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I'm hoping someone is out there with information on ASD. I took my first echo cardiogram last week (as a precaution -- had some symptoms like rapid heartbeat on occasion, ankle swelling on occasion, and shortness of breath). The test showed my heart is pumping fine but they saw what MAY be an atrial septal defect.

I am going to be scheduled for a TEE to confirm the diagnosis. I am a 53-year old female. It seems that if it is ASD, I've had it from birth.

Anyone out there who learned of this when they were an adult? And how bad in the TEE (I think they go down the esophagus to look at the heart)?

I don't like the idea of maybe needing open heart surgery!
[QUOTE=Gooch09;3153326]

I am going to be scheduled for a TEE to confirm the diagnosis. I am a 53-year old female. It seems that if it is ASD, I've had it from birth.

Anyone out there who learned of this when they were an adult? And how bad in the TEE (I think they go down the esophagus to look at the heart)?

I don't like the idea of maybe needing open heart surgery![/QUOTE]

Hey, there. I just posted something similar. I'm 43 and just found out about my ASD. Don't worry about the TEE. You won't feel anything. I had one done a few weeks ago. You just have to let them make your throat a little numb with something you swallow. The next day, you may be a little tender and have a little limp, so take it easy.

You may not need to have open heart surgery. Many of these holes they can fix by other less-invasive means. When you have your TEE, they will be able to tell you more about your options. I suspect mine will be fixed sometime in September with robotic surgery. Let's keep in touch. I know how you feel.
My ASD was found after a heart attack when I was 47. I've had a TEE several times and it's nothing to worry about. The ASD was fixed via open heart surgery in 2003 as I also had an anurysm. I was scared at the time but it was very successful. You need to get it fixed as it gives a risk of a stroke or in my case a heart attack.
Just wanted to thank everyone for their support. Genie1, I hope everything comes out well with your surgery.

I had my TEE on Friday. It was better than I could have hoped. The test itself was uncomfortable but not terrible. I actually woke up almost at the end (lucky me) in time to see the monitor and hear the doctor explain what was going on. I gagged a little, but before I could get really upset they pulled out the probe. My throat is still a little sore 2 days later but nothing significant. Just feeling extra tired.

The best news is I don't have an ASD. I have an extra piece of tissue (it kind of looks like loose twine) that presented itself on the echocardiogram as a possible ASD. The doctor says it's nothing and I can live with it. He saw nothing wrong with anything else (valves, etc.).

So now I have to go further to see if the symptoms are GERD, anxiety, menopause or all of the above. But at least I don't have to anticipate anything serious (I hope).

Thanks again!
That's GREAT news!
I just had a TEE done last Friday, and my throat is still very sore, but I'm going in today to rule out any complications.

I have a significant ASD, but I don't know yet if I need surgery or if they'll be able to place a patch through a catheter in my leg and up to my heart. I am hoping they can do the catheter. I am 22 years old and I had very few symptoms until recently - rapid heartrate and increased blood pressure, along with some shortness of breath. I've always been active, so this diagnosis came as a complete shock.

I am so glad that you don't need surgery and that you do not have ASD! :)





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