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Im 36 and have been told that I need to have my ASD closed by open heart surgery (im not a candidate for keyhole, I have two holes close together and a thin wall betwwen them).

I am looking for any advice on recovery from the surgery especially from any one with small children, I have two under the age of three and Im feeling anxious about not being able to pick them up and how long before I can?:(

Im currently very active and I jog most days, Im asympamatic and Im hopeing this means a quicker recovery:confused:

Well any advice would be gratefully received

Fiona
Hi,
I;m 27 and had a large ASD closed in MAy this year via open heart surgery. I can't help you on the kid side as i don't have any but i found i couldn't lift much for quite some time.

Lifting a kettle was not possible for at least a month. You have to be so careful, because they can't put you in a cast you have to be very self disciplined to sit back and admit you can't do certain things.
Even getting out of bed is tricky as you mustn't put your weight on your arms.

Imagine swinging your arms in a circular motion, well i couldn't do that, it pulled way too much. It takes up to 12weeks for your sternum to fuse together and you don't want to risk it moving so please be careful. I was scared all the time of moving it but you just have to go easy. If in doubt, lift something with both arms so it doesn't pull one side. If it's too heavy, drop it.

I was gutted as my brother has 2 small children and i couldn't lift them, it simply isn't worth the risk.
Cuddling is fine, maybe you could explain how important it is to your children? If they want their mummy to get better i'm sure they'd do everything to help.
But 3 months after i was ok lifting my neices, and i got back on my motorbike too so it's not all bad. ;)
It's tough, you get tired really easily but you just have to remember, it's major surgery and however frustrating it is not being able to do stuff, it won't be forever.
If ever you want to ask me anything, i'll be happy to help.
My recovery has been trouble free luckily, i kept my wound clean always and the only exercise you're able to do is walking. But you have to build it up slowly. Now i can walk 3/4 miles no problem and i'm fine. I've started my sit-ups and weights so you will get back to normal i promise.
Well i hope it all goes well, good luck and take care,
All the best,
Rach
Hi Rach

thanks so much for all the info, I know its going to be hardgoing but its good to hear your doing well, how is your scar ? I know its fickle but a part of me is bummed about the scar but I guess once its there its there;).

thanks

Fiona
Hey Fiona,

No worries, you can always post any other questions.

Scar is ok, still a bit pink, not so red looking now but it still visable. It is quite sensitive to touch, i put on this oil called BIO OIL which is meant to help heal up scars, but you can only use it on unbroken skin so a few months after your op. Not sure if it;s working as it's still early days and you're maent to put it on 3 times a day but i only do it once as it's hard when your wearing clothes!!

But i think of it as if it wasn't for the scar, then i may not be here in ten years time. Luckily i have small boobs so it hasn't bothered my but i think bigger women may have a different experience. I haven't really worn a bra since my op (don't need to as not that large!!) but i only wear one when i have to, ie work. But it does irritate the bottom of my scar, but everyone is different, you might be ok.

Well, i wish you all the best, like i said, i'm happy to let you know of anything you wanna know, don't be shy i promise you.
Take care,

Rach :)
[QUOTE=fiona366;3806550]Hi Rach

thanks so much for all the info, I know its going to be hardgoing but its good to hear your doing well, how is your scar ? I know its fickle but a part of me is bummed about the scar but I guess once its there its there;).

thanks

Fiona[/QUOTE]
hi fiona ive just been lookin at what you have been talkin about and was wondering if you have had you heart op yet. im 20yrs old and had open heart surgery in june, i also have a child and was ment to getmy asd closed before having children but didnt work out that way. it was really dangerous having my daughter but got through labour with no problems until after and i was really struggling with breathing when walking up the stairs and pushing the pram. thats when i knew i had to get my op for the sake of my daughter. it was really scary with been so young and having a scar but truthfully my scar is tiny and my surgeon has done a really good job and kept it as small as possible. if you havent had your op yet i would be more than happy to answer any of your questions and tell you what it was like for me looking after my child

look forward to hearing from you x
Hi Deb

thanks so much for responding its been really hard to find others that have kids!

My op is not until May so any advice you can give me especially about how you went with the little one, mine are 1 & 3 years old.


At the moment im asmystomatic so I dont really notice any problems but Im soo scared about the op I just want it to be done so I dont need to think about any more you know?

any way I would really appreciate any advice you can give and thanks again so much for responding

Fiona
:wave:Hi Fiona......I had my operation in April of 08 and I was really scared also. I have a friend that was on the heart transplant list at the same time as my operation so he became my insperation. I figured if he could go through a complete transplant with such a positive attitude I certainly could to. During the 3 months i had to wait for my operation I actually became the one to calm everyone else about it. Get all the info and brochures from your Dr or clinic. Mine even had a picture of what I would look like in recovery with all of the tubes. It is just the unknown that is worse than the actual operation. I was told not to lift anything havier than a gallon of milk and not to raise my arms over my head. I also could not drive for 3 months (because of the seat belts and air bags) in case of an accident. My poor hubby had to take me everywhere and you will have a lot of Dr;s appointments for the next few months afterward. My grand daughter was 1 1/2 years old at the time and I could not lift her. You will feel good enough to think that you can but it is a really bad idea to do so. Have lots of help when you get home because you will need it for a couple of weeks anyway, especailly get help with the kids. I felt good enough to go for short walks in just a couple of weeks and when I hit the 3 month mark I was back doing most of what I did before. They say you can have sex when you are able to walk 2 flights of stairs with no problem. Boy, my hubby was looking all over for a place that had stairs so I could practice haha. Take care and don't worry to much, it will be over before you know it. It has already been a year since my surgery and it dosen't seem like it.
P.S. Sports or sleep bras are great for post surgery because they don't bind and have no wires.
Hi Mel

well you made me laugh thats for sure!! I'll give my husband the news:) And thanks for you advice and hope. Your right it is always the unknown thats the most frightening I had checked out photos of the actual op and the hospital recovery and it certainly helped.

Did you have an ASD closure?

Im glad your doing well, this site has been a real inspiration to me because of people like your self

thanks again

Fiona
Good Morning Fiona.

I had my Mitral Valve repaired and at that time they discovered a small hole which they repaired and actually discovered a baseball size tumor (thynoma)
behind my heart which was benign (than GOD) so they removed that and did all the rest at the same time. This site is great because people are so truthful about how different procedures effected them and so helpful with any questions you may have that it really puts your mind at ease and makes you realize that there are so many people out there that have their own problems it makes your own seem not so big, at least that is how it effects me when I read some of the posts. Good Luck with everything.

