It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Message Board


Immune Disorders Board Index
Pages: 1 2 Showing 1 - 20 of 30 for cvid and fatigue. (0.122 seconds)


... This is a little long, so please bear with me. I have CVID, along with selective IgA, IgM and IgE deficiencies. ... (0 replies)
CVID Support
Sep 6, 2017
... My pain and fatigue are my major complaints, and with winter coming I am dreading what is to come. I am very cold sensitive and winters are the hardest pain wise. ... (2 replies)
Cvid
May 10, 2009
... Hi, I also have CVID and I'm 28. I was diagnosed when I was 15. ... (4 replies)

Cvid
Apr 12, 2009
... My son who is 51 yrs old and recently diagnosed with cvid. He also has sarcoidosis. He suffers with frequent sinus infections and fatigue. Can anyone explain how to pay for treatments. ... (4 replies)
... ired after the infusions because the antibodies were fighting a lot of tiny infections all over your body that you didn't even know you had. A lot of people with CVID say that the first few infusions actually can make you feel worse, and then you start feeling better in a few months to a year. ... (91 replies)
CVID Support
Sep 6, 2017
... My fatigue just keeps getting worse. If I'm not on antibiotics, I get respiratory infections, so I don't think the IVIG is working yet after six treatments. ... (2 replies)
... I was diagnosed with CVID and been doing weekly IGg infusions for about 14 months. Initially, I felt more energetic, but still had frequent sinus infections. ... (2 replies)
... tions for you from the pieces you have shared. Your peripheral neuropathy could be from a few things other than folic acid. Vitamin B12 deficiency also causes PN and macrocytosis. Hypothyroidism causes PN. Alcohol in excess caues PN and macrocytosis. Autoimmune diseases like lupus cause PN too. Lupus and hypogamma... ... (26 replies)
... tions for you from the pieces you have shared. Your peripheral neuropathy could be from a few things other than folic acid. Vitamin B12 deficiency also causes PN and macrocytosis. Hypothyroidism causes PN. Alcohol in excess caues PN and macrocytosis. Autoimmune diseases like lupus cause PN too. Lupus and hypogamma... ... (26 replies)
... My son already has an iep for other unrelated issues....so we could amend this document if we need to. His school has been very supportive and anxious to help in any way. So far so good. ... (5 replies)
... ommended to get your child an IEP. Likely he will not feel well for at least a day after the infusions and, if he is on a 4 week infusion schedule he may suffer fatigue and infections during the 4th week because IVIG has a 3 week half life. That means he is at his lowest on the 4th week. ... (5 replies)
... I am FINALLY doing very well on it. For the first 6 weeks it was really hard. I was having major fatigue after and couldn't see the reason to do subq over ivig if I wasn going to be sick EVERY weekend versus once a month. ... (91 replies)
... Your schedule is REALLY heavy. Anyone would be tired on it. I don't know a lot about CVID yet but enough. If you can cut your schedule down, you'd be better off. ... (91 replies)
Cvid
Oct 1, 2010
... I will get some answers, I luckily have good insurance and I will keep going until I get an answer and find someone with a brain. ... (6 replies)
... Hi, no one has responded yet so I thought I would welcome you. This is a great place to get help and advice. ... (2 replies)
... There aren't any other docs. I've taken the advice of some other posters on here and reached out to my Primary doc to get a referral to see an immunologist out of town, with no luck, he actually completely ignored my email. ... (91 replies)
... as my body does not produce antibodies and without it I get sick. I have recently had a Pulmonary Embolism and they have found that I have Antiphosopholipid Syndrome and probably Lupus. ... (4 replies)
... sever fatigue only. ... (91 replies)
... once a week, and in my case it takes about six hours. ... (91 replies)
... reatments every 4 wks. Unlike you however, they do make me feel so much better after I have them. Could you possibly be getting too much or too little. I am 5'1" and weigh 120 lbs. ... (91 replies)


Associated Tags: cvid, iga, igg, immune deficiency, immune system, ivig, neurological

Pages: 1 2

All times are GMT -7. The time now is 07:42 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!