It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Fibromyalgia Message Board

Fibromyalgia Board Index

[QUOTE=chilyrabit;3892379]Hi there Neveragain! It sounds like you are really having a rough time.

Have you considered changing docs? I recently had to change meds because of a health problem. The first med they gave me did absolutely nothing and it sent me back to where I first started....incredible pain, amazing fatigue. I didn't want to do anything. I tried for as long as I could and then I ended up missing 3 days of work this week and a couple of days last week. I'm not a dr. but i really don't think the couple of pills you take is not going to cause such severe fatigue.

Are you depressed?

I just went through a 3 week bout of depression last was the worst I've ever been.

Let me tell you what I take to keep me functioning, alert and the pain is manageable (not gone by any means, but manageable). First, let me tell you about my diagnosis: FM, Migraines, Shingles, Chronic kidney stones, solitary kidney, bulging discs in neck. I have had a complete historectomy due to extreme endometriosis. This is what I take: Opana ER 15 mg BID (this will be increased next week), Opana IR 10 mg TID, Zanaflex 4mg TID (I don't always take all of this because it does make me a little bit sleepy) (these are prescribed by my pain management dr.) Elavil 50mg QHS, Tegretol (new) 200mg BID, Effexor 150mg QHS, Trileptal 150mg BID (this is all prescribed by my Neurologist. I also have a urologist that I see frequently because I only have 1 kidney and I get stones quite frequently and he prescribes Vicadin PRN. On top of all of that every 2 months I get nerve block shots (about 12-14) at my Neurologist's office.

If I didn't take those meds, I would not be able to function. I of course am opoid (sp) tolerant. I am able to drive and work on these meds.

Do you have any family support? I hope so. If they don't know you are having such a rough time, please tell them. Sometimes, you just need a little bit of help to get through the rough times.

I hope you don't think you are alone. If nothing else, you have all of us on this board. We're not going anywhere. Having a team or at least a couple of really good, compassionate dr.s will help too. Please let me know how you are doing.[/QUOTE]

No, never would even dream of changing doctors. My PCP is perfect. Well almost. LOL.

I am taking more than a couple of pills. Taking Darvocet, Flexeril, Ibuprofen, Ambien, Aciphex, Zantac, Mylanta (when needed), plus the recent addition of Dyazide, I also took my Adderall XR today, I had quit taking it for quite awhile, but after being unable to keep myself up out of bed for more than an hour, I figured I needed the boost.

No, I'm not depressed. I try to enjoy my life as much as possible. What's the point in crying? Sure sometimes you got to let it out, but it doesn't help crying over your problems. Finding a solution works much better than moping around, not that all problems have a solution. Or at least something to give you a good laugh. Pull a nasty prank on someone. LOL. Your just making yourself worse letting yourself get into such a shape. Why cry when you can smile? I used to be depressed, suicidal type depression, I guess for 6 years, along with anxiety, post-traumatic stress, but I recovered. And I know stress & depression can drag you down, but it is not going to cause you to be completely drained 24-7. What I would give if it had of been the cause. I don't know why you got so depressed, but let me share something that helped me, avoiding STRESS at all costs. I was being abused and it took a while to recover from that but high amounts of stress always made things so much worse.

I have 3 things in my life that bug me on a regular basis:
#1 my son living in germany (in the military) I HATE THAT
#2 my health stinks
#3 being in love with someone over the past 9 years that I couldn't have if my life depended on it, know that and still can't get over that (lol)
But overall, I am dealing with life pretty well.

My dx's have been Fibromyalgia, chronic fatigue syndrome, auto-immune dysfuction (believe that was bull), Epstein Bar virus, was told I'd end up with full blown Lupus which neither I or my PCP thinks I have, I had kidney stones for 2 years, finally recovering, TMJ, acid reflux disease, hiatal hernia, chronic esphageal inflammation, had Barrett's esophagus (it went away), irritable bowel syndrome, flares of gastritis, all over tingling, interstital cystitis, ADD, sleep disordered breathing, & generalized anxiety disorder. I also had a partial hysterectomy, 2 bladder prolaspe repairs, & nasal surgery. Isn't it fun. GRRRRRRRRRRR. I am also getting tested this summer for a spot I have on my liver. Can't say I want to even tempt to assume why. I believe it'll turn out okay.

Family support. Hahaha. They get annoyed with me when I talk anything about medicine or my health. I want to be a physician but I'm too sick. So I ramble on and on. I don't blame them, but honestly they annoy me too, any stress I deal with usually comes from other family members.

My TMJ is not what has been hurting me. I have to have some kind of strain in my shoulders and neck. It messes with my sleep, it gets worse from laying down, the pain hits the upper part of my neck, runs through my face, and gives me a headache. I got a dream pillow, it only helps a little bit. My doctor gave me Lortab 7.5 for this and I gave it back to him and said no thanks. When the pain gets bad enough, nothing helps. He told me to take the Darvocet & Ibuprofen together when it feels like it's starting to flare up and see if that helps. So far I've only had one extremely bad episode. Awful thing is, when it gets that bad, I will do anything to stop it.

No, I'm not feeling better since this post. I'm feeling worse with my neck, shoulder, face pain, headaches, bladder pain, pain in my ureters & kidneys, stomach pain, esophageal pain, leg cramps. I just can't TAKE IT! My muscle close to my shoulder was jumping the other night when I was in bed. Like if you put a fish hook there and start pulling it up & down. Maybe it's a pinched nerve? But why speculate?

Half of my problems seem to be related to my sleep. Why is pain inflicted when you are sleeping or trying to rest?

All times are GMT -7. The time now is 02:32 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!