P.S. So sorry to hear about the devestating fires in Australia and my heart goes out to all of those involved. GodBless
hi fiona

nice to hear from you again. i hope your not worried to much because that will put alot of stress on you but then again its easy to say. i was told for years i needed my operation but with me been young i was to scared and was told to have it done before thinking about starting a family (well it didnt go to plan) haha. i fell pregnant and was vey dangerous but had my daughter who is now 17 months with no problems. it was after when i started realising how much pressure was on my heart and new it was time for my operation. i could only push my daughter so far up a bank in her pushchair and started finding it hard to get up the stairs without getting out of breath. i was put at the top of the waiting list and was told to be prepared for a phone call and was asked to go in when they had a cancellation. this happened in march but i got sent home a day later because they said i wasnt strong enough to fight of any infection. i was so scared after that because thats when it hit me. im may a week after my 20th birthday i got the phone call sayin be at the hospital in the next two hours and it was all a big rush getting care for my daughter and i was put on a ward with people alot older me (i kept thinking i shouldnt be here) but then looked around and thought if these people can do it then so can i. the next morning i was told i was first on the list but it ended up i was last. by that time all i could think of was food haha i was so hungry. i went down for my operation and on the way down all i kept saying to myself was 'ill be ok when i wake up' bit sad really lol but it helped me. next thing i remember was waking up in intensive care (yes in a bit pain) as you can expect but you no you have done it and think the next thing will be seeing your kids. i had to sleep with a few pillows so i was sittin up as there was too much pressure on my back and chest. and whatever you dont put your weight on your arms. you will need alot of help with your kids as they are still young. my daughter was only 8 month when i had my op so she relied on me for everything and always wanted picking up, the good thing about you is that your kids will probablys understand that you can only give them cuddles and not carry them which is a good thing for you.
well ill stop there because im gettin a bit carried away lol but just make sure you have plenty of people to help you after and dont to to much because you think you can. your body will no when you can do normal things not you. and remember if everyone else can do it then so can you and think of your children. that will get you through it.

hope everythings ok and try not to worry to much
x
Hi Rach

its me again just wondering did you have the zipper or the inscision that runs under the breasts?

I have been offered both and Im not sure what to do

thanks Fiona
[QUOTE=fiona366;3918818]Hi Rach

its me again just wondering did you have the zipper or the inscision that runs under the breasts?

I have been offered both and Im not sure what to do

thanks Fiona[/QUOTE]

Hi Fiona,

How are you? Hope things are ok for you?

I had the zipper, the other was spoken about but my surgeon said it was more difficult to do the operation, so i just went for the zipper for convenience for her to do the job in hand. I imagine having it done under the breasts would be more painful when recovering but that is my guess.

Depends if you have large breasts or not i imagine as i found wearing a bra irritated me with the zipper so i would;ve thought wearing one even after healing would be annoying?
But i don't know......in fact luckily i have small boobs and i still rarely wear a bra now as i find it irritates my scar even now.......not badly but where the bra meets in the middle i find it rubs on my scar at times........so i don't bother most of the time........but is personal choice in the end.

Depends if you want a more noticeable scar...... mine is going down slowly, more prominent in places but my motto is i'd rather have a scar and a healthy life than high risk of a stroke which i was......all rides on how you look at it i suppose.........but every scar tells a story.....positive thinking is all you need :)


So you got a date yet? Hope things are ok and you are not too worried about anything?

Take care Fiona, spk soon maybe?

Rach x
Hi Rach

sorry its taken me so long to reply we've been having problems with our PC. My date is the 7 May (4 weeks away) trying to stay calm but its the unkown thats the scariest. But Ive got a pretty positve attitude and Im lookin fwd to going for my runs and not struggling perhaps I'll do a marathon...lol!!

Ive decided to go with the zipper, Id hate for them to be in there and find some other problem and have to do the zipper anyway and appartently its quite painful to have it the other way.....strange concidering :)

Hey how long before you could look after your daughter with out help? My kids and I are going to stay with my mum & dad after the op, my husband owns a business so he cant take much time off.

Youve have been an absolute gem with your advise and encouragement and I just want you to know that I appreciate it

Fionaxx
[QUOTE=fiona366;3946681]Hi Rach

sorry its taken me so long to reply we've been having problems with our PC. My date is the 7 May (4 weeks away) trying to stay calm but its the unkown thats the scariest. But Ive got a pretty positve attitude and Im lookin fwd to going for my runs and not struggling perhaps I'll do a marathon...lol!!

Ive decided to go with the zipper, Id hate for them to be in there and find some other problem and have to do the zipper anyway and appartently its quite painful to have it the other way.....strange concidering :)

Hey how long before you could look after your daughter with out help? My kids and I are going to stay with my mum & dad after the op, my husband owns a business so he cant take much time off.

Youve have been an absolute gem with your advise and encouragement and I just want you to know that I appreciate it

Fionaxx[/QUOTE]

Hi Fiona,

Glad you have a date to work with at last! Well you sound really positive and have the right mindset so that's a great start! :)

So you're opting for the zipper.......that is the sensible option like you say if they end up doing it anyway.....mine is disappearing more and more as time goes by so in time you'll never notice it :)

I don't have any children, maybe you got mixed up with someone else.....so sorry i can't help on that one! But sounds like you have a lot of help at your parents, that will take the strain off you so you can get back to normality at your own pace. Don't forget it takes time and you have to be self discaplined with what you can do, my consultant said something that i remembered when i was recovering. She siad imagine you are in a cast for your sternum, that would stop you doing a lot of lifting and things you shouldn't be doing so i imagined/remembered that quite frequently which helped a lot. Ecen stupid things like a full kettle is heavy for your chest so BE CAREFUL! But i know you have a good head on your shoulder so you will be fine. Help is at hand and never be afraid/ashamed to ask for assistance.......)

You are very welcome with reference to answering your concerns. Anything else and i mean anything please don't hesitate to ask, i would love to be of any help if i can! And keep me posted if you have access to a pc at your parents house. But i know you will have more important things on your mind but i would love to know how you are when you feel ready to get on a pc.

So i wish you the very best for the whole thing, i wish you a speedy and problem free recovery. I know you will be fine,......take care and keep smiling and keep that positive attitude.....it will get you through it even when you have a down day!
I will be thinking of you!
Best wishes and a heartfelt hug (excuse the pun!! haha )
Rach xxx
Thanks Rach, sorry I got confused about the kids, now i remember they were your brothers kids!

Will definately let you know how I go (Mums got a PC) and Imagine Im going to have a bit of free time:)

hey did you have staples or glue? Ive been told glues the way to go.
Hello Fiona & Rach,

Today I was informed that I have an ASD which needs fixing within 5 years.
Of course, it would be preferable to have this as soon a possible bt don't know all of the facts yet regarding how dilated the dilated side is etc...

Am asymptomatic.

So what is best to go for in your opinion/experience? ... the open or the umbrella in the groin trick?

