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Hormone Problems Message Board


Hormone Problems Board Index


I have had an ongoing hormonal issue for a while that has not been able to be fixed or found for the past five years. I am currently 21 years old and my problem has gotten progressively worse. I first had my period when I was 12 and instead of them getting more regular they became further apart. When I turned sixteen and was getting a period every 7-8 months my mom took me to the gynecologist to try to find out why I was having problems with my period. At that time when I got my period it was very painful and I had a mild problem with facial hair, and I was also tired all of the time. The doctor suggested PCOS, tested me for it, and put me on the pill. All my test results were normal. As my periods regulated with the pill my periods got more and more painful and they continued tests PCOS. It always came back normal including ultrasounds although the facial hair problem did go away. Then about three years ago it got much worse. I put on 40 pounds within a 4 month time span and was only 18 years old at the time. My face and stomach was the most noticeable as I gained all the weight in those areas, I got massive dark purple stretch marks, being tired all the time got worse, and I began having to pee so often I could not go longer than two hours at a time. No matter what I did to lose the weight nothing worked, no amount of exercise or diet worked. I tried everything from 800 calories a day to eating nothing but lean meat and vegetables. The most it ever did was make my skin glow. I finally got fed up and about a year and a half later I went and consulted with an endocrinologist who basically thought I was just fat. At the end of the visit he asked me if I had stretch marks and I said yes. He asked me to show him and replied, "Those are cushing's stretch marks, have you ever heard of cushing's disease?" My reply was no because I had never heard of it. He then said, "I highly doubt it's cushing's but I am still going to test that and your thyroid. I do not want to take you off the birth control to test for cushing's so take this pill of dexamethasone at 11 tonight and get your blood taken at exactly 8 AM the next morning. Follow a diet of 600-800 calories a day and eat 64 grams of protein a day and we will follow up." He gave me a whole meal plan that I followed strictly. The test results were normal and I still did not lose weight. Unfortunately I lost my health insurance and could not follow up. Within this period of time I gained another 20 pounds. Eventually I ran out of prescriptions in August 2014 and had to stop taking the birth control pill. I lost about 8 pounds on the scale and I did not get my period until November which I only spotted for one day and the facial hair situation returned, but much much worse. I also gained the weight back within two weeks every time I would lose it. I started to get extremely tired all of the time even worse than before and still could not lose any more weight. I got health insurance again in March and went to the gynecologist yet again. She assumed it was PCOS and ran more tests on my hormones and thryoid, and everything was normal yet again and diagnosed me with PCOS based on symptoms. She wanted to jump start my period with 10mg twice a day for five days and said I should get a period after finishing the last pill. Sure enough I did not get it on time, I got it about a week and a half after taking the last pill and it was some of the worst pain I've ever experienced. I did not get an actual period but spotting for about two days. The pain put me in the ER and all they did was give me a pain shot and sent me home. Since I have started the birth control again, I have felt worse. My muscles have ached to the point where it's affecting me doing my job and the people I work with have noticed. It has been difficult for me to get up from sitting down and the aches never stop. I started getting hot flashes as well and the facial hair problem is still going strong. I then went to the doctor yet again about the hot flashes. He tested my thyroid checked me for kidney cancer and examined my hormone levels. Everything came back normal yet again. About two weeks after I gained a large lump between my shoulders and the back of my neck and my hair started falling out every time I took a shower. I went to the doctor again and suggested he test me for cushing's and all he said was that it is too rare and my lump is a fatty tissue and that I had lost 8 pounds since the last time I was there and would not give me a referral to an endocrinologist. He did agree to do some more testing since my muscle aches were now a big issue. He prescribed me 10g of impramine to help with the hot flashes, frequent urination, and sleep (since I cannot sleep a full night without waking up having to pee.) My testosterone tested a little high and he tested my creatine kinase levels were high. He then referred me to an endocrinologist which I cannot see until November. Can you tell me what this indicates?
