... Let me just start by saying after early November I won't have medical, so any treatment to whatever I have will probably (sadly) stop after that.
I am currently 22 years old, and this started when I was about 10 or 11. My dad asked me to grab him scissors for this thing he was working on, and on my way back to him I lost my sight like tunnel vision, the sounds around me... (0 replies)
... Hi Jane,
I have epilepsy. I am sorry to hear what you are going to. My seizures did return after decades of being seizure free so it is possible I'm sorry to say.
However, one things to consider: It sounds like you know your body and these sensations are like the ones you had back when you were having seizures. All the same have your general doc screen you for vertigo.... (1 replies)
... I'm a student with epilepsy excited to participating in this Forum! I look forward to coming together with people with epilepsy so we can support each other. ... (0 replies)
... I also have juvenile myclonic epilepsy, and I also take keppra. When I was first diagnosed two years ago I felt a bit off after I had my first gramole seziure, I still have partial seziures everyday and if I have a lot of them then I start to feel kind of loopy and I forget what I'm talking about mid sentence. It's really annoying but I am not good at remembering to take my... (2 replies)
... Hi new too this forum was diagnosed with juvenile myclonic epilepsy I suffer from tonic clonic seizures usually 2-4 at a time been put on keppra since my last seizures 3 weeks ago which was 4 seizures 2 at home and 2 in hospital had too get adreline during 4th seizure I've noticed I've been suffering from short term memory loss have too write everything down or text my fiance... (2 replies)
... Sounds sort of how I felt when I said yes to surgery over 3 years ago. Options had pretty much been used up at that point.
Are they looking at other medicine options, or possibly surgery/implant?
The Neuropace only recently was given approval from FDA for use in epilepsy.. Different than the other implants (VNS/DBS) that go off in programmed cycle, the RNS NeuroPace is... (2 replies)
... Hello All,
My son was recently diagnosed with abdominal epilepsy. We are planning on treating this with neurofeedback which I understand is very effective. I am looking for others who have this condition and can offer feedback.
Lisa (0 replies)
... I have been diagnosed with temporal lobe epilepsy by the Mayo Clinic. I am not having a lot of luck finding a medication to control my seizures. ... (0 replies)
... Hi there everyone I'm in a place safe. I've been here before where they keep track of all your epilepsy seizures. Your on camera etc. I've been threw this so many times its to the point where nothing can be done. All meds used brain surgery done. Now what. ... (2 replies)
... I have had epilepsy since I was 14 and am now way over the hill. ... (5 replies)
... ...with loss of consciousness?
what is "Patial Epilepsy?" is that like ordering a steak Medium Rare as opposed to Well Done?" (3 replies)
... I, in no way, know or have self diagnosed her as having epilepsy. I have used a lot of epilepsy sites to help myself understand what might be going on, and to make sure I know what I am doing to help her is right. ... (12 replies)
... Hello AlChelle,
What you describe, sounds like a small seizure, BUT, I am not in a position to say "your daughter has epilepsy". The brain is a complicated thing and sometimes these disturbances in our consciousness and our body's autonomous function, are the symptom and not the cause. I understand your concern and potential frustration if they do not find anything. (How... (12 replies)
Sorry no one has answered your question yet. I should come here more than I do. To answer your questions,
1. It is unusual for seizures to recur in clusters like you described and to be unconscious for so long. It is dangerous to have several seizures within a few minutes of each other. There's something called status epilepticus where someone has a seizure for over 3... (1 replies)
... after researching and watching her behavior I am pretty convinced that her disorder is called Catamenial Epilepsy and is related to hormonal imbalance. ... (1 replies)
... Hi Welderguy,
I'm glad your daughter is doing a bit better. The drowsiness should taper a bit as she gets used to the meds. It can take a few months. The headaches could be related. When my seizure stopped (on meds), I developed migraines and for me, it's all intertwined. I also inherited headaches since my mother had them for years when I was young. For me, I assume the... (12 replies)
... but they seem to be slowly tapering off. No more "black out" episodes, but she still gets headaches almost daily. I'm not sure if they are related to the epilepsy or not. ... (12 replies)
... I live in CT and have Epilepsy and doctors here are required by law to report their patients with epilepsy to the DMV. I had to go to my doctor for him to fill out a DMV form every 6 months about my condition and if anything had changed. ... (12 replies)
... Hi there,
Sorry to hear about your daughter. I know it's scary for the both of you. There's questions about the future, the immediate now, what it means for her health, her peer network, the whole thing.
EEG results can vary.
Seizures can improve, or worsen. I'm being honest. The reality is the sooner she finds the best treatment that works for her, the better.... (12 replies)
... Hey...epilepsy is curable disease. I had this when i was 12 yrs old. I was taken to neurologists and he prescribed me medicines which i took for 3 alright . Well meanwhile this 3 years i used to get minor attacks for 4-5 seconds atleast 10 times... (12 replies)