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Liver & Pancreas Disorders Message Board


Liver & Pancreas Disorders Board Index


Hepatic adenoma
Sep 17, 2002
searching for support (group or site) or anyone else w/ same.. have a benign tumor probably caused or enlarged by oral contraceptive use. approx 5 cm in size, directly in center of 3 branches of hepatic artery. waited for shrinkage with no result. Causes pain just below rib cage front and/or back when sitting or standing, horizontal is the ony semi-comfortabe position. only treatment available is surgery to remove w/ approx 1/2 to 2/3 or liver with it. because of size and location liver cannot be resected.
I just recently found out I probably have an adenoma in the middle of my liver (they can't rule out hyperplasia). My doctor wants me to wait 6 months and get a CAT Scan. But I am in constant pain on my right side. It is about 6 cm. I want to know if there are any treatments out there. I went on the Mayo Clinic web site and there was something about alcohol injections. I think the doctor doesn't want to do a resection because of where my tumour is located and they would have to remove so much of the liver. I want to find out the best doctor out there for treatment. Any suggestions? Thanks so much.
I am 45 yrs old and up until July 2003 I was on HRT Depo Estrodal due to a hysterectomy 13 yrs ago. No one ever mentioned liver tumours as a possibility. I had an incidental finding two weeks ago of a 4cm mass on the left lobe. The radiologist felt it was either a focal nodular h or a hepatic adenoma. I had the liver biopsy on 9/29/03. I have not met with the doctor since, but I have been told it is benign and is not a FNH. But they have not officially told me what it is. I am assuming we are looking at a hepatic adenoma. I don't have any severe pain but am constantly fatiqued, and previously drs diagnosed me with fibromyalgia. Probably wrong on that too! I have been reading all your messages. I am so sorry that many of you have struggled for solutions to this problem. It is amazing to me that this "side effect" has never been addressed when the drs write the prescription. Actually, it makes me very angry! I stopped the HRT on my own July 2003. I was concerned with the increased risk of breast cancer and emboli. I never imagined that it might cause liver tumours. I will continue to monitor the message board and will say a prayer for healing. I am scared too.
Re: Hepatic adenoma
Oct 14, 2003
In june of this year I was diagnos with Hepatic Adenoma.Thought it was gallstones , went for the first test ultrasound found stones but also by accendent found a large mass on the right lobe 7.7cm . Went for an CT scan about a month later found a 2nd one 5.3cm.Went for an MRI(2-3wks later) found #3,1.2cm . All this time that has past the Doc's told me to stop the Birthcontrol pill and they should shrink,in the meantime Im plaged with pain on the right side from a dull ache with pressure to Great Pain that will put me in bed , oh and that tired and weak winded feeling that can come on quit suddely.I find myself sleeping ALOT.Doc wanted to wait and see if they will shrink they do "sometimes"he said, and rupture is rare he says,I dont belive that anymore.5mo has past, went for a follow up MRI,Found 2 new ones. I have a total of 5 masses through out the liver.Doc had surgery date for Oct 9th. but cancelled on me because I would not concent to a blood-transfusion,I now have to go to PHX (good samaritan hospital)For a new Doc and the Surgery at the end of the month.PHX said they would care for me .

[This message has been edited by Penny A (edited 10-15-2003).]
Re: Hepatic adenoma
Nov 21, 2003
I am SO glad to have found this board! I have NON-hormone or birth control related hepatic adenomas throughout my liver, which were discovered in 94' during an unrelated CT scan. I did have exploratory liver surgery as an infant for an enlarged liver and a fever(found nothing), but they now believe I must've had a blocked portal vein. Mine is much smaller than normal, and I have many other veins near it which developed to maintain the blood flow (the med report calls these collaterals a spontaneous shunt). I was hospitalized at age 4 and 6 for esophogeal bleeding, which they now realize was probably caused by portal hypertension.

