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Inner Ear Disorders Message Board


Inner Ear Disorders Board Index


[QUOTE=alexiwildchild;3377630]wow---too weird! i am sorry you are dealing with this again. can i ask you how did yours start the first time and this time??? weird, spacy feeling?? all mine happened in such a blur with my allergic reaction, that i can't recall when it turned into the constant jumpy vision. however, it wasnt from the beginning. also....how did it go away for you??? slowly gradual--could you tell it was improving? i can imagine it must be hard having the junk again. do you think you have any similar trigger from the first time???

what symptoms do you have now? is your vision constant like this? i do hope it goes quickly again for you!:) and for the rest of us lol...whatever IT is. it is so scary though not knowing what the cause is. i am taking the nortriptyline and hoping for a savior out of it. we'll see...[/QUOTE]

Mine started the first time when I was shopping in Walmart... I was pushing the cart and as I was walking along ready to turn a corner I just out of nowhere felt very dizzy/lightheaded. At first I was just thinking I was having a vertigo thing because a couple years before I had one vertigo episode in a Lowes store. It was the same thing where I all of a sudden felt very dizzy, and had to sit on an endcap in an isle. One of the customer service people ran down there to see if I was ok. That was scary. And it went away at that time with no residual effects at all. Where as this thing now just stays... It's relentless. So in the 3 year ago thing it was there for the rest of that day, I felt tired, nauseaous, headache... downright like, well...crap. The next day it was still there, I was getting scared. I thought I was getting a cold? stress? But then it was a week, 2 weeks, 3 weeks... I started thinking it was the end and I had a tumor, menengitis, stroke, I was going to have a annurism(sp) I was looking everywhere online for answers. So I went to a walk in clinic, they dismissed it as an inner ear infection, sinus infection, they gave me antibiotics, and they were useless, I wasted $200... I went to a regular doctor, she did a balance test, said I was a little off, ummmm, NO KIDDING! Well I then got Allegra D, and Antivert. Allegra did nothing, Antivert helped but made me sleepy, all it is is behind the counter Dramamine. Dramamine does help this I must say, but not a permanenet cure. She also said I may need a ct scan, but I was never given one.

Well after I think 2-3 months, and I really don't remember, because I tried to forget about it, it just gradually went away. As wierd as this may sound. I moved to another part of the state(FL) and that is when it went away. I think I dismissed it as stress, or an allergy on the other coast. I felt good, and I was relieved. I didn't think I was dying anymore.

Now I don't think it was what I thought it was. I know I had some stress with the new job I started here in October, but this has started almost 2 months later??? And I think the symptoms are worse at times now, but then again I remember feeling REALLY AWFUL back then, and now I am remembering.

I have taken about 15 breaks to type this out since this is just aggrivating it, but it makes me feel a tiny bit more at ease knowing I am not the only person out there feeling this.

As for my current symptoms...

I have the jumpy vision, some days and times are worse than others. It feels like when I look at something and try to fix on it, that my eyes are having a hard time fixing on it, they make it feel like my eyes are back and forth without me doing it. or twitching??? I am sure you can relate. Flourescent lighting makes it WORSE.

I also have a very very slight pain in my right ear, sometimes it's not there, then it comes back... Also when I chew sometimes it sounds like a tiny crackling in my right ear too. Makes you wonder if it is an inner ear problem, OR A TUMOR!

I can be feeling half way decent then out of nowhere on the top of my head slightly off center towards my right ear I get a tingling feeling, like a cold(how do I explain this?) it's like a cold piece of string is in there and it is wiggling for only 3 or 4 seconds. It is probably a nerve? Or a TUMOR! It's hard not to think the worst feeling this way... Well after the tingling stops I feel the lightheadedness come one a lot worse then I get a headache which the one I had yesterday was pretty bad... It made me irritable, tired, my eyes were hating light, lightheaded, and a tiny bit nauseous. Migrane??? I know when I get the tingling, I am about to feel cruddy, and a headache is on the way. i take Excedrin for migranes every day before work to get through.

This constantly feeling like I am on a heavy duty antihistmine and like I have a permanent head cold, jumpy vision is really aggrivating me. I actually get mad at this and talk to myself about how bad I feel at times, saying how "this is not cool, why do I have this?" I ask the big guy up there to either let me feel better, or just get it over with and take me, but I want to be better. It's not healthy to want to just ask to be taken away by God as not to feel like this, but it's tough going on day after day like this, AGAIN. Know what I mean. I just want to know what it is... I sit at work thinking about what to do for my family if it's something bad. How will they be or what they will do, if I were to, you know:angel:... I don't like this.

My only savior is last time it went away, I hope it does again, and NOT come back. What really stinks is I am moving back to Florida next month and I have to drive my moving truck there, I don't want to feel like this all the way!

I have never been very religous, but I sure do find myself asking for help in this...

