... nsult with Dr. Hain in Chicago because I was tired of not having any answers. He ultimately diagnosed me with migraine. He felt the migraine was triggering the recurrent BPPV. ... (4 replies)
... that cause BPPV are normal parts of the inner ear. Only in the disease state do they come loose and float around like snow in a snow globe. ... (4 replies)
... Hey Scott -
Just wanted to give you an update and let you know I had my phone consult with Dr. Hain today. He thinks there are two possibilities behind my recurrent BPPV - either Migraine or possibly Hydrops. He is suggesting Topamax for the migraine and he is also suggesting I get an ECOG test done to rule out the hydrops possibility. Apparently many of my symptoms... (14 replies)
... I thought I had remembered you posting something about a link between recurrent BPPV and Migraine at one point ... do you have any info you can point me to? ... (14 replies)
... my symptoms are similar to yours except that i had over a year between my first bppv episode and the past 3 weeks of suffering... my initial episode this year was quite severe, but i was able to get into a dr. ... (4 replies)
... I personally don't think it matters. I have had several episodes of recurrent BPPV and there did not seem to be any link between the recurrence and whether or not I slept at an incline. ... (10 replies)
... Several studies have shown high prevalence rates of migraine in idiopathic BPPV. A retrospective study by Uneri in 476 patients with posterior canal variant BPPV revealed a history of migraine meeting IHS criteria in 54. ... (14 replies)
... it was just so nice to have someone validate the fact that all these things happening to me were related, the number of BPPV episodes was way out of the ordinary, and that they can be treated. ... (14 replies)
Great news! I thought he'd diagnose MAV. Very common and a big cause of BPPV. You'll probably find it's not hydrops. I don't know anyone on mvertigo that ended up with hydrops. I think it's rare but definitely worth ruling out.
Were there any other gold nuggets of info he mentioned that you weren't aware of? I always hear great things about Hain ... definitely very... (14 replies)
... I agree. I definitely think it's unusual to have so many recurrent episodes AND in both ears. ... (14 replies)
... I've had BPPV and certain dizzy attacks that were strictly MAV that very closely mimicked BPPV. ... (14 replies)
... It's hard to say - this has been such a long, crazy journey and I have had a wide variety of symptoms kind of come and go. I do have pretty constant tinnitus and some visual issues still. I also get fullness/irritation feeling in my ear at times. I also had that zapping/buzzing feeling for quite a while about a year ago. I don't know. I read the Heal Your Headache book a... (14 replies)
... Yes, migraine and BPPV are highly comorbid. ... (14 replies)
... That sounds like quite an adventure that you've been thru .... I'm really sorry to hear that you're having such a tough time. I have had several bouts of recurrent BPPV and at this point have had crystals in all three canals, so I know they can move around within the inner ear between canals. ... (12 replies)
... I am definitely not as knowledgeable as Subs .... but after dealing with recurrent BPPV for over a year now .... here are my thoughts... ... (3 replies)
... Hi There, I'm on a mission to find answers! I know there are alot of you out there with great MAV knowledge. After leaving my Dr's office yesterday, I just felt so grateful that I could come home to talk to all of you! Well, I should say first I was diagnosed with Meniere's disease by my local ENT (hence Meniero), who wanted to put me directly on a diuretic, I went for a... (10 replies)
... Hi Julie,
Thanks for all the great information... Do the vertigo attacks get worse as the years pass?
How did the doctor know that the otoliths weren't working properly?
Did you take an MRI or a special test?
I hope that you're doing better... hang in there. (46 replies)
... Hope things are going well for you. I just wanted to add a couple of comments, as a fellow BPPV sufferer. I had my first BPPV attack just over 4 years ago, I turned over onto my right side in bed and the world just turned over and over and over ..... ... (46 replies)
... so it was pretty obvious I had BPPV in my right ear! ... (14 replies)
... Hi All and how great it is to find a site like this on the net.
Discovered this last week and have been reading ever since to see if it could help me get to the bottom of my problems. I'll try not to bore you all too much..as this has been ongoing for me for over twenty five years. I'm forty six now and this began at about age eighteen. Intermittent dizziness lasting 24/7... (1 replies)