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Immune Disorders Board Index
Pages: 1Showing 1 - 10 of 10 for cvids. (0.000 seconds)


CVID getting worse
Jul 31, 2004
... e asthma and degenerative arthritis. I just keep trying to do my best whatever comes my way. It is my understanding that the bowel type problems generated from CVIDS are something that the IVIG won't help. I use a lot of lomotil and try to do my best with diet choices. Some days are not so bad, others are miserable. ... (3 replies)
CVID getting worse
Jul 28, 2004
... Hi, I'm a retired RN also. I have CVIDS and MS. What symptoms are getting worse? ... (3 replies)
... hematologist to diagnose the CVIDS. And now, with the appropriate treatments I am feeling the best that I have in years. Yes, the MS is progressing, and the CVIDS will never be cured, but I am getting some of the appropriate treatments. ... (16 replies)

Anyideas
Jun 12, 2004
... I thought you said CFIDS. What exactly is CVIDS? (4 replies)
Anyideas
Jun 12, 2004
... visit the chronic fatigue site on this board (4 replies)
Anyideas
Jun 11, 2004
... MY son James has CVIDS he is on IVIG but before he went on to this a hole load of tests where of course to find the problem and on test the doc has never answerd properly is "It was intresting reading that his HLA-DR posative cells were less than 1%." This was taken form a letter written by his present immune doc to a specialist pead center and it was thier reply letter... (4 replies)
... Just reading through here again and find that so many of us have so much in common! I have MS and CVIDS and many of the other "things" that those things cause. ... (52 replies)
... There are a lot of Neuro guys out there that really don't have a clue about MS. I have MS and CVIDS so can answer some questions about both. Keep us posted! ... (4 replies)
... I know how frustrated that you must feel. But don't give up! Start with a few basics. Are you eating a well balanced diet in appropriate portions? Is you wt. within normal limits. Are you getting 6-8 hrs of sleep at night? Do you drink 8-10 glasses of water a day? Do you do any kind of exercise? You know, all the regular things that they tell us to do. If you come... (16 replies)
I am new
Apr 19, 2004
... Just found this board when I was looking for info on Chronic Inflammatory Demyelinating Polyradiculoneuropathy. My husband has just been diagnosed with it. I have MS and hypogammaglobulinemia (CVIDS). I know we sound like walking medical dictionaries, but actually we are just regular people. Would love to share with some others with the same problems. Penny (2 replies)




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