I hope you get better too, this is a terrible ordeal.:)
[QUOTE=caback2FL;3377838]Mine started the first time when I was shopping in Walmart... I was pushing the cart and as I was walking along ready to turn a corner I just out of nowhere felt very dizzy/lightheaded. At first I was just thinking I was having a vertigo thing because a couple years before I had one vertigo episode in a Lowes store. It was the same thing where I all of a sudden felt very dizzy, and had to sit on an endcap in an isle. One of the customer service people ran down there to see if I was ok. That was scary. And it went away at that time with no residual effects at all. Where as this thing now just stays... It's relentless. So in the 3 year ago thing it was there for the rest of that day, I felt tired, nauseaous, headache... downright like, well...crap. The next day it was still there, I was getting scared. I thought I was getting a cold? stress? But then it was a week, 2 weeks, 3 weeks... I started thinking it was the end and I had a tumor, menengitis, stroke, I was going to have a annurism(sp) I was looking everywhere online for answers. So I went to a walk in clinic, they dismissed it as an inner ear infection, sinus infection, they gave me antibiotics, and they were useless, I wasted $200... I went to a regular doctor, she did a balance test, said I was a little off, ummmm, NO KIDDING! Well I then got Allegra D, and Antivert. Allegra did nothing, Antivert helped but made me sleepy, all it is is behind the counter Dramamine. Dramamine does help this I must say, but not a permanenet cure. She also said I may need a ct scan, but I was never given one.

Well after I think 2-3 months, and I really don't remember, because I tried to forget about it, it just gradually went away. As wierd as this may sound. I moved to another part of the state(FL) and that is when it went away. I think I dismissed it as stress, or an allergy on the other coast. I felt good, and I was relieved. I didn't think I was dying anymore.

Now I don't think it was what I thought it was. I know I had some stress with the new job I started here in October, but this has started almost 2 months later??? And I think the symptoms are worse at times now, but then again I remember feeling REALLY AWFUL back then, and now I am remembering.

I have taken about 15 breaks to type this out since this is just aggrivating it, but it makes me feel a tiny bit more at ease knowing I am not the only person out there feeling this.

As for my current symptoms...

I have the jumpy vision, some days and times are worse than others. It feels like when I look at something and try to fix on it, that my eyes are having a hard time fixing on it, they make it feel like my eyes are back and forth without me doing it. or twitching??? I am sure you can relate. Flourescent lighting makes it WORSE.

I also have a very very slight pain in my right ear, sometimes it's not there, then it comes back... Also when I chew sometimes it sounds like a tiny crackling in my right ear too. Makes you wonder if it is an inner ear problem, OR A TUMOR!

I can be feeling half way decent then out of nowhere on the top of my head slightly off center towards my right ear I get a tingling feeling, like a cold(how do I explain this?) it's like a cold piece of string is in there and it is wiggling for only 3 or 4 seconds. It is probably a nerve? Or a TUMOR! It's hard not to think the worst feeling this way... Well after the tingling stops I feel the lightheadedness come one a lot worse then I get a headache which the one I had yesterday was pretty bad... It made me irritable, tired, my eyes were hating light, lightheaded, and a tiny bit nauseous. Migrane??? I know when I get the tingling, I am about to feel cruddy, and a headache is on the way. i take Excedrin for migranes every day before work to get through.

This constantly feeling like I am on a heavy duty antihistmine and like I have a permanent head cold, jumpy vision is really aggrivating me. I actually get mad at this and talk to myself about how bad I feel at times, saying how "this is not cool, why do I have this?" I ask the big guy up there to either let me feel better, or just get it over with and take me, but I want to be better. It's not healthy to want to just ask to be taken away by God as not to feel like this, but it's tough going on day after day like this, AGAIN. Know what I mean. I just want to know what it is... I sit at work thinking about what to do for my family if it's something bad. How will they be or what they will do, if I were to, you know:angel:... I don't like this.

My only savior is last time it went away, I hope it does again, and NOT come back. What really stinks is I am moving back to Florida next month and I have to drive my moving truck there, I don't want to feel like this all the way!

I have never been very religous, but I sure do find myself asking for help in this...

I hope you get better too, this is a terrible ordeal.:)[/QUOTE]

wow....that is so crazy! thanks for replying about all this. i would definitely suggest seeing a neurotologist or neurologist about that if you're having to take the excedrin everyday. you may be better off starting on a migraine preventative like i am trying....let me tell you, it may not be doing much for the visual symptoms, but my headaches are definitely less and when they hit, they are way less severe....not one migraine with aura yet on this med. [B]however, that makes me wonder...if it is treating my migraines or headaches....and that is the underlying CAUSE of my visual symptoms, WHY havent the visual symptoms gone away????? it just makes me wonder.[/B]

well...as far as tumors go....i have had both an MRI and CT scan of my brain, and nothing there--all normal. in a horrible way, i was hoping they would find something to ease my mind on what is truly causing all this. but in other hands, i am so glad that it isn't anything like that--ya know? i would definitely have "faith" that if it went away for you before, that surely it will go away again...just when always sucks. as for myself, i am desperately awaiting that day. maybe it is all triggered by stress??? migraine??who knows. i know if it does get "cured" i will be going on mystery diagnosis for all of us who have this crap will know how to get rid of it lol!

does it seem worse for you when you are looking at something UP or from the corner of your eyes? it does me.

well....as far as crackling in my ears, yeah, i have that alot too...but it has definitely gotten better since the beginning of this. i remember putting vicks vapor rub all around them to soothe or "unplug" whatever it was. now it seems just to be vision issues. as i said in one of my other responses, i am going to seek out a neuro-opthamologist to get another opinion as well....and to have them look into my eyes for more of an idea...but for some reason, i think they will come up with no answers.

wishing you all the best...please keep in touch on here:) it is great---horrible to say---to know that i am not alone in this





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