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Message Board


Immune Disorders Board Index
Pages: 1 2 3 4 5 6 Showing 1 - 20 of 124 for message. (0.044 seconds)


Hypothyroidism
May 29, 2016
... Hi! I am new to this message board too. ... (2 replies)
... I am new to this site and message board; I am happy I found it. I have a question: Is Bell's Palsy a complication of Common Variable Immunodeficiency Disease? I have had Neuropathy on my right side for many years and my Neurologist said it is a caused by my CVID and by my having Shingles that went inside the nerve rather than outside on the skin. I have a mild case of... (1 replies)
... Hi everyone...I have never posted on a message board before. I have a question I really haven't been able to find an answer to online anywhere. I have had muscle pain and flu like symptoms for years. ... (0 replies)

... Hi, I came across your message while searching for a doctor to treat my CVID in Houston. You mentioned that you like your doctor. Does she have lots of experience with CVID? ... (91 replies)
... thyroid issues so that is how we "met" here on message boards. ... (32 replies)
... as really been a mystery to me about what side effects to expect, and if the side effects I was having are "normal". I know quite a few of you have been on this message board for quite some time, but I just wanted to say thank you for sharing stories and such an incredible wealth of information. ... (91 replies)
... Hi there! If this gets changed by moderator, I apologize and just message me and I can give you more detailed info. ... (6 replies)
... Feel free to private message me if you would like pics of the needles. We also have a fabulous support group too if you are interested. We even have some parents of cvid kids on there. ... (5 replies)
Forgot to ask
Dec 6, 2010
... If you do message me. We have a wonderful support group you may be interested in. TONS of info there. ... (3 replies)
... albican yeasts. I actually haven't been able to find anyone on message boards or forums that has experienced similar symptoms as me so I'm questioning if symptoms vary from person to person or not. ... (16 replies)
... Hello..I read your message about your IgG1 deficiency. I had bloodwork done last week after having a swollen lymph node on my neck which went away with antibiotic. ... (8 replies)
... What wonderful, caring responses to your post. Isn't is great to have this message board? ... (10 replies)
... I did post another message but no one responded to it...I think I actually posted it either specifically on MCTD or Lupus...can't remember...but no one has responded. ... (10 replies)
... ntestines but the regular docs don't believe in it. I also have some brain fog. I also have tingling on the top of my head and severe neck pain that I have done message therapy, chiropractic and accupuncture and nothing is helping it. I might also have chronic fatigue syndrome and maybe some fibro. No definite answers. ... (10 replies)
... Thank you for the advice. The doctors did ignore it but I didn't. I threw a fit. I had it removed about a month after I posted this message. I agree with you. Never watch a lump. At the time my Pcp told me the surgeon was knife happy and I told him that was fine by me, I wanted it out and I wanted it out last week......these doctors amaze me with their attitudes. I am... (5 replies)
... The red scaly patch on my little finger is getting worse. My both wrist are killing me now too. I'm glad i have this message board because i'm driving everyone in my family crazy! and they can't help me! They can't even relate to it at all. ... (19 replies)
... I was so glad to see you had responded to my post. I read several posts looking for specific's on who on the board may have recognized the drug Kenalog. Another question, were you told of any nasty side effect there were after using Kenalog? and did you sign any papers giving him permission to use the drug Kenalog?. I can say I will never trust the word of any doctor ever... (4 replies)
... IS THERE ANYONE OUT THERE THAT CAN RELATE TO THIS DISEASE ON THIS MESSAGE BOARD? ... (1 replies)
... Thanks for the replys all. This disease seems to be very rare. It is hard to find info, and I haven't found a message board, so that is why I posted on the immune board. ... (15 replies)
... Thank you so much for reaching out to me and responding to my message. When this first appeared I was pregnant and was diagnosed with alloimmune thrombycidpenia (sp?). It affects the baby by killing off its platlets. We thought this was just going to be during pregnancy. After the pregnancy I never regained my strength entirely. About three years later my middle daughter... (15 replies)


Associated Tags: allergies, allergy, cvid, eczema, hypogammaglobulemnia, iga, igg, immune disorder, inflammation, ivig, sub-q, vaginitis, vasculitis

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