Of course I am serious but I have just spent a year recovering from a DVT in my arm...

Ironically, if it hadn't been for the thrombosis, the ASD would not have been detected... my life curtailed by how many years otherwise unknown...

I welcome advice from anyone.
I live in Japan which is perhaps quite fortunate in the fact that techniques are often the latest and very skillful...

However, before I consult with the cardiac team, I would like to hear 'real world' stories etc..

thanks.
I enjoyed reading all the post on this thread because of the information provided.

I am shocked......that you have a choice on what kind of surgery? What is a Zipper? Is it down between the breast? What is the other option and where would they cut? WHY is it good that your breast were small? Am I looking at more worries because I am a big girl? I am a DD! I wonder if they would consider just removing them before they even start my Open Heart?

All the help you ladies gave me......but more questions opened up that I havent even considered!
Hi Archie

I to am asymptomatic, unfortunately Im not a candidate for thekey hole surgery instead Im having open heart in a week. But if I were given a choice I would definately choose key hole its a hell of a lot quicker to recover and you dont have to have your sternum cut which is what takes time to heal.

having said that I havent experienced either yet..:)

hope that helps

Fiona
[QUOTE=Mileena42;3968224]I enjoyed reading all the post on this thread because of the information provided.

I am shocked......that you have a choice on what kind of surgery? What is a Zipper? Is it down between the breast? What is the other option and where would they cut? WHY is it good that your breast were small? Am I looking at more worries because I am a big girl? I am a DD! I wonder if they would consider just removing them before they even start my Open Heart?

All the help you ladies gave me......but more questions opened up that I havent even considered![/QUOTE]

Hi Mileena

I have a choice of inscision one being verticle in between the breast (zipper) and two being a cosmetic inscision that goes under the breast and meets at the bottom of the sternum.

I have down my own research on the cosmetic inscision and it seems to be more painful and there is a 20% chance of loss of feeling to the breast. They can also see a lot better wit the zipper inscision ...Im going with the zipper, but I havent had my op yet ....next thursday.

In regards to size my surgeon did not concider my D's a problem so Im not sure about DD's but I have read that you just need to wear a support bra so it doesnt pull the inscision site.

Hope this helps, when is your op?

Fiona
Well, I have Mitral Stenosis and at the rate I am going....3 to 4 years. My valve is measuring 1.4cm and the AHA suggest waiting until you are at 1.0cm. I am losing .1cm a year, which I am told is the slowest rate. So, that puts me to getting there in 3 or so years.

I am trying to find out and research all I can since I found out a couple years ago, but had never considered that the OP could be done differently than the "zipper".......I don't think I would do it differently anyway.

It just worried me when you mentioned the bigger breast being a problem, and I had never even considered that....hmmmm but I guess it would make sense!

Did I miss why you were having open heart at such a young age? Is it a valve problem as well?
[QUOTE=Mileena42;3969055]Well, I have Mitral Stenosis and at the rate I am going....3 to 4 years. My valve is measuring 1.4cm and the AHA suggest waiting until you are at 1.0cm. I am losing .1cm a year, which I am told is the slowest rate. So, that puts me to getting there in 3 or so years.

I am trying to find out and research all I can since I found out a couple years ago, but had never considered that the OP could be done differently than the "zipper".......I don't think I would do it differently anyway.

It just worried me when you mentioned the bigger breast being a problem, and I had never even considered that....hmmmm but I guess it would make sense!

Did I miss why you were having open heart at such a young age? Is it a valve problem as well?[/QUOTE]


Hi Mileena

I have an Atrial Septal Defect (ASD) also know as a hold in the heart I was born with it but only found out 2 years ago then fell pregnant with my second son so had to wait to have it repaired.

They usually only offer the cosmetic inscision for an ASD because they can just see enough to do the job at hand......I think a scar is a small price to pay for a healthy life :)
Hi all,

sorry for not replying sooner, been a hectic week!!

Wanted to wish you good luck Fiona for your op as i know it is looming! Hope you're not feeling too anxious about it, i know you will be fine. As the the question i never answered about glue, is that for the sternum? I never had an option, i have about 4/5 horizontal wires clasping my sternum together which i later saw in the xray, so am now a bit of a bionic woman! lol (you wouldn't know from the outside)

I haven't had any probs with them if that's what the query was.

I can only wish you the best for the op, don't let anything get you down and remember to be patient with yourself, it's a major op and your body will dictate the things that you can do......you just have to go with it.

As for all you others asking about open heart surgery, i never had an option to have the keyhole due to my hole being 3cm diameter with little holes around it like swiss cheese so it was open heart surgery all the way! I never knew i had the hole and was always tired but thought that was due to my then job which was early shifts......so 27 years without knowing was a bit of a shock!
I always had palpitations but never thought anything of them. I have to admit i still have then now and will never have a normal heartbeat but y consultant has said as long as they don't last more than 30 seconds (which they don't) then i just have to live with them.
The right side of my heart had grown larger over the years due to overworking to compensate for the hole and is still enlargened now, but will shrink over time, because it's a muscle and like any other muscle, when worked harder it grows........but my check ups have shown that it is shrinking but slowly.
But have been given the all clear, had my Op on May 19th last year and took me a good 3 months to feel better, i was lucky as i had no real side effects, i had a bit of a spell of migraines but that could've been the after effects of all the drugs. I was sent home from hospital in 5 days from my op with a bag full of hardcore pain killers and i never touched them, i wasn't in real pain, i found my shoulders ached (from when they clamp you open i imagine) but i only got it in the mornings.
I had to sleep on my back for weeks and needed help out of bed, i had lots of pillows and found it was easier to sleep like this as laying flat seemed to make me feel a bit weird. And also with stacked up pillows it was easier to get out of bed, as you mustn't put weight on your arms to heave yourself out!!! It's a must to not do this!

You may find you cannot stretch your arms very high for a few months but they should give you exercises to help with this. This is due to the tightness of the scar, and i had no infections in my scar which is apparently a common thing, i always kept it clean and after all the scabs had dropped off started putting E45 on it, and kept it suntan lotioned from the sun in the summer!!!

But now i am as healthy as can be, i ride my motor bike and walk miles and do weights and have no problems whatsoever! So don't worry, you will get over it, prob took me about 6 months to feel really good again, (cos then i rode my bike too! lol)

So all in all it's not as bad as it may seem, the percentages are very high for success, my surgeon said it was 99% successful and she was brilliant, very caring and encouraging!

I could run on about this for ages as i really had a good experience of it all, my GP was very supportive, and my family were fantastic. Took me 6 weeks before i could drive again. So anymore questions please feel free to ask away! This message is so long you're probably all asleep!!

GOOD LUCK FIONA, WILL BE THINKING OF YOU!!!!

