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Immune Disorders Board Index
Pages: 1 2 3 4 5 6 Showing 61 - 80 of 117 for ivig infusion. (0.000 seconds)


... were at 250 before the 1st infusion and 526 after ONE infusion. I was sick as heck for 3 days after both, then totally fine AND did not get SICK. HELLO am I missing something? ... (91 replies)
... I have been getting it for 26 years and never had a problem with it until my health has gotten worse in the past 6 months. Slowing the infusion down will help. they call it an aseptic meningitis headache caused by the IVIG and it takes time to process and attach itself into your body. ... (5 replies)
... I have been receiving IVIG treatments for just over 2 years. ... (5 replies)

... My blood pressure always drops quite low also. One thing my immunologist won't budge on though is the infusion rate. I get mine at 60, and it is definitely an all day affair. But I have realized, that at 60, the side effects are very minimal....for me atleast. ... (91 replies)
... I got it every 4 weeks. 3 probably would have been better. After 2 years my levels never got above 700. After one month of scig the were at almost 1000! I was shocked honestly. I was getting...omg how much was I getting? lol 27 I think of Gamunex when I stopped. I could not go over 100 ml/hour. Made for a VERY long day. I would take snacks. Don't be afraid to speak up... (4 replies)
... Thank you so much for the reply!!! I am happy to hear it worked for you. I will definitely make sure to hydrate well and tell the nurses to keep the infusion speed slow. ... (4 replies)
... I had an appointment on Thursday and they agreed to take a break from the IVIg and put me on a high dosage of steroids for a short amount of time. If I am indeed having a reaction this should help. ... (91 replies)
... It seems to be a kind of allergic reaction. My guess is that one of the donors from which the IVIG is made must have something in their plasma that my wife is allergic to. As I understand it, it takes around 3,000 people to make one treatment. ... (16 replies)
... I'll keep ya updated as to how my infusion goes tomorrow. Thank you all again for everything. ... (91 replies)
... Hi. I have read your post and now I am VERY nrevous. My son is 5 and he should start IVIG in January. The side effects don't sound very pleasant. I wonder if it is worth it. Now, I am a super nervous mom!!! ... (13 replies)
... Wow that is some story about your daughter. Thank goodness you were smart enough to know something was really wrong. Noone ever explained to us that the ivig will effect his test results. I guess we will have to see now that it is too late to reserve any blood. ... (13 replies)
... Hi there ... I'm an adult on ivig but I know there are many children receiving this treatment. ... (2 replies)
... Usually takes 6 months to a year (10 replies)
... Thanks for all the replies folks! I think things are going fairly well in infusion land. I had my 5th infusion yesterday. It went pretty well. A new nurse is giving them now. ... (10 replies)
... hr with zero side effects. If you are experincing what I call a "spinal" migraine that nothing would work on than your infusion was WAY too fast. ... (10 replies)
... Yes slow infusion and frankly Gamunex has an excellent history. Your provider looks at reimbursement and each one has a different rate.....Take a look at a chart if you can. ... (13 replies)
... Make sure your infusions are run slowly. Almost all adverse reactions are due to rapid infusion rate. FYI St Jude's and most Children's hospitals use Gamunex for safety reasons. Also you may need a low Iga IGIV which is Gammagard SD.... ... (91 replies)
... You should never have a rapid infusion ever.......what brand are you being infused with? ... (91 replies)
... During the first infusion they were trying to do it quicly and I felt it, started hurting deep in my bones, headach, etc....so they slowed it way down. ... (91 replies)
... Matt gets his infusion every three weeks at home. What has your son been diagnosed with? ... (13 replies)


Associated Tags: fevers, infusion speed, intravenous immune globulin (ivig), ivig, migraine, privigen

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