... I've been battling this problem for over 5 years! I've had ear tubes installed with no help, ear surgeries done... ... (1 replies)
... That's amazing!!! Good on ya for figuring that out yourself and getting yourself some relief.
Nice of you to share too. :) I am a Starbucks fan and hate to think coffee is bad for us... but you do hear about the caffeine/vestibular thing a lot. I know I don't drink enough water throughout the day and must work on that. (1 replies)
... that coming off klonopin and other drugs can trigger movement disorders. they think mine was triggered by a virus. they just dont know enough about this type of myoclonus to say what causes it, in fact most drs have no idea what it is and are unable to diagnose it. ... (6 replies)
... ear myoclonus and was hoping you could answer some questions for me. ... (6 replies)
... Hi, has anyone ever had this or know what this is. I have this constant pressure i feel at my right ear and have twitches and fluttering, i think i have been poisoned or had toxicity or what ever you call it from accutane. ... (0 replies)
... for me it all seemed to start together, the vn and annoying ear popping, then over a period of months it developed into the myoclonus, at first it was thought to be p e t......but in time we figured out otherwise. ... (6 replies)
... Hi Lib,
Thanks so much for your input. I value your opinion. I know you've been on the board for awhile and have read a lot of your posts even though I didn't have this problem until recently.
How long after the VN did you develop the myoclonus? How many years has it been now all together for you?
Thanks again for the reassurance and information. It was better... (6 replies)
... the ticking sound and blown speaker effect i can relate to, this is muscular. i have middle ear and e tube myoclonus. the middle ear tendons can cause all sorts of symptoms. ... (5 replies)
... that is a spasm of the middle ear, it will react to your own voice....very irritating! look up middle ear myoclonus, stapedial myoclonus and tensor tympani syndrom..... ... (5 replies)
... well it probably is twitching, that is also what causes the popping sound. i am all too familiar with this mess. look up middle ear myoclonus, tensor tympani syndrome, stapedial myoclonus. for most it resolves on its own. for me it did not so i had surgery. ... (5 replies)
... yes...first, look up stapedial myoclonus, middle ear myoclonus, tensor tympani syndrome and palatal myoclonus. i had the tendons severed and this gave great relief! ... (9 replies)
... that sounds like a spasm in the middle ear, look up middle ear myoclonus, tensor tympani syndrome, stapedial myoclonus and palatal myoclonus. ... (3 replies)
... middle ear muscle spasm, look up tensor tympani syndrome, stapedial myoclonus, or middle ear myoclonus (2 replies)
... i have had all this related to middle ear myoclonus, stapedial myoclonus and tensor tympani syndrome.....as well as in the e tubes... ... (5 replies)
... middle ear myoclonus, tensor tympani syndrome, stapedial myoclonus.....i have this, i had the tendons severed and it has helped a ton. ... (2 replies)
... your symptoms sound like you have myoclonus in the ear, look up stapedial myoclonus, tensor tympani syndrome, and middle ear myoclonus....it can be in the e tube as well. ... (50 replies)
... look into middle ear myoclonus (1 replies)
... dr sismanis in richmond virginia is who i would try to see...there are two things you can look up.....sscd and middle ear myoclonus....look at the johns hopkins web site under ear nose and throat or neurotology and you will see sscd.... ... (6 replies)
... I was checking every day then I went away and now I am back home and thank you for the response. In return to your response, I really believe I have PM , but the ear muscle maybe a factor as well. I actually see my PM contracting in my throat, and the nuero in NYC suggested BOTOX, but couln't refer a Dr. he knew to treat it. ... (50 replies)
... i know there are a few drs, one in wash dc and one in ny for botox, several i know have been properly dxed with middle ear myoclonus in richmond by dr sismanis. ... (50 replies)