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It all started when I was at school, I was studying, and I got this sudden "out of it" feeling, I see the phrase "brain fog" mentioned a lot on these posts and it's exactly what I was feeling. I turned my head up and I just felt out of it. I felt this pressure on my forehead, on my temples, and behind my eyes. I thought it was nothing at first, I thought I was just really tired. But that night when I went to bed I woke up with the room spinning in the middle of the night. The next day I woke up with all this pressure in my head and when I was walking down the hall I felt this "on a boat" sensation, like the floor was moving up and down every few steps. And I that's when I thought Ok, this is not good.

So, I went to my general doctor to get some answers to theses problems. At first I mentioned the pressure and the unbalanced sensations and my doctor thought it was my sinuses. After a CT scan they said I had an infection in my sinuses that it was probably putting pressure and fluid in my inner ears and that was causing my imbalance/dizziness. My doctor also said that brain-fog feeling was just congestion. The strange thing to me was I never had a runny nose or any drainage and it didn't really feel like normal cold/stuffy like congestion. I just felt out of place.

They put me on antibiotics saying that it would take care of the infection and that the symptoms should subside. I still felt the dizziness and unbalancedness and brain fog even after the antibiotics where done. I was then referred to an ENT specialist that examined me and concluded that my symptoms may just be allergy related. I have found myself very frustrated because at first I thought I knew what was causing these symptoms and now I feel like I'm back at square one.

Is anyone been having similar symptoms?
[QUOTE=alepay0523;3859273]It all started when I was at school, I was studying, and I got this sudden "out of it" feeling, I see the phrase "brain fog" mentioned a lot on these posts and it's exactly what I was feeling. I turned my head up and I just felt out of it. I felt this pressure on my forehead, on my temples, and behind my eyes. I thought it was nothing at first, I thought I was just really tired. But that night when I went to bed I woke up with the room spinning in the middle of the night. The next day I woke up with all this pressure in my head and when I was walking down the hall I felt this "on a boat" sensation, like the floor was moving up and down every few steps. And I that's when I thought Ok, this is not good.

So, I went to my general doctor to get some answers to theses problems. At first I mentioned the pressure and the unbalanced sensations and my doctor thought it was my sinuses. After a CT scan they said I had an infection in my sinuses that it was probably putting pressure and fluid in my inner ears and that was causing my imbalance/dizziness. My doctor also said that brain-fog feeling was just congestion. The strange thing to me was I never had a runny nose or any drainage and it didn't really feel like normal cold/stuffy like congestion. I just felt out of place.

They put me on antibiotics saying that it would take care of the infection and that the symptoms should subside. I still felt the dizziness and unbalancedness and brain fog even after the antibiotics where done. I was then referred to an ENT specialist that examined me and concluded that my symptoms may just be allergy related. I have found myself very frustrated because at first I thought I knew what was causing these symptoms and now I feel like I'm back at square one.

Is anyone been having similar symptoms?[/QUOTE]





I wish I would've found your post before now - I noticed you posted this back in Jan... are you feeling any relief yet? I really hope so. If not... wanted to let you know that I totally understand and sympathize with your frustration. You are definitely not alone. Unfortunately I've had your exact same symptoms for about 15 months now. (I no longer feel pressure in my head though, symptoms tend to change as you go along) I was diagnosed with MDDS -- Google it, I have a feeling it's going to fit your symptoms like they do mine. On one of the threads here I noticed someone mentioning migraine as well. That definitely can be associated with migraine, as they've linked that with MDDS. (I do not get migraines) Something that I have learned though, through the tons of doctor appts, tests, treatments, etc., and people that specialize in this, is that these conditions get mis-diagnosed ALLLL the time. I'm not saying it's not important to try and get a diagnosis, but it should take a back seat to actually identifying your symptoms and treating them. I can almost assure you that you're dealing with a Vestibular disorder (google that as well) - and there are physical therapists that specialize in that kind of therapy. Vestibular dysfunctions seem to be closely connected to the balance of your inner ear, and the function of your eyes. Vestibular rehab includes a lot of eye exercizes, which are a bit uncomfortable, but do help. These conditions are more times than not totally benign... they are essentially a brain signal issue, rather than a physical issue. That's why you have trouble in malls and things. When your eyes can't see the horizon, the sky and the ground outside, your brain has trouble knowing up from down. They call going into places with this condition like Target, CostCo, the mall, the grocery store, etc., the BIG BOX syndrome. When you enter these places, your brain has trouble knowing where the floor is, and of course the lighting doesn't help and the chaos of the aisles, etc., so you'll start to feel a lot more symptomatic. Do you usually always feel better outside? Well that's exactly why. The great news is, our brains have the ability to re-program and get back in sync... so by forcing yourself in the very situations that make you uncomfortable, will help you feel better, faster.