BE safe all,
Best wishes and take care
Rach xxx
[QUOTE=repsolgirl81;3971918]Hi all,

sorry for not replying sooner, been a hectic week!!

Wanted to wish you good luck Fiona for your op as i know it is looming! Hope you're not feeling too anxious about it, i know you will be fine. As the the question i never answered about glue, is that for the sternum? I never had an option, i have about 4/5 horizontal wires clasping my sternum together which i later saw in the xray, so am now a bit of a bionic woman! lol (you wouldn't know from the outside)

I haven't had any probs with them if that's what the query was.

I can only wish you the best for the op, don't let anything get you down and remember to be patient with yourself, it's a major op and your body will dictate the things that you can do......you just have to go with it.

As for all you others asking about open heart surgery, i never had an option to have the keyhole due to my hole being 3cm diameter with little holes around it like swiss cheese so it was open heart surgery all the way! I never knew i had the hole and was always tired but thought that was due to my then job which was early shifts......so 27 years without knowing was a bit of a shock!
I always had palpitations but never thought anything of them. I have to admit i still have then now and will never have a normal heartbeat but y consultant has said as long as they don't last more than 30 seconds (which they don't) then i just have to live with them.
The right side of my heart had grown larger over the years due to overworking to compensate for the hole and is still enlargened now, but will shrink over time, because it's a muscle and like any other muscle, when worked harder it grows........but my check ups have shown that it is shrinking but slowly.
But have been given the all clear, had my Op on May 19th last year and took me a good 3 months to feel better, i was lucky as i had no real side effects, i had a bit of a spell of migraines but that could've been the after effects of all the drugs. I was sent home from hospital in 5 days from my op with a bag full of hardcore pain killers and i never touched them, i wasn't in real pain, i found my shoulders ached (from when they clamp you open i imagine) but i only got it in the mornings.
I had to sleep on my back for weeks and needed help out of bed, i had lots of pillows and found it was easier to sleep like this as laying flat seemed to make me feel a bit weird. And also with stacked up pillows it was easier to get out of bed, as you mustn't put weight on your arms to heave yourself out!!! It's a must to not do this!

You may find you cannot stretch your arms very high for a few months but they should give you exercises to help with this. This is due to the tightness of the scar, and i had no infections in my scar which is apparently a common thing, i always kept it clean and after all the scabs had dropped off started putting E45 on it, and kept it suntan lotioned from the sun in the summer!!!

But now i am as healthy as can be, i ride my motor bike and walk miles and do weights and have no problems whatsoever! So don't worry, you will get over it, prob took me about 6 months to feel really good again, (cos then i rode my bike too! lol)

So all in all it's not as bad as it may seem, the percentages are very high for success, my surgeon said it was 99% successful and she was brilliant, very caring and encouraging!

I could run on about this for ages as i really had a good experience of it all, my GP was very supportive, and my family were fantastic. Took me 6 weeks before i could drive again. So anymore questions please feel free to ask away! This message is so long you're probably all asleep!!

GOOD LUCK FIONA, WILL BE THINKING OF YOU!!!!

BE safe all,
Best wishes and take care
Rach xxx[/QUOTE]


Thanks for all your advice and support Rach, I'll send you a message in a few weeks

Fiona xx
[QUOTE=fiona366;3968913]Hi Archie

I to am asymptomatic, unfortunately Im not a candidate for thekey hole surgery instead Im having open heart in a week. But if I were given a choice I would definately choose key hole its a hell of a lot quicker to recover and you dont have to have your sternum cut which is what takes time to heal.

having said that I havent experienced either yet..:)

hope that helps

Fiona[/QUOTE]


Fiona,

Thanks for the ever-so welcome reply...

I have appointments with the in-house surgeon on May 18 and with a nationwide famous surgeon on June 1. On the first appointment day, I shall also be having more definitive tests to locate the exact spot etc... so as to address all of the important issues involved in making the decisions re. which procedure to undergo...

In terms of rehabilitation, as long a the staff are all friendly, caring and knowledgeable I would be able to rest easy... Perth though, must be one of the best possible places to have a lengthy hospital stay...

Depending upon which surgeon is decided upon, I'll hopefully be either in a leafy suburb of Tokyo or down by the sea in a specialist heart centre of the local hospital...

My dad lives over in Cairns and at 92 is still going extremely well. He did advise me to have the work done as soon as possible due to the other problems which are associated with untreated ASD's. (Hypertension's effects...)

My case is a little complicated as I have been on blood thinners for almost a year due to the blood clot... ... BUT I'm a believer and doubt that I am the first such patient so should be some precedent or at least some brilliant solutions...

So finally. as your 'day of redemption' fast approaches, I am sure that all of us are wishing all the best for you & are equally awaiting your first emails/postings here when it becomes possible for you to commandeer a computer.

take care

Archie
Thanks Archie, will do :)
Hey Rach, I made it!!

everything went well and no damage had yet been done to my heart...talk soon?
fionaxx
[QUOTE=fiona366;3982986]Hey Rach, I made it!!

everything went well and no damage had yet been done to my heart...talk soon?
fionaxx[/QUOTE]

Ahh Congratulations! That's such wonderful news, am so happy for you!

hope you're feeling ok about things, really wish you well for the recovery! I am really chuffed for you, been wondering how you've been getting on. It a year on the 19th of May since my op so am gonna have a special day to celebrate life!
Take care and keep in touch, rest up and heal well,
All my best wishes to you
Rach xxx
I want to thank both of you ladies for posting such positive situations and encouraging attitudes about your Open Heart experiences! For a couple of years now I feel like I am walking around with a dark cloud hanging over me, with all the constant worry about my upcoming surgery.

I try to tell myself that I am really lucky, as there are people who cannot even get well with surgery.....but it doesn't stop the worry.

Anyway, it's always good to hear someone who has been through it.....and they can say it really wasn't that bad. I know everyones experience will be different....but we can all hope for the best!

Thanks Again!
Archie,
I had my asd closure in sept of '05. I was 22. I had the groin (key hole) surgery. I was very scared for and during the surgery. I had just recently gotten married and I had a daughter. It went extremely well! I actually remember seeing the screen during my surgery as they kept me slightly awake during the procedure. Which actually made me feel better..believe it or not! :D All is well now..I have a really high heart rate that I have to take meds for and an irregular heart beat...but I had that before. I actually had symptoms before hand and my hole was HUGE!! They said I was lucky that I had symptoms so they caught it. I hope it all goes well for you! Nothing to be afraid of and I would choose the groin surgery over if I had to do it again!!! ;) Jen
Just to add my ASD experience which took place back in Sept 1959 in UK when I was 15. In those days under general anesthetic I had hypothermia which cooled the body before the operation. Then the chest opened up to stop the heart and clamped the veins to stop the blood flow. Open the heart fix the hole which was 5cm in the long axis. close the entry point let the clamps go, suck the air out and hope the heart kicks in. All this took 7 minutes 58 seconds. No bypass machine. Real risky stuff in those days. I am looking forward to celebrate 65 years alive this year, 50 of those post op
To all of you who are wondering on your prognosis I am a living testimony of surviving 50 years. I have not had any complications since then and have had many cardiac tests and am fit and well today.
Todays surgery is a bit further advanced than back in my days
best of luck to anyone looking down the barrel of an ASD surgery op
regards
Graham
Thankyou guys! This forum is so helpful!

