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Immune Disorders Board Index
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... a mental image of being at the beach. The sand, the warmth of the sun, the breezes, the sound of the water and seagulls chirping. You hold those thoughts almost as one thought or feeling, to the exclusion of everything else. Do it for 10, 15 minutes or longer. It's free and you don't need any sun screen. ... (3 replies)
... It's not a normal thing for a 9 year old to have the type of symptoms your daughter is having.... and labeled as allergic response. I see it more as autoimmune, but she could also have allergies adding fuel. I also suggest you push for stool samples. ... (5 replies)
... This Dr. Should have done a biopsy with immunofluorescent studies a long time ago, but I would not trust him as his information is totally inaccurate. I would take your little girl to a pediatric rheumatologist and a new dermatologist who knows something about lupus. ... (5 replies)

... since this very well sounds autoimmune. A Rheumy is a good as place to start as you have a children's hospital near you? ... (5 replies)
... allergic reaction but that is what they will say and gave me eye drops. The drops made it worst so we went to normal visine. Well 10 days into her eye thing and as that was tapering down she started getting a rash on her torso and legs. ... (5 replies)
... I was diagnosed with CVID in December 2014 after years of illness. I had been diagnosed in 2004 with sarcoidosis as well. I started treatment using HyQvia, which is a subQ treatment. I have been ramping up and got my 3rd treatment on January 16th. ... (0 replies)
CVID Support
Sep 6, 2017
... My fatigue just keeps getting worse. If I'm not on antibiotics, I get respiratory infections, so I don't think the IVIG is working yet after six treatments. And now I am getting the pain as well, in all my joints and some tingling/numbness going on with my fingers. I don't know what that is from. I don't have the best doctors. I have other autoimmune issues as well,... (2 replies)
CVID Support
Sep 6, 2017
... although docs keep telling me I have some sort of autoimmune as well but my bloodwork is not currently supporting it. ... (2 replies)
Jun 3, 2017
... ng with fatigue, depression and sky high anxiety which landed me in the er several times. Until I was diagnosed and put on meds. Do you take hormone therapy such as synthroid or levothyroxine? ... (2 replies)
... Hi Everyone, I have hashimoto's and being treated since July of 2016. However, have endured thigh and hip pain for at least 3 years now. Initially was an occasional "twinge" in the legs when rising etc and has progressed to chronic daily stiffness, muscle burning pain in actual thigh and shoulders accompanied my weakness and "aching" throbbing pain in shins, ankles back of... (0 replies)
... normal, and my doctor didnt like one of my armpit nodes and had a biopsy, it turned out to be a lipoma. Surgeon said he did not remove additional nodes as he didnt thought it was necessary. ... (0 replies)
MS/PML and Tysabri
Nov 11, 2016
... Hello everyone. My 36 year old sister is currently in the hospital suffering from PML. She was on tysabri for 9 years and unfortunately as we were about to take her off ( her JCV levels were increasing), we did an MRI and they found PML. I am scared ( I am the younger sister 33 years old). She has taken a drastic downturn and has been in the hospital since Saturday. She can... (1 replies)
... fall below. My knee joints began to get very stiff as I proceeded and I was almost unable to make it back up the stairs. It was almost like partial paralysis. ... (1 replies)
ANA Test results
Jun 14, 2016
... how improvement. UCTD is often the diagnosis when a patient shows signs of a connective tissue disease but not enough signs to point to a more specific one, such as scleroderma, lupus, etc. Most patients do not progress to a more specific disease but that can occasionally happen. ... (1 replies)
... muscle pains from time to time which lasted sometimes up to a week. I also had sore throat when I was having joint pains as well. ... (1 replies)
... my first post here on this site. I have been sick for about 8 months now. 8 months ago I was diagnosed with strep, and came up positive for it a month after that as well. I was recently tested again, and I no longer have strep. ... (0 replies)
... Since, as you have said, "these are all new recent discoveries", I would wait for more research. ... (3 replies)
... Very intetesting. Thank you. Seronegative meaning negative to Rheumatoid Factor, SSA/SSB, etc. (3 replies)
... MWS..when you stated seronegative, what does that mean.. seronegative for what Autoimmune disorder is probably a complex disorder, but a recent research finding indicated that Cytomegalovirus may be one of the main culprits In my opinion, one could test for CMV IgG and IgM.. to see if there is a recent reactivation or ongoing CMV infection The other "test" that might... (3 replies)
Weak immune system
Apr 14, 2016
... Some people count "dairy" as a food group and some don't. Do you eat dairy? ... (3 replies)

Associated Tags: autoimmune, autoimmune disorders, chronic fatigue syndrome, cvid, epstein barr (ebv), fibromyalgia, immune deficiency, ivig

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