you keep free of them as they are scary for us and onlookers!
I have been 4 years plus free but that's with pills. (5 replies)
... Hi there my doc cut me off of all meds and then said I don't have seizures mind u I've been threw surgery (5 replies)
... dn't know what was going on. I had a grandmal seizure which I don't get them at all. Just the mild ones. Has anyone been threw this where the Drs think there not epilepsy at all. I've been threw brain surgery and she still says you don't have seizures at all.the emergency could not beleve what she has said. ... (0 replies)
... I had my first seizure at 14 months of age and officially diagnosed with epilepsy in early childhood. I have only been officially diagnosed with tonic clonic seizure, the last of which I had 11 years ago. ... (0 replies)
... OH!!! How they LOVE to try new drugs on us, but I wonder if they would be as :jester:willing to push them down their throats as quickly as ours. Our book should be a CORKER!! You stay well as well!!! (5 replies)
I was put on phenobarbitone when 14 all was okay. Then a new Doctor said try Epanutin as well ? I did as I was told and my gums began to shrink so not onlyhaving seizure, when I smiled I had a gap appearing in my lovely teeth.
So I stop the Epanutin tabs and they gave me Keppra !! They didn't help me just gave me a swollen ear ha ha.
Good job we can laugh... (5 replies)
... I back you 100%!!! Years ago, they started trying different medications on me because they wanted to totally control me. All they did was drug me and make me a zombie. After three and a half years, the neuro told me he did not know what he was going to do with me because everything had been tried. I looked at him and said, "You are going to put me on the medication I was on... (5 replies)
... could mean "partial seizures"- which means seizures without loss of consciousness. On the other hand, "partial complex seizures" means with loss of consciousness.
Partial because it only affects one hemisphere of the brain. (3 replies)
... ...with loss of consciousness?
what is "Patial Epilepsy?" is that like ordering a steak Medium Rare as opposed to Well Done?" (3 replies)
... I, in no way, know or have self diagnosed her as having epilepsy. I have used a lot of epilepsy sites to help myself understand what might be going on, and to make sure I know what I am doing to help her is right. ... (12 replies)
... Hello AlChelle,
What you describe, sounds like a small seizure, BUT, I am not in a position to say "your daughter has epilepsy". The brain is a complicated thing and sometimes these disturbances in our consciousness and our body's autonomous function, are the symptom and not the cause. I understand your concern and potential frustration if they do not find anything. (How... (12 replies)
Sorry no one has answered your question yet. I should come here more than I do. To answer your questions,
1. It is unusual for seizures to recur in clusters like you described and to be unconscious for so long. It is dangerous to have several seizures within a few minutes of each other. There's something called status epilepticus where someone has a seizure for over 3... (1 replies)
... When treating epilepsy with it is it genuinely taken with medication OR can it be taken on its own ? ... (0 replies)
... after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. ... (1 replies)
... Hi Welderguy,
I'm glad your daughter is doing a bit better. The drowsiness should taper a bit as she gets used to the meds. It can take a few months. The headaches could be related. When my seizure stopped (on meds), I developed migraines and for me, it's all intertwined. I also inherited headaches since my mother had them for years when I was young. For me, I assume the... (12 replies)
... but they seem to be slowly tapering off. No more "black out" episodes, but she still gets headaches almost daily. I'm not sure if they are related to the epilepsy or not. ... (12 replies)
... I live in CT and have Epilepsy and doctors here are required by law to report their patients with epilepsy to the DMV. I had to go to my doctor for him to fill out a DMV form every 6 months about my condition and if anything had changed. ... (12 replies)