A year after the 94' scan, I was hospitalized with severe pain (bled into a lesion). Have had several episodes since. and a resection for a bad one in 99' by a major NY transplant surgeon (the new liver tissue is clear of adenomas), who I adore, but he decided to take a GOOD look at my liver while in there and gave me the full mercedes-logo incision. Not pretty, but who the heck cares? I've had 2 small bleeds since, unfortunately, but I've recovered well each time.

I've recently seen a different doctor (tumor specialist )for a consultation, who wants to do some heavy research on my case. Says he think I may still have portal hypertension, also. He may propose embolization, but I really don't know if I want to do any more procedures when on the whole, day to day, I'm just a normal healthy gal. I just wonder as I get older if I may become more suceptible....
[QUOTE=dnyc]I am SO glad to have found this board! I have NON-hormone or birth control related hepatic adenomas throughout my liver, which were discovered in 94' during an unrelated CT scan. I did have exploratory liver surgery as an infant for an enlarged liver and a fever(found nothing), but they now believe I must've had a blocked portal vein. Mine is much smaller than normal, and I have many other veins near it which developed to maintain the blood flow (the med report calls these collaterals a spontaneous shunt). I was hospitalized at age 4 and 6 for esophogeal bleeding, which they now realize was probably caused by portal hypertension.

A year after the 94' scan, I was hospitalized with severe pain (bled into a lesion). Have had several episodes since. and a resection for a bad one in 99' by a major NY transplant surgeon (the new liver tissue is clear of adenomas), who I adore, but he decided to take a GOOD look at my liver while in there and gave me the full mercedes-logo incision. Not pretty, but who the heck cares? I've had 2 small bleeds since, unfortunately, but I've recovered well each time.

I've recently seen a different doctor (tumor specialist )for a consultation, who wants to do some heavy research on my case. Says he think I may still have portal hypertension, also. He may propose embolization, but I really don't know if I want to do any more procedures when on the whole, day to day, I'm just a normal healthy gal. I just wonder as I get older if I may become more suceptible....[/QUOTE]

Your story sounds familiar - I also have been diagnosed with benign adenomas(currently have 14 of them). They were found in 1997 during a sonogram for pain in lower left quadrant - ovarian cyst - not sure how they were looking the the liver area. They said there were 5 lesions which since have been called adenomas. I've done the entire test route - sonogram, CT, Liver Scan, MRI's and 2 biopsies. Have gotten scanned every 6 mos. with numbers gradually increasing from 5 to 14. Went to see surgeon at Strong Memorial in Rochester NY in May 03 - he says there are too many and they are all over the liver, so he is not sure resecting would prove beneficial. So - here I am - going for another 6 month CT scan and the normal wait to find out the results. Does anyone know anything about the breast cancer drug tamoxifen being used for liver adenomas? How about vitamin E therapy? Would appreciate any info you have.