The other huge bummer is that these conditions also tend to come with high levels of anxiety... because you never know how you're going to feel from one day to the next. Not a fun feeling, I know. I was hit with this three months after having my first baby. Being a new mom and living with this everyday was a huge struggle for me. There comes a time/day though, where you realize that "hey, this could hang on/take awhile, so I'm gonna live my life in a positive way and do whatever I can to make the symptoms tolerable/manageable". Here's some things that you can do to lighten the load of this burden:

1.Get plenty of rest at night - but stay as active as possible during the day, the more you move the better you're feel, and the less you'll notice the symptoms
2. Get lot's of exercize but don't overdo it - long brisk walks, light jogging, yoga, jump rope, etc. are awesome. You'll feel a little more symptomatic for a brief amount of time after, but not for long.. and this will make your symptoms and any anxiety so much better
3. Eliminate caffiene and alcohol.. drink tons of water, and eat as healthy as possible.
4. Google vestibular rehab therapy - ping pong is excellent therapy because it requires hand/eye-brain/eye coordination. Someone else going through this taught me that. Also, if you live near the beach, walk on the coast as you're watching the horizon. That was part of my therapy and helped so much.
5. Keep your stress level as low as possible, stress and anxiety make the symptoms much worse. So does hunger, eat small meals/snacks throughout the day.
6. I know you're a guy, but for all of the females reading this, hormones really aggrivate this as well, so just plan to kind of take it easy on those days, but deifnitely still get out and walk.

I think those are the main things. ANother thing to know is that regular, GP doctors know VERY LITTLE about this - as long as you've ruled out anything serious by having a CatScan or MRI... then I would look down another route (like the House Ear Center like you mentioned - heard they are awesome, but very expensive). My GP tried to chock my syptoms up to allergies as well.... but SO not true, and it'll just keep you from getting the treatment/diagnosis that you're looking for. Everyone with these conditions is completely different. No one will have the same outcome as the next. So try not to rely too heavily on what everyone says on this board... take the tidbits that are helpful to you, and seek the treatment that best fits your needs. I found that listening to everyone all the time made my anxiety worse... so just know that you will get help, you WILL get better. Someone put it best on the MDDS site... "these are not life threatening disorders, just life altering, so we have a lot to be grateful for". It's so true... so just stay positive, and try not to worry too much. Stay super active and super positive and do things that will keep you relaxed like the exercize.

One last thing... alot of neurologists prescribe 2mgs of valium for this. It's a VERY small amount of medicine... so small that you can drive and do all the things you'd normally do. I went a year without any meds, as I was determined to get through this naturally - but finally realized that I need some relief. I split my pill, and take 1mg in the morning and 1mg in the afternoon - and it does the trick for me. You would not believe how much it helps. As a guy, you may need 2mg's in the morning and 2 in the afternoon, as needed. Might be worth asking your GP about. Usually they don't have a problem prescribing this in such a small dose. I do this along with regular exercize.

As a mom, I'm on a mission to get 100% better, and know that I will. The key is to stay positive and active. Sorry for the novel... but I remember how LOST I was when this first started, and how lost the doctors were, and it helped me so much when people reached out to me that had gone through this.

I hope this info helps... although I'm hoping your symptoms already went away! :)

M.O.M. (MOM ON a MISSION)
Tammy
[QUOTE=alepay0523;3859273]It all started when I was at school, I was studying, and I got this sudden "out of it" feeling, I see the phrase "brain fog" mentioned a lot on these posts and it's exactly what I was feeling. I turned my head up and I just felt out of it. I felt this pressure on my forehead, on my temples, and behind my eyes. I thought it was nothing at first, I thought I was just really tired. But that night when I went to bed I woke up with the room spinning in the middle of the night. The next day I woke up with all this pressure in my head and when I was walking down the hall I felt this "on a boat" sensation, like the floor was moving up and down every few steps. And I that's when I thought Ok, this is not good.

So, I went to my general doctor to get some answers to theses problems. At first I mentioned the pressure and the unbalanced sensations and my doctor thought it was my sinuses. After a CT scan they said I had an infection in my sinuses that it was probably putting pressure and fluid in my inner ears and that was causing my imbalance/dizziness. My doctor also said that brain-fog feeling was just congestion. The strange thing to me was I never had a runny nose or any drainage and it didn't really feel like normal cold/stuffy like congestion. I just felt out of place.

They put me on antibiotics saying that it would take care of the infection and that the symptoms should subside. I still felt the dizziness and unbalancedness and brain fog even after the antibiotics where done. I was then referred to an ENT specialist that examined me and concluded that my symptoms may just be allergy related. I have found myself very frustrated because at first I thought I knew what was causing these symptoms and now I feel like I'm back at square one.

Is anyone been having similar symptoms?[/QUOTE]





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