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Inner Ear Disorders Message Board


Inner Ear Disorders Board Index


hello everyone. i just registered on this board and have read a lot of posts, and i cant believe that so many other people have the same symptoms that i have.

i just turned 25 in december 2006. i have had horrible dizziness and a feeling of imbalance for almost 3 years now. it started out of nowhere, and has yet to go away. ill have days where i will be 100% fine, ALL day, and others where once the episode starts, it continues anywhere from 2 hours, 4 hours, or the rest of the day/night. i also will have 1 or sometimes (not often) 2 weeks where i feel great, with symptoms only very mild, and not lasting long at all. however, about 90% of the time i have symptoms of dizziness, imbalance, fullness of ears, more than moderate tinnitus - very loud roaring sound in my ears, not so much a ringing sound, feeling confused and "out of it", and a small loss of hearing in my left ear (only when i feel dizzy), etc.

i have been to two different ENTs to try to find an answer to these symptoms - and to no avail.

the first ENT that i went to about these sypmtoms actually happened to be my ENT from when i was very young - i had tubes put in my ears as a baby and the pressure in my left ear actually caused a perforation in my left eardrum. i had ear infections all the time as a child. he did not do any tests or anything having to do with inner ear issues.. he only gave me nasacort, saying that my nose was blocked, and he cleaned out my ears. that was it. my symptoms did not subside, in fact, they have only gotten worse.

i recently went to a 2nd ENT in the beginning of march 2007, supposedly the best ENT in my area, as i had two referrals to him. i asked him about the possibility of menieres disease, since i have almost all of the symptoms of the disease, and he said i did not have it, although no tests were performed to see if i did or not. he also said that i dont have vertigo. i told him about having a perforation in my left eardrum and all of the problems i had with my ears as a young child, and he then had me do a hearing test. well, before the hearing test begun, they put pressure into both of my ears to move the eardrums around, and guess what - they found a perforation in my left eardrum after i had already told him that it was there. wow. i had the hearing test done, and he said that the results were normal, with only a slight loss of hearing in my left ear due to the perforation. the outcome of the visit was a referral to a neurologist.

i have also read in these posts about hormones being the culprit of dizziness and loss of balance, etc. i actually had this idea myself right after my last ENT appt. about a week or 2 before i start my period, i have horrible symptoms of dizziness and the other symptoms i listed above. i realized this right before my last period (march 10) and the weeks after it until this past friday, i felt almost 100% OK. my dizziness and such returned and is a lot worse since this past friday, march 23. i was ovulating today, and tonight was probably the worst episode i have had yet.

i was wondering if anyone agrees with me that this could actually be a hormone related issue??? i have noticed in the posts that i have read that the dizziness caused by horomones is usually in peri or post menopause, but at 25, could i have these symptoms from hormones as well?

im just hoping to get some advice and a lead to a solution. the symptoms that i have are absolutely horrible, and a CONSTANT. i cannot enjoy life the way that i used to, or the way that i WANT to because of this. i am always worried about these episodes occurring that i have aquired anxiety.. i cant go out to dinner anymore, cant be a passenger in a car, cant really do anything like i used to. it affects my performance at work - i bartend, and im guessing that moving my head around all of the time doesnt make it any better, as the symptoms usually occurr about 2 hrs. after i have been at work. i have just recently gotten better at going into stores or the mall and restaurants.. i have to find an entrance that is close to the stores that i want to go to so that i can leave as fast as i can just in case an episode occurs, and usually, it does. but that has gotten a little bit better.. i have been opposed to making plans to do anything or go anywhere for the past 3 years that this has been going on, in fear that i will get dizzy and such. i know i let people down, but i let MYSELF down the most. im tired of feeling helpless, alone, scared, worried, anxious, and despair. i HATE this. its so incredibly scary. i just want to feel "normal" again.

i am an aspiring photographer (hopefully one day ill be so good ill be published!) and im scared to make plans to take photos, just in case i wont be having a "good" day that day.. i feel trapped.

after researching about menieres disease and other inner ear problems, i have seen that certain foods can be "trigger foods".. and that a low sodium diet could help symptoms. i consume a lot of dairy - what are the most common "trigger foods"?

sorry this is so long, but i hope that someone can help me or can just understand what i am going through. family and friends of mine sympathize with me and everything, but they have not a clue as to what i am talking about, or what i have to deal with on a daily basis.

