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Immune Disorders Board Index
Pages: 1 2 Showing 1 - 20 of 31 for cvid and fatigue. (0.008 seconds)


... I was recently diagnosed with CVID (IgG 4.15 g/l; IgA 0.22 g/l; IgM 0.40 g/l, with a poor vaccination response to pneumococcus (1 out of 9)). My doctor offered me to start with life-long immunoglobulin therapy (IVIG or SCIG). Iím a bit hesitant wether or not to start, because the last few years I havenít had a lot of respiratory infections. My main complaint is terrible... (0 replies)
... ired after the infusions because the antibodies were fighting a lot of tiny infections all over your body that you didn't even know you had. A lot of people with CVID say that the first few infusions actually can make you feel worse, and then you start feeling better in a few months to a year. ... (91 replies)
Cvid
Apr 12, 2009
... My son who is 51 yrs old and recently diagnosed with cvid. He also has sarcoidosis. He suffers with frequent sinus infections and fatigue. Can anyone explain how to pay for treatments. ... (4 replies)

Cvid
May 10, 2009
... Hi, I also have CVID and I'm 28. I was diagnosed when I was 15. ... (4 replies)
CVID Support
Sep 6, 2017
... My pain and fatigue are my major complaints, and with winter coming I am dreading what is to come. I am very cold sensitive and winters are the hardest pain wise. ... (2 replies)
... Your schedule is REALLY heavy. Anyone would be tired on it. I don't know a lot about CVID yet but enough. If you can cut your schedule down, you'd be better off. ... (91 replies)
... reatments every 4 wks. Unlike you however, they do make me feel so much better after I have them. Could you possibly be getting too much or too little. I am 5'1" and weigh 120 lbs. ... (91 replies)
Cvid
Apr 13, 2009
... My son has insurance through his father and then has disability insurance through the state that picks up the rest. I'm not sure what else to try. ... (4 replies)
Cvid
Apr 13, 2009
... He is single and finds his job rewarding. He is looking into whether his insurance has a cap on how long his insurance will pay. ... (4 replies)
... I was recently diagnosed with CVID after YEARS of illnesses and unnecessary surgiers probably caused by the CVID. ... (91 replies)
... ommended to get your child an IEP. Likely he will not feel well for at least a day after the infusions and, if he is on a 4 week infusion schedule he may suffer fatigue and infections during the 4th week because IVIG has a 3 week half life. That means he is at his lowest on the 4th week. ... (5 replies)
... sever fatigue only. ... (91 replies)
... My son already has an iep for other unrelated issues....so we could amend this document if we need to. His school has been very supportive and anxious to help in any way. So far so good. ... (5 replies)
... I am FINALLY doing very well on it. For the first 6 weeks it was really hard. I was having major fatigue after and couldn't see the reason to do subq over ivig if I wasn going to be sick EVERY weekend versus once a month. ... (91 replies)
... There aren't any other docs. I've taken the advice of some other posters on here and reached out to my Primary doc to get a referral to see an immunologist out of town, with no luck, he actually completely ignored my email. ... (91 replies)
... once a week, and in my case it takes about six hours. ... (91 replies)
Cvid
Feb 12, 2007
... I don't know what to tell you about the tetanus and the pneumovax. I had not had a tetanus shot for several years and had never had the pneumovax. To answer your questions, I haven't been really ill for a long time, but I have had extreme fatigue since early 2004. ... (19 replies)
CVID Support
Sep 6, 2017
... My fatigue just keeps getting worse. If I'm not on antibiotics, I get respiratory infections, so I don't think the IVIG is working yet after six treatments. ... (2 replies)
... I was diagnosed with CVID and been doing weekly IGg infusions for about 14 months. Initially, I felt more energetic, but still had frequent sinus infections. ... (2 replies)
Cvid
Oct 1, 2010
... I will get some answers, I luckily have good insurance and I will keep going until I get an answer and find someone with a brain. ... (6 replies)


Associated Tags: cvid, fatigue, iga, igg, immune deficiency, ivig

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