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Immune Disorders Board Index
Pages: 1 2 3 4 5 6 7 8 9 10 11 ... 17Showing 1 - 20 of 330 for cvid. (0.000 seconds)


... I was recently diagnosed with CVID (IgG 4.15 g/l; IgA 0.22 g/l; IgM 0.40 g/l, with a poor vaccination response to pneumococcus (1 out of 9)). My doctor offered me to start with life-long immunoglobulin therapy (IVIG or SCIG). Iím a bit hesitant wether or not to start, because the last few years I havenít had a lot of respiratory infections. My main complaint is terrible... (0 replies)
... if not, cvid diagnosis. ... (2 replies)
... Your schedule is REALLY heavy. Anyone would be tired on it. I don't know a lot about CVID yet but enough. If you can cut your schedule down, you'd be better off. ... (91 replies)

Cvid
Mar 13, 2012
... I have CVID and have developed a rare and potentially deadly lung disease from it. I live a very normal life, work full time, single mom, own my own home. ... (8 replies)
... ly with an update. I am now on Hizentra and doing very well on it. I hardly ever get sick anymore. I did, however, get diagnosed with a lung disease caused by CVID which kind of came as a shock because I wasn't aware I could develop these things 1. Since I was on treatment and 2. ... (91 replies)
... Sorry but I have to respond. you are right when you say, "People with CVID can have spleen, pancreas, gallbladder and liver problems." However they also can have broken legs, cuts on their fingers and any other illness. ... (91 replies)
... You guys have always helped me out with my CVID and now I need your assistance again. ... (0 replies)
... I don't know if you are still reading this board. I was just diagnosed with CVID and am about to have my 2nd treatment. I have had a hard time breathing for two years before my diagnosis. ... (1 replies)
... Hi Kelli1b, I am 25 and was just diagnosed with CVID. I have had quite a few lung infections, but I have also been to the ER alot for lung pain not associated with infection. Also, nodules were found in my CT-Scan as well. My immunologist mentioned GLILD, but I have not been tested for it. I was just wondering what GLILD is and what the symptoms are? There is not alot of... (91 replies)
Cvid information
Feb 7, 2014
... n this forum and I am glad that I have finaly found a thread were I can get information! I am 26 years old and I seek information about cvid.Does anybody know if cvid can start during childhood cousing lots of illnesses but get better during adulthood? ... (0 replies)
... one who looks at ALL facets. I tend to agree with your doctor, why waste a precious life worrying about "what if's". Many people with CVID live a very normal life without developing anything. ... (9 replies)
... not significant. This same source told me that for CVID the IGA MUST be below normal. So this all sounds like good news in my case. ... (2 replies)
... ired after the infusions because the antibodies were fighting a lot of tiny infections all over your body that you didn't even know you had. A lot of people with CVID say that the first few infusions actually can make you feel worse, and then you start feeling better in a few months to a year. ... (91 replies)
CVID support......
Nov 24, 2006
... I am a female 58 years old and was diagnosed 4 years ago. I have done a lot of research on the subject of CVID sinced diagnosed. I was surprised that your husband's doctors attribute his CVID to his military experience. ... (6 replies)
... I was wondering if anyone with CVID has had similar issues? ... (1 replies)
CVID and lymphoma
Dec 18, 2013
... (9 replies)
... In doing research, CVID can be viewed as an "umbrella" with RA, lupus, and lymphoma under the umbrella. Has anyone else heard this? ... (9 replies)
... Hi, I came across your message while searching for a doctor to treat my CVID in Houston. You mentioned that you like your doctor. Does she have lots of experience with CVID? ... (91 replies)
... free to private message me if you would like pics of the needles. We also have a fabulous support group too if you are interested. We even have some parents of cvid kids on there. Good luck. ... (5 replies)
... My 17 yr old son has CVID. His immunologist gave me a prescription for an antiviral called relenza, with instructions to start taking it if he is exposed to H1N1 or if he shows any symptoms. So far we haven't needed it. (2 replies)


Associated Tags: antivirals, cvid, cvid and h1n1, fatigue, iga, igg, immune deficiency, ivig

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