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Immune Disorders Board Index
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... I was diagnosed with CVID in December 2014 after years of illness. I had been diagnosed in 2004 with sarcoidosis as well. I started treatment using HyQvia, which is a subQ treatment. I have been ramping up and got my 3rd treatment on January 16th. ... (0 replies)
CVID Support
Sep 6, 2017
... My fatigue just keeps getting worse. If I'm not on antibiotics, I get respiratory infections, so I don't think the IVIG is working yet after six treatments. And now I am getting the pain as well, in all my joints and some tingling/numbness going on with my fingers. I don't know what that is from. I don't have the best doctors. I have other autoimmune issues as well,... (2 replies)
CVID Support
Sep 6, 2017
... although docs keep telling me I have some sort of autoimmune as well but my bloodwork is not currently supporting it. ... (2 replies)

Jun 3, 2017
... ng with fatigue, depression and sky high anxiety which landed me in the er several times. Until I was diagnosed and put on meds. Do you take hormone therapy such as synthroid or levothyroxine? ... (2 replies)
... Hi Everyone, I have hashimoto's and being treated since July of 2016. However, have endured thigh and hip pain for at least 3 years now. Initially was an occasional "twinge" in the legs when rising etc and has progressed to chronic daily stiffness, muscle burning pain in actual thigh and shoulders accompanied my weakness and "aching" throbbing pain in shins, ankles back of... (0 replies)
... normal, and my doctor didnt like one of my armpit nodes and had a biopsy, it turned out to be a lipoma. Surgeon said he did not remove additional nodes as he didnt thought it was necessary. ... (0 replies)
MS/PML and Tysabri
Nov 11, 2016
... Hello everyone. My 36 year old sister is currently in the hospital suffering from PML. She was on tysabri for 9 years and unfortunately as we were about to take her off ( her JCV levels were increasing), we did an MRI and they found PML. I am scared ( I am the younger sister 33 years old). She has taken a drastic downturn and has been in the hospital since Saturday. She can... (1 replies)
... fall below. My knee joints began to get very stiff as I proceeded and I was almost unable to make it back up the stairs. It was almost like partial paralysis. ... (1 replies)
ANA Test results
Jun 14, 2016
... how improvement. UCTD is often the diagnosis when a patient shows signs of a connective tissue disease but not enough signs to point to a more specific one, such as scleroderma, lupus, etc. Most patients do not progress to a more specific disease but that can occasionally happen. ... (1 replies)
... muscle pains from time to time which lasted sometimes up to a week. I also had sore throat when I was having joint pains as well. ... (1 replies)
... my first post here on this site. I have been sick for about 8 months now. 8 months ago I was diagnosed with strep, and came up positive for it a month after that as well. I was recently tested again, and I no longer have strep. ... (0 replies)
... Since, as you have said, "these are all new recent discoveries", I would wait for more research. ... (3 replies)
... Very intetesting. Thank you. Seronegative meaning negative to Rheumatoid Factor, SSA/SSB, etc. (3 replies)
... MWS..when you stated seronegative, what does that mean.. seronegative for what Autoimmune disorder is probably a complex disorder, but a recent research finding indicated that Cytomegalovirus may be one of the main culprits In my opinion, one could test for CMV IgG and IgM.. to see if there is a recent reactivation or ongoing CMV infection The other "test" that might... (3 replies)
Weak immune system
Apr 14, 2016
... Some people count "dairy" as a food group and some don't. Do you eat dairy? ... (3 replies)
... Inflammation does not happen for no reason. And as far as I know, drugs do not cure anything. ... (3 replies)
... My wbc is at 12, my sed rate is 30 and my crp is at 17.5. All elevated as per my gp. My mom has RA and I have shown some symptoms off and on for a few years. ... (0 replies)
... gerbear, My daughter has almost the exact diagnosis of yours: POTS, poss. Ehlers danlos, MAST cell activation syndrome and now her bloodwork ANA is very positive. I hope you get some answers, it's so hard when our children don't have a cut and dry exact diagnosis, and especially when there are multiple health issues. Here's my child's history if it helps: Tachycardia... (6 replies)
Jan 29, 2016
... ish, but it was as if there were in wee pools of blood gathered in small pockets, no more than the size of a fingertip. ... (0 replies)
... against foreign invaders such as bacteria and viruses. This combo leads to manifestations of autoimmune antibodies like ANA and symptoms related, plus the tendency to get frequent infections. ... (6 replies)

Associated Tags: autoimmune, autoimmune disorders, chronic fatigue syndrome, cvid, epstein barr (ebv), fibromyalgia, immune deficiency, ivig

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