I am 19 and was diagnosed with an ASD in November last year, after complaining to my GP about shortness of breath, which then made him refer me for a few tests which revealed the ASD

The funny thing is with my case is that my younger brother, who is now 17, has been monitored his whole life because of an ASD aswell, but his is so small they dont think he will ever need it closed up, i've asked is it could be a genetic thing but they say they've never known it to be before.

I had an appointment yesterday which included results of a trans-oesophageal echo i had (not sure if any of you guys had one of these, it wasnt nice!!), and it was revealed to me that my hole is 2.6 cm in diameter, meaning my closure has to be done by open heart as the size of the hole, and also he said to me that there wouldnt be enough membrane left to enclose the device used in keyhole surgery safely anyway, so i know realise that open heart surgery is my safest option, however it doesnt take the scary-ness away from it.

I had previously done research anyway into the closure, but this website has been very helpful because its first hand experience and all the info on recovery is very helpful! :)

I am currently a student Radiographer in my 2nd year of uni, and they have been as nice as to say hopefully they can plan my operation for this summer around my other commitments as much as they can. I only have a 7 week summer holiday so i know it will takelonger than this, but fortunatly i have placement either side of the holidays so i can make up the time easier as its not like i am missing lectures.

I was told yesterday, that the recovery will take 2-3 months until i can get back to normal in going to placement etc, although i was told because, otherwise, i am fit and healthy it should take me closer to 2 months than 3, and apparently my age is on my side too, just wondering if anyone has any advice on recovery time?

Nice to hear all the positive stories too :), im a pretty outgoing person and being stuck in bed and not being able to go out and do stuff easily on my own is going to drive me insane!!

Thanks again

Kirsty x
Hi Kirsty

I had my ASD closed in May 09, 10 months ago Im 37.

Your probably really scared, but what ever your imagining...halve it.

Im in Perth, Australia and I had a great surgeon and the nurses here are excellent.

The fist week, is difficult because your getting used to your limitations and the first week your home is frustrating because your used to doing things and you wont be able to do like pick up a full kettle.

The good news is you get better and better each day and with in 3 weeks you will be holding that kettle and 3 weeks after that you'll be driving.

It's the first 6 weeks, that's when you do the walks to increase your cardio it can be frustrating because you only increase by 1 minute each day.

I went for a 4km run the day before my op, I went into it pretty fit so it was annoying to have the limitations but you [B]MUST listen to you body [/B]when it tells you its tired (esp in the first 6 weeks) because if you dont it will set you back.

By six weeks your ready for work, by three months you can lift a small child. At three months I was running 5kms and even did a mini fun run at 4 months. Just do the exercise program and the stretches and listen to you body. Focus on healing dont get down just focus because it's over before you know it.

The first two weeks are uncomfortable it's difficult to sleep because of your sternum it's all about the pillow positioning......but you get the hang of it and by the time you do you dont need them.

I was freakin out in the weeks leading up to my op, but it was nothing like I thought which was a very good thing.

My scar is barely noticable, if fact I have to point it out to most people.....I like to show it off because Im proud of it but you cant even see it. I had internal stitches (dont get staples).

Now it seems such a long time ago, and I have no problems Im strong, sometimes I notice a pull in my pec's which is most likely one of the wires but its almost gone now.

If I can help you with anything else please let me know, its good to help someone else out because at the time of my op this thread gave me soooo much help

take care & good luck

Fiona xx
[QUOTE=Kirsty26;4210230]Thankyou guys! This forum is so helpful!

I am 19 and was diagnosed with an ASD in November last year, after complaining to my GP about shortness of breath, which then made him refer me for a few tests which revealed the ASD

The funny thing is with my case is that my younger brother, who is now 17, has been monitored his whole life because of an ASD aswell, but his is so small they dont think he will ever need it closed up, i've asked is it could be a genetic thing but they say they've never known it to be before.

I had an appointment yesterday which included results of a trans-oesophageal echo i had (not sure if any of you guys had one of these, it wasnt nice!!), and it was revealed to me that my hole is 2.6 cm in diameter, meaning my closure has to be done by open heart as the size of the hole, and also he said to me that there wouldnt be enough membrane left to enclose the device used in keyhole surgery safely anyway, so i know realise that open heart surgery is my safest option, however it doesnt take the scary-ness away from it.

I had previously done research anyway into the closure, but this website has been very helpful because its first hand experience and all the info on recovery is very helpful! :)

I am currently a student Radiographer in my 2nd year of uni, and they have been as nice as to say hopefully they can plan my operation for this summer around my other commitments as much as they can. I only have a 7 week summer holiday so i know it will takelonger than this, but fortunatly i have placement either side of the holidays so i can make up the time easier as its not like i am missing lectures.

I was told yesterday, that the recovery will take 2-3 months until i can get back to normal in going to placement etc, although i was told because, otherwise, i am fit and healthy it should take me closer to 2 months than 3, and apparently my age is on my side too, just wondering if anyone has any advice on recovery time?

Nice to hear all the positive stories too :), im a pretty outgoing person and being stuck in bed and not being able to go out and do stuff easily on my own is going to drive me insane!!

Thanks again

Kirsty x[/QUOTE]
Thanks, it’s nice to hear such a positive reply

Yeh its pretty scary but its good when you read positive stories on here, nice to know I should half how scared I am though :)

Yeh I can imagine it being frustrating, so its not like your stuck in bed for long is it? How long till you was up and about?

And how long did it take until you were like completely back to normal?

And by 6 weeks I should be ready to go back to work? That’s good to hear! :)

Yeah my cardio has decreased, I stopped going to the gym and doing exercise because I was told to sort of take it easy until after my op, but I miss it!

I suppose I have good determination, but then will have to listen to my body when it tells me to stop or have a rest, because I don’t want to be set back

Yeh I thought the first two weeks would probably be the worst, were you getting really agitated because you couldn’t get comfy?

That’s good to hear about your scar too, so its really not that noticeable then?

Thanks for all your help

Kirsty x
Hi Kirsty

your up and about the next day (sometimes the same day depending on what time your op is). Your physio will get you up & walking and by the time you leave hospital (which was 5 days later for me) are doing three or four small walks a day. The first couple of days are difficult your kept really busy with all the test xrays and physio & your on drugs so it kind of flys by.

