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Pages: 1 Showing 1 - 20 of 25 for posterior reversible encephalopathy syndrome pres. (0.006 seconds)


... Hi i was diagnosed with pres syndrome 3 years ago, after having my daughter ,she was 6 days old, i got a terrible headache and went to the hospital where they life flighted me to pittsburgh. ... (23 replies)
... After my son was born I developed a condition called Posterior Reversible Encephalopathy Syndrome (PRES) which caused a gran mal seizure and swelling of my brain. Thankfully this is a temporary condition and I have made a 100% recovery. I should be free from seizures unless I have a drastic change in blood pressure or pregnancy. It took about 8 months to recover. It has... (23 replies)
... But, like some of you, I too am the only case of PRES that my doctor has treated. ... (23 replies)

... sure I had MS. So it was a huge relief when I went for a second opinion and the doctor seemed pretty confident that I had Pres Syndrome. Now I am just wondering if there is anything I should be watching out for as far as a relapse or anything. Is this still in my system? ... (23 replies)
... the patient is only 6 years old , it is devastating...for the first two days, the docs were ruling out other possible causes until they had nothing else left but PRES , after three days we noticed that she was totally blind, slowly she was able to talk and get a little better..but she was horrified to open her eyes... ... (23 replies)
... cured". This is not true. It has been almost three years for me and I still have changes in how my mind works. I did not even have the complications like most PRES patients have experienced along with the condition. Do not be discouraged! ... (23 replies)
... As far as what you can do regarding your partner's PRES, not much other than be very supportive and encourage her that she will get better. I know that PRES is a very funny animal, and all cases are different, but support, kindness and patience is always a postive medicine. ... (23 replies)
... this is a scary and fustrating experience! Sounds like you have other medical conditions that only add to the fustration of PRES. From what I understand, PRES will only reoccur if the precipitating factor happens agian - for me it would be pregnancy, for you maybe gallbladder issues. However, the key is that now you know about it. If I get pregnant agian, we know to keep a... (23 replies)
... Hi Margaret, I too developed PRES during my last pregnancy, I ahd a seizure 7 days after the birth of my son. ... (23 replies)
... on I already knew. At least now I know there is one other person out there having similar concerns. Wish there was a chat room for people that have experienced PRES to share these issues. I think the condition is so rare that there is not much really known about the lasting effects. ... (23 replies)
... Paul, this is good news, as they are probably not the best to be treating her.This is a very rare and difficult encephalopathy, and you don't know how lucky you are that someone even diagosed her correctly! Many don't. But, as soon as you get her situated, let us know ok? The prayers are working! She will get better faster with folks that know how to treat this. stay strong,... (23 replies)
... hi shwazn my partnet got pres 7 weeks ago and i now its hard to find info on this but i have to say the girls on here willl tell u a lot more as they have been there and come out the other side. one thing i do now that it can be a very slow recovery as im parten still has very little movment fron the neck down and finds it very hard to talk but she is getting there so just ask... (23 replies)
... at happens. I laughed at myself, as I found it did me no good at all to cry. Don't get me wrong, I cried a lot, but finally decided to fight back and not let the PRES beat me or my husband. Please keep us posted, and will still be praying for you both. Stay strong Paul... ... (23 replies)
... e. Help be her advocate with the doctors and keep her motivated. It is a fustrating and slow recovery process but it will happen. It has been 3 years since my PRES and it took a good year to really be back to normal. Sounds like your partner experienced major swelling which will take awhile for the brain to heal. ... (23 replies)
... I'm glad you are feeling better now. I was also the only person that had PRES that my doctor ever treated. He seemed to just want to put me on a bunch of medication. ... (23 replies)
... do for a person's mood! I shared that I had found others with the same lasting memory issues as mine. He is a great doctor but he admits I am the only case of PRES he has ever known about. ... (23 replies)
... Hello all, I have been reading previous threads about this disease for the last two years now....ever since I was diagnosed with this right after the birth of my son. We all have our stories and or problems....I think it would be very beneficial if we started a support group so we can lean on eachother. We understand what each one its going through. I have found out some new... (0 replies)
... So sorry to hear about your sister, and having the added stress of being in a foriegn country is horrible. However, even in America, with English speaking doctors and patients, this disease can go undiagnosed, maltreated, and improperly treated. She will rely on you for support and to help her do the things she cannot. But, don't be surprised if she is not herself for a long,... (23 replies)
... hi all we had a asesment for her to goto a rehab and they said they will 100% take her as soon as a bed comes up as she cant get the treatment in the hospital she is in now as they dont now what they are doing. so hopfully she will be home soon well that what i hope but i now it could be some time (23 replies)
... hi my sister also happened to be attacked by the same diease and know im keen to learn about about yet im in foreign country where doctors speak germany only and i understand english (23 replies)


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