It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Message Board

Immune Disorders Board Index
Pages: 1 2 Showing 1 - 20 of 32 for cvid fatigue. (0.003 seconds)

... This is a little long, so please bear with me. I have CVID, along with selective IgA, IgM and IgE deficiencies. In the last year I've had joint pain (but no stiffness), fatigue, and elevated alkaline phosphatase that's coming from my bones. I tested negative for rheumatoid arthritis, although I have almost no immune system, so I often get false negatives on any tests that... (0 replies)
... What is CVID, fatigue? (1 replies)
... CVID - Common Variable Immunodeficiency - happens to about 1 in ever 750,000. If your'e referring to my post, I was trying to see if anyone else was experiencing fatigue that has this condition ;) (1 replies)

CVID Support
Sep 6, 2017
... My fatigue just keeps getting worse. If I'm not on antibiotics, I get respiratory infections, so I don't think the IVIG is working yet after six treatments. ... (2 replies)
CVID Support
Sep 6, 2017
... My pain and fatigue are my major complaints, and with winter coming I am dreading what is to come. I am very cold sensitive and winters are the hardest pain wise. ... (2 replies)
... Hi kelli..... Thanks very much for you note. It is so nice to hear from people that " get it"! My son already has an iep for other unrelated we could amend this document if we need to. His school has been very supportive and anxious to help in any way. So far so good. The ivig went I'm thinking that we'll stick with that for now especially... (5 replies)
... ommended to get your child an IEP. Likely he will not feel well for at least a day after the infusions and, if he is on a 4 week infusion schedule he may suffer fatigue and infections during the 4th week because IVIG has a 3 week half life. That means he is at his lowest on the 4th week. ... (5 replies)
... I am FINALLY doing very well on it. For the first 6 weeks it was really hard. I was having major fatigue after and couldn't see the reason to do subq over ivig if I wasn going to be sick EVERY weekend versus once a month. ... (91 replies)
... Your schedule is REALLY heavy. Anyone would be tired on it. I don't know a lot about CVID yet but enough. If you can cut your schedule down, you'd be better off. ... (91 replies)
Oct 1, 2010
... Personally, I hate to be negative but I think we will run into a brick wall. I am already so frustrated with the Doctors I am running into. I keep hearing an negative ANA means you are fine.....HELLO !!!! ? I will get some answers, I luckily have good insurance and I will keep going until I get an answer and find someone with a brain. I have been sick since 9/13,... (6 replies)
... There aren't any other docs. I've taken the advice of some other posters on here and reached out to my Primary doc to get a referral to see an immunologist out of town, with no luck, he actually completely ignored my email. The reactions are not nearly as severe as they were in the beginning. I do feel pretty horrible that whole night. Then Saturday I'm in bed with an... (91 replies)
... sever fatigue only. ... (91 replies)
... I hope my story will show you that you're not alone in what you've been experiencing with IVIG, and - more important - that there is a far less toxic alternative!! So here it is: After being diagnosed with PI more than a decade ago, I, too, started IVIG, first every 28 days, then every 21 - and I, too, had horrific reactions: fever, severe flulike symptoms, hallucinations,... (91 replies)
... r. has determined that every 4 wks is right for me. I did have the same symptoms you are describing when I was first diagnosed with this in 1992. The really bad fatigue lasted 7 years and now I am much better than I was then. Please write back and we can talk some more about our symptoms and see if we can help one another. ... (91 replies)
May 10, 2009
... Hi, I also have CVID and I'm 28. I was diagnosed when I was 15. ... (4 replies)
Apr 13, 2009
... o fatigue. Sarcoidosis also can cause fatigue. I read where others with cvid have had good results from subc infusions and this is suppose to be cheaper. I'm wondering what the difference in cost is. ... (4 replies)
Apr 13, 2009
... I did notice your son has fatigue issues. when I read about CVID, many people mention fatigue, but my son's immunologist does not confirm that this is a common element of the disease. ... (4 replies)
Apr 12, 2009
... My son who is 51 yrs old and recently diagnosed with cvid. He also has sarcoidosis. He suffers with frequent sinus infections and fatigue. Can anyone explain how to pay for treatments. His physician wants to start him on transfusions which he was told will cost $16,000 a month. He has insurance which covers 80%. He would not be able to come up with the $3200 a month so is not... (4 replies)
... ired after the infusions because the antibodies were fighting a lot of tiny infections all over your body that you didn't even know you had. A lot of people with CVID say that the first few infusions actually can make you feel worse, and then you start feeling better in a few months to a year. ... (91 replies)
... I was recently diagnosed with CVID after YEARS of illnesses and unnecessary surgiers probably caused by the CVID. ... (91 replies)

Associated Tags: cvid, iga, igg, immune deficiency, ivig

Pages: 1 2

All times are GMT -7. The time now is 10:48 PM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!