What no one told me was that you have pacing wires inserted and they remove them on the 3rd or 4th day.....a rather hideous experience though not painful just weird. Once ther out you dont have to have the monitor on and its easier to get around.

When you go home your still able to wonder around the house and yard is just you get tired after a while and when you do just rest for awhile and then your good to go again.

The uncomfortable part is your sternum but for me it wasnt painful unless you moved the wrong way are trying to sleep was hard. I didnt take any pain relief once I was home because it just wasnt that painful for me.

Being completely normal would probably be 3 months because you can then lift things but your sternum can take years to heal completely....its takes awhile before you get do pushups...I think it was four months for me. But I was running at 10 weeks.

my scar is a very very thin line its about 2 or 3 inches below the topof my sternum and finishes about 1 inch below. Plus the the two small scars from the stomach tubes also barely noticable. But I guess it depends on your skin I scar well....that's a weird thing to say isnt it!

I was consumed prior to my op, all I could think about was what they would be doing during the op........but you asleep!! and dont remember a thing so dont think about it too much.

Oh I have that trans-oesophageal echo and they are not pleasant that's for sure!:eek:

Do you know when your op is? where are you having it?

take care :wave:

fiona
I am 48 and found out on Dec. 24 2009 that I had a 1.7cm hole in my heart. This caused my heart to be “severely enlarged”. I did surgery at Mount Sinai on January 18 2010. They found that I had other interesting challenges – I have a left sided superior Vena Cava and actually had 2 instead of 1. My Pulmonary veins were twisted and allowing very little oxygenated blood to my body. The doctors said that my heart was different to 99.5% of the population. With all the work they had to do the surgery went well. I live in Jamaica and was able to fly home from the US on February 2, 2010
I am currently working out on my treadmill for an hour per day. I started driving after 8 weeks but had to back off a bit as I sometimes have some stiffness in my chest bone. Mostly I am back to normal.
The first few week presented many challenges in terms of finding a comfortable position to sit or lay in. I still mostly sleep on my back – propped up a bit as it is still not comfortable to lay flat.
They will place an antibiotic tape on your incision and write on it the date it should be taken off – MAKE SURE IT DOES NOT COME OFF BEFORE THAT DATE (unless there is obvious drainage under it). Mine was to be removed on January 28 but was removed January 25 – that turned out to be a very bad idea because the incision opened up and I had lots of drainage and had to be placed on a 20-day course of antibiotic treatment.
You will be just fine – ensure you have lots of support from friends and family and follow the lifting, pushing and pulling instructions.

Diana
Hi

I'm 29, just had a very large ASD repaired in mid January, nearly 12 wks ago. I was seriously scared before I had the op as I'd never had surgery of any sort before. I stumbled across this thread a few wks before my op, and what I read here made me feel a bit better about it, so I just thought I'd post with my thoughts on the whole ordeal.

People had difficultly convincing me that I shouldn't be scared beforehand, but I can honestly say there's no need to be. I was prepared for the worst and now I can't believe how easy (and relatively painless) it was.

I had a 10 day stay in hospital due to being a bit weak afterwards, but a blood transfusion and a few decent meals soon sorted that out. Once I got home I felt better just for being there. It was difficult to sleep at first (another week or two) and obviously there is discomfort because of the broken sternum, but nothing eye-wateringly bad. The stiffness around the neck, back and shoulders soon distracts you from that!

I kept doing the exercises I had been set by the physio and gradually all the discomfort, stiffness and aches started to disappear. I was back in work after 7 or 8 wks (flu delayed my return by a week) and nearly 12 wks later I am at that point where I've pretty much forgotten it happened!

Anyway, thanks all who posted here, it helped me reading this thread. I can actually believe you all now that it really isn't that bad. Apart from the fact that I have now seen every episode of Top Gear 3 times, and far too much of the Jeremy Kyle show.
Hi

You don't know what a relief it was to find this thread.
I am 35 and am on the waiting list to have open heart surgery to close quite a large hole. Not a day goes by without me thinking about the forthcoming surgery and what will happen both during the op and afterwards.
My first concern is that i have a 10 month old who i'm petrified of leaving (if it wasn't for him i wouldn't even know i had a problem! - it was only discovered during my pregnancy.)

Reading your messages my mind has been put at ease some what and you've also made me aware of things i hadn't even thought about! Like the fact that i won't even be able to make a cup of tea afterwards!
It hadn't really registered just what was going to happen - but i guess seeing as they are splitting me in two - i will find things a bit difficult for a while!

What i also found a comfort was reading the messages from Fiona - from waiting for your op, through the surgery, right up to one year on. I guess its because your circumstances were so similar to mine. I'm so glad all went well and you are now fit and healthy.

You can't help feeling like you're on your own a bit (i don't think my husband quiet understands how i'm feeling - he's very practical and says things like "There's no point worrying - you'll be ok"! But you have all really helped - from a practical point, making me more aware how i'll cope during my recovery to that i'm not vain worrying about having a huge scar! And that i'm not alone - so thank you.

Sally
Hi everyone,

It seems like we found the thread at the same time Sally! I agree, it was such as relief to find the forum discussing what is like for a woman to have open heart surgery for ASD closure. I feel like I have been living in a bubble since my diagnosis at the beginning of January this year and thought no-one was going through what I am!

I have all the same worries as have been previously posted on here and it has been so great to read through the useful replies, including Rach's advice and Fiona's journey.

My ASD is 2 x 3cm so have been told open heart surgery is the only closure option. I have been given the option of sternotomy or mini thoracotamy (incision under the breast). I have been warned about potential complications from the horizontal incision in women so am tempted to go with the other operation.

BUT, having all the tests at my local hospital and having to pay privately to get some answers from a cardiologist, I haven't been reviewed by a specialist in congenital heart defects. I have been waiting 3 months to be seen so I'm not even on a waiting list for the surgery. I made a complaint and have had a complete nightmare. A specialist finally called me up last week to discuss my results and options but I still have to wait to be seen before going onto the surgery list! Anyone else have these kind of problems?

Unlike a few of you, I have lots of symptoms that have worsened over the last 4-5 months. I get chest pain everyday, feel short of breath after a few metres, get hideous palpitations, have blue lips and fingers, migraines and can't lie flat at night!!! All at age 27, when last September I did my 3rd marathon and completed 2 triathlons!! Prior to my diagnosis I was running 30 miles and training 10 hours a week.

So bring on the surgery is all I can say! Feeling rotten far outways any fears I have about scars, the operation or recovery time.

Best of luck to anyone going through the same thing :-)

Corinne xxx
Hi Corrine

Your ASD sounds very similar to mine. I was diagnosed November 08. I was gettin breathless and having palpitations, i thought it was due to being pregnant at first - then the doctor listened to my heart!
I got lots of care during my pregnancy and labour - just in case - but thankfully all went well.