Nice to be able to read about someone with similiar issues.
Re: Hepatic adenoma
Mar 16, 2005
I have now been diagnosed with an adenoma on my liver as well. It was found after I had acute pain on my right side 4 weeks after the birth of my second child ( I am 38 years old). They did emobilize the blood supply to this through an angiogram and I was out of the hospital in 5 days. The specialist was to do surgery within 8 weeks of this but is now waiting for another three months and will do a repeat CT scan. The size was 9.9 cm and has reduced to about 6cm. The specialist does not believe it will shrink much more. He is concerned of another rupture and did note it should come out due to the possibility of it becoming cancerous in the future. I would like to get this over with at this time but would like some response on how recovery from surgery went and any other possible treatment. He will need to remove 2/3 of the liver but indicates that I will fully recover. Waiting in Canada........thanks
Re: Hepatic adenoma
Mar 16, 2005
[QUOTE=dana99]I have now been diagnosed with an adenoma on my liver as well. It was found after I had acute pain on my right side 4 weeks after the birth of my second child ( I am 38 years old). They did emobilize the blood supply to this through an angiogram and I was out of the hospital in 5 days. The specialist was to do surgery within 8 weeks of this but is now waiting for another three months and will do a repeat CT scan. The size was 9.9 cm and has reduced to about 6cm. The specialist does not believe it will shrink much more. He is concerned of another rupture and did note it should come out due to the possibility of it becoming cancerous in the future. I would like to get this over with at this time but would like some response on how recovery from surgery went and any other possible treatment. He will need to remove 2/3 of the liver but indicates that I will fully recover. Waiting in Canada........thanks[/QUOTE]
Re: Hepatic adenoma
Apr 12, 2005
I am so glad to have found this site. June 2004, after having a gallbladder attack, I was diagnosed with 5.1cm tumor on my liver. The specialist that I have been seeing believes that it may have been there for nearly 10 years. During that time I have had three children. The last two pregnancies caused great pain on my right side and I had to leave work at my 30th week. My ob/gyn thought nothing of it. Surgery is my biggest fear, so it is good to hear from people that have gone through it. The adenoma is now 5.7cm and my dr has taken the wait and see method until July. By reading some of the stories here I am not so worried about what will happen.
Thanks
Hi KrystinR! I had surgery on July7th to remove my hepatic adenoma (which actually turned out to be an FNH) and with it 60% of my liver and gallbladder. Once inside, they found more damage to veins and arteries than they had anticipated. Four hour surgery turned into a 10 hour surgery. They even stopped part way through to test the tumor and make sure it was not malignant. Anyways, I felt pretty beat up afterwards. The hardest part was trying to get out of bed and stand up. My muscles were mush and the incision hurt. The pain got better as the days went by...by day 6, I still hurt but it was bearable. After that the hardest part was getting my stamina back. I was really tired, could barely walk to the nurses station and back or even to the restroom for that matter. I was released after 10 days in the hospital. I was hurting (but they sent me home with good meds) and had absolutely NO energy and was having trouble catching my breath (but I have asthma and they found out later I also had a partially collapsed lung)...but I tried to do things...make myself something to eat, try to walk around my apartment building...etc. Showering was tiring...my dad put a bench and a hand held showerhead to make it easier...it was just so tiring standing trying to wash my hair, shave, etc. Its was 10 weeks until I went back to work. It was fine...I could have probably gone back in 8 weeks. I know you have kids and are looking to see when you will be ready to go. I can't give you an answer (as I think our cases are different) but I would say, don't push it. It is a hard, but do-able surgery. Let yourself rest and you will be better before you know it. I am so glad I had the surgery. No more worries, is it growing, is it shriking, no more CT scans etc. I had the depression thing going to before the surgery, but it is gone now...such a relief to have it hanging over my head anymore.

