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Immune Disorders Board Index
Pages: 1 2 Showing 1 - 20 of 31 for fatigue and cvid. (0.182 seconds)

... I was recently diagnosed with CVID (IgG 4.15 g/l; IgA 0.22 g/l; IgM 0.40 g/l, with a poor vaccination response to pneumococcus (1 out of 9)). My doctor offered me to start with life-long immunoglobulin therapy (IVIG or SCIG). Iím a bit hesitant wether or not to start, because the last few years I havenít had a lot of respiratory infections. My main complaint is terrible... (0 replies)
... This is a little long, so please bear with me. I have CVID, along with selective IgA, IgM and IgE deficiencies. ... (0 replies)
... My son already has an iep for other unrelated we could amend this document if we need to. His school has been very supportive and anxious to help in any way. So far so good. ... (5 replies)

... ommended to get your child an IEP. Likely he will not feel well for at least a day after the infusions and, if he is on a 4 week infusion schedule he may suffer fatigue and infections during the 4th week because IVIG has a 3 week half life. That means he is at his lowest on the 4th week. ... (5 replies)
... Your schedule is REALLY heavy. Anyone would be tired on it. I don't know a lot about CVID yet but enough. If you can cut your schedule down, you'd be better off. ... (91 replies)
... reatments every 4 wks. Unlike you however, they do make me feel so much better after I have them. Could you possibly be getting too much or too little. I am 5'1" and weigh 120 lbs. ... (91 replies)
... I was recently diagnosed with CVID after YEARS of illnesses and unnecessary surgiers probably caused by the CVID. ... (91 replies)
CVID Support
Sep 6, 2017
... My fatigue just keeps getting worse. If I'm not on antibiotics, I get respiratory infections, so I don't think the IVIG is working yet after six treatments. ... (2 replies)
CVID Support
Sep 6, 2017
... My pain and fatigue are my major complaints, and with winter coming I am dreading what is to come. I am very cold sensitive and winters are the hardest pain wise. ... (2 replies)
... low vitamin D, fatigue and hypogammaglobulinemia discovered from a neurological blood workup. Several years ago, I had low D, the lowest the Dr. said he had ever seen. ... (26 replies)
... I am FINALLY doing very well on it. For the first 6 weeks it was really hard. I was having major fatigue after and couldn't see the reason to do subq over ivig if I wasn going to be sick EVERY weekend versus once a month. ... (91 replies)
Oct 1, 2010
... I will get some answers, I luckily have good insurance and I will keep going until I get an answer and find someone with a brain. ... (6 replies)
... Hi, no one has responded yet so I thought I would welcome you. This is a great place to get help and advice. ... (2 replies)
... There aren't any other docs. I've taken the advice of some other posters on here and reached out to my Primary doc to get a referral to see an immunologist out of town, with no luck, he actually completely ignored my email. ... (91 replies)
... as my body does not produce antibodies and without it I get sick. I have recently had a Pulmonary Embolism and they have found that I have Antiphosopholipid Syndrome and probably Lupus. ... (4 replies)
... sever fatigue only. ... (91 replies)
... once a week, and in my case it takes about six hours. ... (91 replies)
May 10, 2009
... Hi, I also have CVID and I'm 28. I was diagnosed when I was 15. ... (4 replies)
Apr 13, 2009
... He is single and finds his job rewarding. He is looking into whether his insurance has a cap on how long his insurance will pay. ... (4 replies)
Apr 13, 2009
... My son has insurance through his father and then has disability insurance through the state that picks up the rest. I'm not sure what else to try. ... (4 replies)

Associated Tags: cvid, fatigue, iga, igg, immune deficiency, immune system, ivig, neurological

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