I'm not sure whether it was because i was pregnant or not but things seem to have moved quite quickly i feel. I was given the option to go on the waiting list last summer, but because i have been beastfeeding my son, i wanted to wait until he was weaned, as well as waiting to arrange child care provision.

You sound extremely fit, (well done on the marathons AND triathlons!!) which should put you in good sted for your recovery. Your symptoms sound horrible and i'm sorry you feel so rotten. I'm pretty much asymptomatic, which makes me feel a little guilty.

Where in the world are you? I'm in East Yorkshire in the UK.

I hope things start to move a little more quickly for you and you can begin to feel better soon.

Sally x
I cant believe that its been a year today since my OHS!!
I started this thread because I couldnt find ANYONE that was a mother with little kids and was facing OHS.

Well look at this thread now, its amazing and I feel I have come full circle and Im proud and humbled that my experience has helped others just as I have been helped.

To Sally & Corrine, I know what you are going through and I know it is always (always) on your minds......but believe me when I tell you, try hard not to give it too much thought and give youselves a time frame. For me i told myself I was not going to think about too much until it was 2 weeks away and then I could worry away! It helped...but being informed and asking the stupid questions like when can I be alone with my kids, when can I pick them up etc is helpful.

If you need any advice or just need to talk, Im happy to share my experience especially when it comes to the kids

and thank you both for contributing to this thread, I made my day!!

take care

Fiona xx
Great to hear back from you Sally and Fiona.

In answer to your question Sally, I am now in Dorset (from Derbyshire originally). It's nice to hear of someone in the same boat, although I wouldn't wish my symptoms on anyone. Don't feel guilty, it's great you feel ok! Think it's all the silly marathons that have caused me to feel so rotten so quickly!

It will be interesting hear how you get on and how quickly you have your operation. I will post again on here when I hear if I finally get on the list. Keep in touch.

Thanks for the words of advice Fiona. I will try to heed it and not worry so much! You're right, it is always on your mind. Must be a great feeling on passing the one year mark. I'm glad we made your day, you certainly made mine when I was feeling sorry for myself earlier in the week. Thanks again.

Corinne x
Hey everyone.

Just in need of a bit of advice...

There's something I am worried about with my forthcoming open heart surgery (which will be in June or July hopefully). First is the decision about the surgery option - either the sternotomy (or zipper as some call it) or the mini thoracotomy (under the breast). After reading several posts on here and other sites, consensus was the zipper had the most advantages. I saw my surgeon yesterday and he said the choice is mine (although he does the horizontal incision more frequently).

Given the decision, a few friends and family are bringing up the point 'why choose to have have a more obvious scar'. My gut instinct is to go for the zipper/sternotomy as I want to be sure the hole is closed as best as possible and less chance of post op complications with the ribs/right breast.

Don't know what to do!! I am feeling at the moment, silly as it sounds, guilty for wanting the zipper. I wouldn't say I am a vain person and getting better is all that is important to me. But friends and family seem to be concerned that I will be fretting about a scar later in life. From what I have read, the scars, whereever they are, fade in time.

Sally, do you know when your operation is? I really can't wait for the surgery now as I feel I have wasted so much energy in getting angry with the health service here and fighting my corner to be seen.

I'm feeling guilty that I won't be able to work due my recovery time and know this will have a big impact on our life - we have a busy business which I do full time, around agency nursing shifts at the weekend also.

Did anyone else experience feeling fine one minute, then everything gets on top of you the next?! I'm usually so positive but am feeling so tired that i don't have much fight left!

Any advice appreciated. Hope you are all feeling well.

Corinne x
Hi Corrine

I can totally understand how you are feeling. I'm glad that your operation will be soon, that must feel a bit of a relief. I've been on the waiting list for almost 8 weeks now, so mine should be coming up sooner rather than later (fingers crossed - just want to get it over and done with now, then i can stop thinking about what its going to be like!) I believe you have to be seen within 18 weeks of going on the waiting list, so that the hospital doesn't "breach their contract" (government figures!)

As for choice of operation, i'm not sure which is the best option, i didn't even realise they could do it any other way other than the 'zipper' until reading this thread.
Personally, i've now decided that i think i will feel quite proud of my scar and not mind showing it off. It will be a talking point if nothing else!! Also, i'd rather have the scar than know that i could have been seriously ill in the future.

You also mustn't feel guilty about work. After having my little boy, my whole outlook on life has changed and i realise that some things are just more important than work or money. I don't mean to be blase about it, especially if you work for yourself or are not in the financial position to take a long time off work. Its just that your health and well being are the most important things, otherwise you can't work and enjoy life at all.

Keep positive, you're nearer to feeling better now - think of it that way.
Let me know how you are getting on.

Sally x
Hi Corrine

I had the option of both and my surgeon was happy to do both. But thoracotomy gives them less of view once they are in the I was told that the incision is quite painful afterwards because its not on bone also I couldnt imagine wearing a bra on the scar it would take months.

The scar is nothing but a war wound, I have to point mine out to people usually I actually forget its even there.

I did ask the surgeon to keep it as low as possible and he did,

Glad to hear you op i s coming up and the moods your experiencing are normalI was the same. Just keep positive !!:D


take care

Fiona
Sally, thanks for the positive thoughts about health being a priority. I guess I have been finding it hard to do that with a busy life. I agree with you, that I think I'll be proud of my scar. I hope your surgery comes round soon. We may even have it around the same time!

All the discussions about the thoractomy on here have made me consider my options carefully. It's good to know that others have been given the choice too.

Thanks guys, I really appreciate your comments. Sometimes it's hard to ask the advice from others who can't understand how you feel.

Keep in touch.

Corinne
Hey guys!

I wrote on here a while back asking numerous questions, and have just recently read all the new threads on here, looks like there are a few of us in similar situations right now.

I have had a nightmare with the hospital by me, i have, in the last two weeks, gone into hospital twice, been through the whole bloods taken, overnight stay, starvation, prepared for theatre and then eventually been told that me operation had been cancelled. . . . Talk about upsetting! Worst thing was that last weds, (26th May) was the second time i was called in, and it was my birthday, so they ruined my 20th birthday for absolutly nothing, a waste of time!

They offered me another chance this week, but apparently said they were almost certain it would be cancelled again. so i told them i didnt want to bother with all that again, as it is a 2 hour drive from home to this hospital and it was costing my parents money in hotels they had booked and then had to cancel and lose money out on.

I am now hoping for a date sometime during the week of the 20th of june and hopefully it will all go ahead.

I cant believe i got so close to the operating theatre twice, to just been sent home.