If they found another tumor and wanted to take it out, I would do it. That is how good I feel about it now. It was hard but the benefits outweigh it. Do you have a good doctor/surgeon to do this? I live in CA and had a GREAT surgeon. I hope this helps. :) Let me know if you have any other questions....I would be glad to answer.
I would like to jump in with a couple of questions.I have posted about my acid reflux and gallbadder issues but after reading here,I am very curious.Over a year ago I started having pain in my right side and problems with heartburn and reflux.After trying different meds throughout the year and having ultrasounds to rule out gallstones my gi sent me for a hida scan on gallbladder.Ended up that gallbladder ef was 29%.Gi didnt think it would warrant surgery said to keep on meds.A few months ago went to a new primary doc and she said she thought i needed my gallbladder out and wanted me to have a ct scan to rule out stones.Anyway the results were that gallbladder looked o.k. but in an incidental finding they found a cyst on my liver and a kidney stone in my right kidney.I questioned her about the cyst and she more or less saod it was nothing and that if she took 100 people off the street 25 of them would have one.So I just let it go.I havent had surgery on my gallbladder and I have been trying some natural ways to help with the reflux.Question is, is a cyst the same as some of you write about?Should I be more concerned about it?My bloodwork came back fine on my liver function.Sorry so long winded.I would appreciate any feedback. Heather
I was told in April that my adenomas would shrink once I stopped OC. On July 5th I collapsed from the worst pain I've ever experienced (even childbirth) when we were out of state. Adenomas (5)are now very large, (3 over 7 cm) and hemorraging. I'm scheduled for surgery in the next two weeks. I'm very angry at first doctors who basically shushed my questions. Now I'm told that if they had acted earlier they might have done this laproscopically. Now I'm facing loss of 60% of my liver, a huge surgery and recovery time and I am very very angry. Thanks for letting me vent.
HI all. I am 3 weeks postop. 5 bleeding adenomas were removed ranging in size from 5 - 8 cm each. They removed 61% of my liver. I can honestly say that the post op pain was NEVER as bad as the pain which originally brought me to seek medical care. Since 2 major veins were also removed, my body did have some stress in learning how to repump all my blood/fluids, but I'm finally seeing my own legs again (I felt like a sausage from the waist down) I was discharged 6 days earlier than planned from hospital, and I think i'm healing better at home. I did have to go back in 4 days after discharge to have part of the incision reopened, and felt that I was setback for a few days. I am able to walk a block now, eat small meals, and did a flight of stairs today with some help. I actually plan on returning to my studio to start private lessons again in 10 days. I can teach from a chair. I am tired, and I did have horrible back pain for the first 12 days, but am feeling much better now. I thank heaven that I went for that second opinion..........as the first opinions idea of see you in 3 months i'm sure they will shrink was wrong. I advise everyone to be on top of their medical care, you are your best advocate! I don't check the board much, but would love to give encouragement to others that are anticipating this surgery. Sandie
I had this surgery, and I want you to know I was with less pain post op than before. 61 percent of liver removed, including two main veins. But please please please get 2nd op.
Re: Hepatic adenoma
Sep 17, 2007
Hi LindaG40,

We meet again. I can address from my experience your 4 questions.

1) I too could not loose weight (for about 2 years) no matter how hard I tried. In fact, I was putting it on at an alarming rate, once 5 pounds in one week. Since 1 of my growths was next to my main bile duct when it got big enough it started acting like gallstones and that was when I got sick every time I ate and I started loosing weight. But, I think that having these in the liver affects the metabolism rates overall (but no Dr. will agree to that) and after I had surgury I am back to the same weight I was for the majority of my life. It almost melted off. I can eat anything I want and my weight has held the same for 3 monts now. In 2 years I put on 30 pounds, in the 9 months I was sick and had surgury/recovery I dropped 35. 15 in the 5 months leading to surgury, 10 the week in the hospital, 10 the month after.

2) I am a few months shy of 40 and no kids, married for 8 years. 2 weeks before the onset of symptoms we started talking of family. It's on hold indefinitely. My OB says kids at 40 or later are realistic, we just need to be open and honest about the level of risk and what we want to test for in terms of genetic problems and are we willing to terminate a pregnancy before going into one? Hard choices to make before being confronted.

3) My only choices are a COPPER IUD (not the new drug coated ones) but my body wouldn't accept it, condoms, and a diaphragm. Of course abstinance but that wouldn't make my husband happy. ;)

4) I don't know about menopause - not there yet. But, the first place I am going to look for advice is a natural health resource. We've been following quite a bit of his advice for several years but are not fanatics by any means. It just make good sense.


Don't you get drinks flavored like orange creamscicles? Mine have even been done up like slushies. Very cool. The first time I had a CT with IV contrast they didn't warn me that you got the warm pee the pants feeling and I flipped. I was mortified and wouldn't get off the bed or let them take the covers. I knew better after that and had some great jokes with the techs.

A note to all, what Sandriciad says about being your own health advocate is all too true. If you are in the hospital and a pain med isn't working TELL SOMEONE!! And tell someone else if you don't get a satisfactory response. Have a friend or family member take notes about what is happening and comments that are made during room visits by doctors and nurses. When you are told things are OK Tuesday morning and then Wednesday afternoon things change you have a record of it and can ask intelligent questions! You are protecting yourself, the most important person.