thank you and i hope that everyone is doing ok!
[QUOTE=roxyjy;2886736]hello everyone. i just registered on this board and have read a lot of posts, and i cant believe that so many other people have the same symptoms that i have.

i just turned 25 in december 2006. i have had horrible dizziness and a feeling of imbalance for almost 3 years now. it started out of nowhere, and has yet to go away. ill have days where i will be 100% fine, ALL day, and others where once the episode starts, it continues anywhere from 2 hours, 4 hours, or the rest of the day/night. i also will have 1 or sometimes (not often) 2 weeks where i feel great, with symptoms only very mild, and not lasting long at all. however, about 90% of the time i have symptoms of dizziness, imbalance, fullness of ears, more than moderate tinnitus - very loud roaring sound in my ears, not so much a ringing sound, feeling confused and "out of it", and a small loss of hearing in my left ear (only when i feel dizzy), etc.

i have been to two different ENTs to try to find an answer to these symptoms - and to no avail.

the first ENT that i went to about these sypmtoms actually happened to be my ENT from when i was very young - i had tubes put in my ears as a baby and the pressure in my left ear actually caused a perforation in my left eardrum. i had ear infections all the time as a child. he did not do any tests or anything having to do with inner ear issues.. he only gave me nasacort, saying that my nose was blocked, and he cleaned out my ears. that was it. my symptoms did not subside, in fact, they have only gotten worse.

i recently went to a 2nd ENT in the beginning of march 2007, supposedly the best ENT in my area, as i had two referrals to him. i asked him about the possibility of menieres disease, since i have almost all of the symptoms of the disease, and he said i did not have it, although no tests were performed to see if i did or not. he also said that i dont have vertigo. i told him about having a perforation in my left eardrum and all of the problems i had with my ears as a young child, and he then had me do a hearing test. well, before the hearing test begun, they put pressure into both of my ears to move the eardrums around, and guess what - they found a perforation in my left eardrum after i had already told him that it was there. wow. i had the hearing test done, and he said that the results were normal, with only a slight loss of hearing in my left ear due to the perforation. the outcome of the visit was a referral to a neurologist.

i have also read in these posts about hormones being the culprit of dizziness and loss of balance, etc. i actually had this idea myself right after my last ENT appt. about a week or 2 before i start my period, i have horrible symptoms of dizziness and the other symptoms i listed above. i realized this right before my last period (march 10) and the weeks after it until this past friday, i felt almost 100% OK. my dizziness and such returned and is a lot worse since this past friday, march 23. i was ovulating today, and tonight was probably the worst episode i have had yet.

i was wondering if anyone agrees with me that this could actually be a hormone related issue??? i have noticed in the posts that i have read that the dizziness caused by horomones is usually in peri or post menopause, but at 25, could i have these symptoms from hormones as well?

im just hoping to get some advice and a lead to a solution. the symptoms that i have are absolutely horrible, and a CONSTANT. i cannot enjoy life the way that i used to, or the way that i WANT to because of this. i am always worried about these episodes occurring that i have aquired anxiety.. i cant go out to dinner anymore, cant be a passenger in a car, cant really do anything like i used to. it affects my performance at work - i bartend, and im guessing that moving my head around all of the time doesnt make it any better, as the symptoms usually occurr about 2 hrs. after i have been at work. i have just recently gotten better at going into stores or the mall and restaurants.. i have to find an entrance that is close to the stores that i want to go to so that i can leave as fast as i can just in case an episode occurs, and usually, it does. but that has gotten a little bit better.. i have been opposed to making plans to do anything or go anywhere for the past 3 years that this has been going on, in fear that i will get dizzy and such. i know i let people down, but i let MYSELF down the most. im tired of feeling helpless, alone, scared, worried, anxious, and despair. i HATE this. its so incredibly scary. i just want to feel "normal" again.

i am an aspiring photographer (hopefully one day ill be so good ill be published!) and im scared to make plans to take photos, just in case i wont be having a "good" day that day.. i feel trapped.

after researching about menieres disease and other inner ear problems, i have seen that certain foods can be "trigger foods".. and that a low sodium diet could help symptoms. i consume a lot of dairy - what are the most common "trigger foods"?

sorry this is so long, but i hope that someone can help me or can just understand what i am going through. family and friends of mine sympathize with me and everything, but they have not a clue as to what i am talking about, or what i have to deal with on a daily basis.

thank you and i hope that everyone is doing ok![/QUOTE]
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