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Immune Disorders Board Index
Pages: 1 2 3 4 5 6 7 8 9 10 11 ... 16Showing 1 - 20 of 329 for cvid. (0.001 seconds)

CVID Support
May 22, 2017
... Fellow Zebras? Anyone out there with CVID? (Common Variable Immune Deficiency) I just had my 3rd treatment and it would be nice to chat with people going through the same thing. (2 replies)
... I don't know if you are still reading this board. I was just diagnosed with CVID and am about to have my 2nd treatment. I have had a hard time breathing for two years before my diagnosis. ... (1 replies)
... I was wondering if anyone with CVID has had similar issues? ... (1 replies)

... I was just diagnosed last year with IgA deficiency. I have systemic lupus and sjogrens syndrome. I have the anti-IgA antibody. How common is it for IgA to convert to CVID? Any thoughts would be welcomed. Thanks! (0 replies)
Cvid information
Feb 7, 2014
... n this forum and I am glad that I have finaly found a thread were I can get information! I am 26 years old and I seek information about cvid.Does anybody know if cvid can start during childhood cousing lots of illnesses but get better during adulthood? ... (0 replies)
CVID and lymphoma
Dec 18, 2013
... CVID is very frightening and difficult to understand. Do you ever feel like doctors are just collecting data from you not really treating the problem ? (9 replies)
CVID and lymphoma
Dec 18, 2013
... (9 replies)
... My wife was diagnosed with COPD about 10 years ago. She has been house bound and on oxygen for about 5 years. Recently we found out she has CVID and began infusions 3 days ago. We realize the COPD will not go away but hope home infusions will lead to a better quality of life. ... (0 replies)
... nized Mark in Cleveland so I thought I'd sign up. Finding others with similar challenges always has rewards.I currently live in Phoenix with my daughter, was dx CVID over 6 years ago, met a lot of others with this dx both on internet and in person. We are a courageous lot!! ... (0 replies)
... My mother had CVID and sarcoid lupus. She would get sores in nose. ... (1 replies)
... Does anybody out there know if there is a link between CVID and multiple myeloma? ... (0 replies)
... HA ya thats low. There are some people that never get sick and only have gut issues. I also know people who were diagnosed with CVID after finding out about a lung disease. Thats the variable in Common Variable Immune Deficiency. ... (3 replies)
... Did you fail the vaccine challenge?? Because your IGG is normal. Your IGA on the other hand is QUITE low and more indicative of Selective IGA deficiency which could cause gut issues and more frequent infections than the average person (3 replies)
... Anybody ever dealt with CVID and stomach issues but not having any illness? ... (3 replies)
... I have never posted before. I was diagnosed a year ago with CVID which I can deal with because I am on IVIG, but I have neutrophil and platelet problems that no doctors have apparently seen before. ... (2 replies)
CVID Questions
Apr 21, 2012
... They shouldn't be checking for antibodies to flu. I think my tetanus was normal and my pneumonia was low or no antibody response. Its only required that you fail (low or no response) to one (if I remember correctly). The trick here is the word "variable" in the disease name. It varies in ALL of us. Some never get sick and only have tummy issues. Some are sick... (4 replies)
CVID Questions
Apr 20, 2012
... Does CVID progress, e.g. is it progressive disease, or if you have a mild case, is it likely to stay mild? ... (4 replies)
... Its called GLILD (Granulomatous Lymphocytic Intersitial Lung Disease). It happens to less than 20% in those of us with CVID. They told me if I get sick I can die. Which I find comical because, well I have CVID :) (9 replies)
... Yes as have I. I developed arthritis at 37 literally OVERNIGHT. Woke up and couldn't close my hands. Then came the deadly lung disease caused by CVID. Now, I have granulomas too numerous to count in my abdomen and have to meet with a surgeon next week to discuss a biopsy. So, trust me, I GET it. I am only 40 with an 8 year old daughter a full time job and NO local... (9 replies)
... one who looks at ALL facets. I tend to agree with your doctor, why waste a precious life worrying about "what if's". Many people with CVID live a very normal life without developing anything. ... (9 replies)

Associated Tags: cvid, immune deficiency, ivig

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