Hope your all doing okay =)

Kirsty x
Hi Kirsty,

How awful... can't imagine how bad that must be to go through. All the mental preparation you have to go through as well as the physical.

Really wish you the best of luck for having your surgery this month.

Let us know how you get on.

All the best,

Corinne x
Hi

That is awful Kirsty. I can imagine a bit how you feel - just been thrown into turmoil myself. Got a phone call midday yesterday (Friday) - there's a chance there may be a cancellation on Monday - do i want to have my operation? I'll need to be in hospital on Sunday morning if i get the call on Sunday!

I was waiting for the call, but thought i'd have 2 weeks notice, not 2 days!!

Don't get me wrong, i want to have the operation (well - sort of!) but its just knocked me for 6, as i'm now running around like a headless chuck making sure i've got everything sorted. Having to leave things ready for my husband, my 11 month old and our animals, including a sick horse!!
Thankfully my mum has been on standby ready to leap into action and is currently packing her case to move in to help with my son - bless her!

Haven't actually thought about the operation itself - so i suppose thats a good thing.
Just hope it goes ahead now i'm all psyched up.

Will let you know!

Sally xx
Well - no operation this week.
Feel very deflated.
I know there was only a chance, with it only being a possible cancellation, but i felt all prepared - practically and mentally.
Never mind. Happen soon.

Sally x
What a nightmare Sally (and Kirsty). I'm sorry your operations didn't go ahead. To get yourself pysched up for major surgery then it doesn't happen must be really difficult I imagine. Hope you both get your operations quickly.

I think it's the not knowing and waiting that tortures you! Being messed around on top of all that is heart-wrenching, especially as you have so much to organise. The problem with the NHS (despite doing a great job when you finally get in for the op) is all the waiting lists, red tape, budget cuts and delays. Having worked for the NHS for several years, I have never been so frustrated with the system. Not sure what anyone elses experience is of waiting lists in different countries with private healthcare?

I was told I would have my operation before July. I then received a call last Thursday to say it would be the end of September at the earliest. This is because the hospital apparantly 'stopped the clock' on the 18 week pathway when I was referred to the surgical team from a cardiologist at my local hospital. I'm so frustrated, having started to make plans with work, family coming down to help out etc.

It all seems never ending. Very soon, we will all be looking back and laughing at our collective experiences, sew up and good as new!

Corinne
Hi everyone

Well - i'm now 7 days post op!!!

After the disappointment of the cancellation on the Sunday, i got a phone call last Tuesday morning to say they wanted me in there and then for my op on Wednesday!!

Needless to say it was a very mad rush to get childcare sorted and get into the hospital for pre-op tests, but we managed it and the operation was over and done with before i had time to think about anything!

I came out of hospital on Monday, 5 days later.
I'm stiff, sore and tired - but amazed at just what i can do already - as well as being thrilled to be back home with my little man!.

Any news about your ops Corinne and Kirsty?

I hope everyone is feeling well.

Sally xx
Hi Sally,

Great news! How you feeling now? Must have been a rush getting ready but it's good you're all done and dusted!

5 days in hospital isn't bad at all. Hope you're getting lots of rest and feeling better by the day.

I have had good news too, I got the call yesterday that my operation is next Wednesday. I'm running around at the moment trying to get everything sorted, business covered, family down etc!! Arghhhhh!

Will be so glad to have it all done. Must be a relief Sally. Let me know how you're getting on. Hope your surgery goes ok Kirsty, is it the 20th?

Corinne xx
Excellent news Sally!!

you take care, dont push yourself too hard and above all stay positive

Fiona xx
Hi!

Yes getting stronger, although still very tired.

I've got to go back to hospital tomorrow for an xray - i had a little fluid on my lungs and there was a slight pocket of air around my lung which happened when they took my drain out. They were not overly concerned (hence me coming home) as i've been up and moving around since Friday.

That's brilliant news Corinne!

It is a bit bonkers getting everything ready - you've just got to remember that the world won't stop if you haven't got everything in place by the time you go in - and you're not to worry about it either - YOU'RE the priority!

I hope your op is soon too Kirsty.

Good luck and best wishes to you both.

Sally xx
Hey guys!

Havent been on here in a while, but i am off into hospital tomorrow for op friday, only found out monday, because they had originally pushed me back 3 weeks because of the whole dirty theatre tray situation was ongoing, but then they called me up on monday to ask me to come in.

Hope everything is okay with you all, we've all ended up having our ops pretty close together really, seen as mine is now 3rd time lucky i really hope im not sent home again!

Speak to you hopefully after the operation =)

xxx
Hi guys.

Hope you are all doing well. I've lost track of who is having their op when! Good luck to those who have had theirs recently and to Kirsty for today.

I had my open heart surgery last Wednesday so now 9 days post op! Got home 2 days ago and feels good to be home. After a big fight to get in for my surgery, I got my wish and was done before July!

The last week or so feels like a blur and it's a great relief to have it done. I can honestly say that the wait for the operation was definitely the worst bit. I was quite sick with the anaesthetic for several days and took a while to get me on the right painkillers but otherwise, my recovery has been much better than I thought. It's taking a bit of getting used to being at home and I'm grateful for help from my mum, boyfriend and others. Simple things like opening the fridge door or sitting up in bed, have been a challenge!!

I have really appreciated all the posts and information on here. It means a lot to know others are going through the same thing. I was the only person under 70 on my ward, not that it was problem as I made some lovely friends!

Best of luck to everyone. As many have done before me, I am happy to answer any questions about the procedure!

Corinne x
[QUOTE=fiona366;3784213]Im 36 and have been told that I need to have my ASD closed by open heart surgery (im not a candidate for keyhole, I have two holes close together and a thin wall betwwen them).

I am looking for any advice on recovery from the surgery especially from any one with small children, I have two under the age of three and Im feeling anxious about not being able to pick them up and how long before I can?:(

Im currently very active and I jog most days, Im asympamatic and Im hopeing this means a quicker recovery:confused:

Well any advice would be gratefully received

Fiona[/QUOTE]

I am one who always believes in getting a second opinion. I do not know where you live but I personally had an ASD closure procedure successsfully completed without having open heart surgery and recovered within a couple of days. I really do not know what would make some people good candidates for an ASD closure by cath and what would cause other people to be bad cadidates for this procedure. But regardless, I would have a second opinion before I would have such an envasive high risk procedure such as open heart sugery. If you live anywhere near Jacksonville Florida I would suggest you seek a second opinion from First Coast Cardiovascular Institute. Every one of their doctors are top notch Physicians in their field and in my opinion they are truly the best when it comes to the cardiovascular system. They have worked true miracles where other providers have failed. That really is the best advice I can give, weigh out all your options and always seek a second opinion before putting your life in someones hands. You will be in my prayers, good luck and God Bless!

I really hopes this helps
Travis~





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