Tabatha
Thanks for your reply. Do you get any pain in the area? I have a hard time forgetting its there due to the pain. I haven't yet pinpointed anything that triggers the discomfort but I think stress is highly related. I have an appointment to see a specialist at the Univ. of Miami liver disease dept. on 10-12-07. I'm hoping he'll give me peace of mind. I'll post any new info that I get from him.
Hi,
Yes I did have pain on my right side, nausea too. That is why I initially sought help. It seems to be a frequent complaint of others on this board as well, although Drs. seem to say it has nothing to do with the liver problems....I don't know if I quite believe that. Mine comes and goes. Others seem to have it more consistently.
Goodluck at your appt and let us know how it goes.
Hi everyone,

Gmmjn5 - my surgeon said that my naseau would likely go away after surgery and it did. When I asked him why that happened he said he didn't know what the link was really, it just happens. To me, the liver is full of bile ducts and if thier production is messed up (as is the case in a bad gallbladder) you get sick to your stomach. He at least admitted there was some type of link, just didn't know what it was.

Keep pressing the fact that you are uncomfortable. Only you can decide what you can deal with for a quality of life. There are differences in FNH and HA, the big ones are risk of rupture as it gets larger and the slight risk (10-15%) of HA turning to cancer. The risk of rupture is why they hesitate to do biopsy. My GI was very ho-hum about every thing once it was determined I didn't have cancer and didn't need a transplant but that didn't solve my situation. I was still in pain (it wasn't excruciating but it wasn't there before) and I was still unable to eat. So I pushed back until I had hard answers. He also misdiagnosed me with 2 growths when I had 4.

I put on 30 pounds in 2 years and couldn't figure out why. My Dr finally said you're over 35, it happens. But I didn't feel right. I can't explain it, but I knew something wasn't right. Once I got sick 10 months ago and then had surgery I dropped 35 pounds in 8 months. I don't buy that after being on the pill for years it suddenly is the cause of weight gain now. As I said in my earlier post, the liver contributes a lot to metabolizm. If something in it is messed up who know how it affects other things even if all the 'tests' come back normal.

There is another board further down also labled 'hepatic adenoma' with more posts you may want to glance at before you go to the Dr. It might give you some ideas about questions to ask.
Re: Hepatic adenoma
Oct 10, 2007
HI Fannylou,

I am so sorry to hear you are having so many problems...you poor thing, it seems to be one thing after another!! Can't you be referred to a liver specialist of sorts. I think I see a gastroenterologist...all I know is it is not my PCP, she referred me out. Are you a candidate for RFA or cyberknife, atleast these are not invasive. I think Dr's tend to trivialize the pain and nausea and will even say it's not related, yet many come on the board with the same complaints......
Re: Hepatic adenoma
Oct 10, 2007
I think that would be my best bet. I was in Emory for 9 days after my surgery and it was horrible. I don't think after the past three years I could do it again. It has taken a lot out of me. I also had to have my uterus removed last november due to large fibroid and then my ovaries two months later due to a large tumor on the right ovary. All of these things can't be unrelated. I am using an estrogen patch for the hormone replacement. My GYN of course wouldn't do the liver thing. My Liver Transplant Dr. only checks for growth and blood work. He didn't refer me to a hepatologist just said to keep coming to him. I think b/c he expects another surgery. And my PCP doesn't want to do the pain management b/c he has heard that they don't hurt and doesn't want the responsiblity. So where do you go to after all of that. No one want to do anything. I hate going to Doctors b/c I feel like I am trying to convince them that my symptoms are real. I hurt for 10 years and went through 3 PCP until one of them found the tumor. Then he moved his practice two weeks before I had the surgery. What luck huh!
Re: Hepatic adenoma
Oct 19, 2007
[QUOTE=FANNYLOU;3251063]I think that would be my best bet. I was in Emory for 9 days after my surgery and it was horrible. I don't think after the past three years I could do it again. It has taken a lot out of me. I also had to have my uterus removed last november due to large fibroid and then my ovaries two months later due to a large tumor on the right ovary. All of these things can't be unrelated. I am using an estrogen patch for the hormone replacement. My GYN of course wouldn't do the liver thing. My Liver Transplant Dr. only checks for growth and blood work. He didn't refer me to a hepatologist just said to keep coming to him. I think b/c he expects another surgery. And my PCP doesn't want to do the pain management b/c he has heard that they don't hurt and doesn't want the responsiblity. So where do you go to after all of that. No one want to do anything. I hate going to Doctors b/c I feel like I am trying to convince them that my symptoms are real. I hurt for 10 years and went through 3 PCP until one of them found the tumor. Then he moved his practice two weeks before I had the surgery. What luck huh![/QUOTE]
Re: Hepatic adenoma
Oct 19, 2007
Tabatha D...
Congratulations on your progress! I am still waiting to see the liver specialists at UCSF (appointment is finally scheduled for Nov. 13), but it gives me hope that this thing will be over and done with and I can look into the possibility of getting back to my regular workout routine. I've started working out again, but I do feel some pressure and pain in my right side. Lately it seems like I can feel it more often, so I don't know if that has to do with my exercise, or something else. I am struggling with trying to lose weight and want to be as strong as possible before going in to surgery (if that's what they will need to do). I'm wondering, did you experience any nausea as one of your symptoms? I've notice it in the past few days, but only in the morning. And there's absolutely NO WAY I could be pregnant, so I'm wondering if it's related to my liver.