[QUOTE=wackedhormones;5372777]I have had an ongoing hormonal issue for a while that has not been able to be fixed or found for the past five years. I am currently 21 years old and my problem has gotten progressively worse. I first had my period when I was 12 and instead of them getting more regular they became further apart. When I turned sixteen and was getting a period every 7-8 months my mom took me to the gynecologist to try to find out why I was having problems with my period. At that time when I got my period it was very painful and I had a mild problem with facial hair, and I was also tired all of the time. The doctor suggested PCOS, tested me for it, and put me on the pill. All my test results were normal. As my periods regulated with the pill my periods got more and more painful and they continued tests PCOS. It always came back normal including ultrasounds although the facial hair problem did go away. Then about three years ago it got much worse. I put on 40 pounds within a 4 month time span and was only 18 years old at the time. My face and stomach was the most noticeable as I gained all the weight in those areas, I got massive dark purple stretch marks, being tired all the time got worse, and I began having to pee so often I could not go longer than two hours at a time. No matter what I did to lose the weight nothing worked, no amount of exercise or diet worked. I tried everything from 800 calories a day to eating nothing but lean meat and vegetables. The most it ever did was make my skin glow. I finally got fed up and about a year and a half later I went and consulted with an endocrinologist who basically thought I was just fat. At the end of the visit he asked me if I had stretch marks and I said yes. He asked me to show him and replied, "Those are cushing's stretch marks, have you ever heard of cushing's disease?" My reply was no because I had never heard of it. He then said, "I highly doubt it's cushing's but I am still going to test that and your thyroid. I do not want to take you off the birth control to test for cushing's so take this pill of dexamethasone at 11 tonight and get your blood taken at exactly 8 AM the next morning. Follow a diet of 600-800 calories a day and eat 64 grams of protein a day and we will follow up." He gave me a whole meal plan that I followed strictly. The test results were normal and I still did not lose weight. Unfortunately I lost my health insurance and could not follow up. Within this period of time I gained another 20 pounds. Eventually I ran out of prescriptions in August 2014 and had to stop taking the birth control pill. I lost about 8 pounds on the scale and I did not get my period until November which I only spotted for one day and the facial hair situation returned, but much much worse. I also gained the weight back within two weeks every time I would lose it. I started to get extremely tired all of the time even worse than before and still could not lose any more weight. I got health insurance again in March and went to the gynecologist yet again. She assumed it was PCOS and ran more tests on my hormones and thryoid, and everything was normal yet again and diagnosed me with PCOS based on symptoms. She wanted to jump start my period with 10mg twice a day for five days and said I should get a period after finishing the last pill. Sure enough I did not get it on time, I got it about a week and a half after taking the last pill and it was some of the worst pain I've ever experienced. I did not get an actual period but spotting for about two days. The pain put me in the ER and all they did was give me a pain shot and sent me home. Since I have started the birth control again, I have felt worse. My muscles have ached to the point where it's affecting me doing my job and the people I work with have noticed. It has been difficult for me to get up from sitting down and the aches never stop. I started getting hot flashes as well and the facial hair problem is still going strong. I then went to the doctor yet again about the hot flashes. He tested my thyroid checked me for kidney cancer and examined my hormone levels. Everything came back normal yet again. About two weeks after I gained a large lump between my shoulders and the back of my neck and my hair started falling out every time I took a shower. I went to the doctor again and suggested he test me for cushing's and all he said was that it is too rare and my lump is a fatty tissue and that I had lost 8 pounds since the last time I was there and would not give me a referral to an endocrinologist. He did agree to do some more testing since my muscle aches were now a big issue. He prescribed me 10g of impramine to help with the hot flashes, frequent urination, and sleep (since I cannot sleep a full night without waking up having to pee.) My testosterone tested a little high and he tested my creatine kinase levels were high. He then referred me to an endocrinologist which I cannot see until November. Can you tell me what this indicates?[/QUOTE]

Cushings should be tested again, and with high ck levels you should be tested for autoimmune diseases such as lupus, myositis. This would be done by a rheumatology Dr. I think you should be checked again for thyroid dysfunction including anti thyroid antibodies for Hashimotos disease.





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