Obadie...
Can you let us know what type of surgery they performed on you, how long you were in the hospital, how recovery has been? I know, a lot of questions, but I want to be prepared for whatever comes my way. And how did your diagnosis come about? Did you notice any weight issues at all before surgery?

Thanks!
Re: Hepatic adenoma
Oct 29, 2007
Hi all -

About 6 weeks ago I thought I had pulled a ab muscle. I had discomfort under my ribs and through my back - into my right shoulder. I stopped working out, took it easy and finally went to work out again on Oct 8...did the stairmaster and ended up being VERY short of breath and the pain got worse. Went to my dr. the next day and she ordered an ultrasound that afternoon...thinking along the lines of gallbladder. The u/s showed nothing...and neither did all the bloodwork. She ordered a CT scan that Friday (my 36th bday unfortunately - the joke was the barium lunch I was getting that day ;-)...found out that evening that there was a mass about the diameter of a 50 cent piece and that I need to see the GI specialist. My dr. said it was very very unlikely it was cancerous but the biopsy would tell that.

Went to him the following Wed. and his take was a non-cancerous growth caused by birth-control. He said it was about the size of a golfball and that I should go off the bc and that in time it would shrink. No biopsy needed and sent me on my way...I did express concern about the discomfort and pain and when it would go away? He said discontinue all aspirin etc. as it appeared it may have bled into itself. So - that evening - he called me and said the more he thought about it - he would like me to see a liver surgeon. Got into the liver surgeon/oncologist that Monday (last Monday)...and thank God I did.

He advised that it is about the size of a baseball and immediately ordered a biopsy as that is the only way you can tell 100% if it is noncancerous. He talked either adenoma or FNH...I had the biopsy on Friday and we have an appt. with him on Wed to find out the results and the plan of action. If it is the ademona - he has already talked surgery ASAP to get it out.

I have been on bc for 20 years. I have repeatedly asked my dr's should I be going off of it, cycling on/off, changing types, etc. This was never discussed with me...and yes - I know it says it on the package...but that is why I repeatedly asked. My husband and I already knew that I would go off it next year when he turns 40 - we do not want children so he would get a vasectomy. Now that has obviously been moved up but unfortunately now we don't have the protective overlap of me being on the pill while he goes through the process...oh well - my health is what matters.

I have found reading this forum to be a great help...some a little scary but anyone who ventures into the forum world knows that each person is different and to read with caution. I will keep you updated with my progress..right now - I just want to hear the word "BENIGN!"





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