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Liver & Pancreas Disorders Message Board


Liver & Pancreas Disorders Board Index


[QUOTE=shell26;5122645]Hi, I am new to this board! I recently had pain in my right side and the doctor sent me to an ultrasound and blood tests. They found a 4cm lesion they said could be a Hemangioma. Then I had a triple phase CT scan that said it is most likely a FNH or Hepatic Adenoma and HCC is not excluded. My AFP is negative and my liver function tests were normal. They have referred me to a Liver Specialist in few weeks. I am so worried as I have a 3 year old boy. I am also confused as to how they do not know what is is. I would love to hear from people who had similar experiences.[/QUOTE]

Hi, I am going through almost the same thing at the moment. A few weeks ago, I started experiencing a slight pain below my rib cage on the right side. My GP thought it might be gallstones, so she sent me for an ultrasound. The ultrasound showed multiple lesions on my liver (I think 5). I then had a CT scan and the likely diagnosis is FNH, but they're not ruling out HCC. I now have to wait over a month to see a liver specialist! I'm so scared and upset and I feel I'm not getting the information and help that I need.

I was taking the high estrogen contraceptive pill Diane 35 (Dianette) for 10 years to treat Polycystic Ovarian Syndrome. I stopped taking it about a week ago when I read online that FNH can be caused by the pill. Shouldn't my doctor have told me to stop taking it as soon as the ultrasound results came in?! There are other treatments for PCOS other than the pill, and it's not a serious syndrome.

I'm curious about what people's symptoms are (if any). Other than slight discomfort under my right rib, I have high cholesterol (maybe non-related), my stools have become lighter in colour (and smell more, but that might again be related to other food intolerances) and I have issues with gas and bloating. I was told by a GP years ago that I have IBS (no tests were done, he just made an assumption) so it's hard to know what symptoms are related to IBS and what are related to my liver. I also have the symptoms of PCOS to contend with.

I'm wondering if these are all tied in (FNH, IBS and ovarian/hormonal syndromes) as many people with FNH on these message boards also mention IBS or menstrual/ovarian issues. Any thoughts?
Hi i am veronica I am a 36 year old female and I found out I had a mass on my liver when they were performing gastric bypass on me in 2005. At that point, there was only one and 6.25 cm in size. My gastric bypass doctor was going to cut it out, but didn't feel comfortable doing this because it was covered in veins. I was taking birth control pills at the time and switched to the depo provera because I was told that sometimes birth control is not as effective anymore after that kind of surgery and that deop is more effective. So immediately after surgery, I switched to depo and have been on it ever since.

I have had back pain ever since my surgery and thought that it was from that until last August 2012. I went to the ER with extremely bad back pain, bloating in my ribs and what felt like labor pains in my back. They did another scan and found out that I have gone from one lesion to now having seven. The first one has now grown from 6.25 to 8.3 cm and I have another that is a 4.3 cm and I think the third is like 2.3 cm and the rest are small. I was referred to a digestive specialist in November 2012 who told me that the extremely excruciating back pain was because I needed to build my back muscles and as far as the lesions, that I needed to stop my birth control immediately. This was before he saw my MRI results.

So I left it at that. He made it sound so cut and dried that I've continued to deal with the pain, but no matter what I do, it comes on sitting, standing, sleeping it doesn't matter. It will wake me in the middle of the night like someone has been boxing me in my right side of my back all night. I get pain in my abdomen from where my liver starts on left side and it radiates to the right where my biggest tumor is. I feel this fullness sometimes so much that I feel like I have a full term baby stuck in the right side of my body between my rib cage and hip. I feel sick on and off and I'm bloating sometimes so bad that I will look pregnant. I feel uncomfortable on the right side under my ribs and it's just annoying. I'm tired all the time and I am so tired of it.

The surgeon I was referred to isn't trying to do surgery and I am so frustrated. I can't take the pain anymore. I thought I was the only one until I started researching this after getting a letter from the the digestive disease doctor I saw a year ago. After a whole almost year he sends a letter saying that after reviewing my MRI, I need a liver biopsy. His medical assistant forgot to send me the letter back in November 2012 and I just received it May 2013. I was just like what?

I started looking it up and that's how I found all of you here. This is not rare and I would like to know if anyone has tried to go after these drug companies or if anyone is interested. I have a daughter who is on birth control now and I'm scared for her. I don't want her to end up like me. This is not rare. There is so many of us out here and they're not listening and not educated on what is truly going on here and they won't, until we as women speak up about these pills and what they are doing to us.

I am so angry. The only warning that was listed on my depo that they highlighted as important was the risk of bone loss, which is very, very minor compared to what is happening to my liver right now. If we just sit here and just keep posting, our voices are not really being heard. I want to speak up for myself and my two daughters. We have to do something. I plan on it and if any of you need my help or want to speak out, post here.

My afp is 6.1, which is borderline. I just had a biopsy few days ago, which I didn't want to do because of the way the procedure was done and the pain after they were finished. I spoke to my surgeon, who just told me that depending on the results of the biopsy, he may not operate which is bull. I can't keep going through this pain and he doesn't think my liver is causing it, so he is making all these other excuses of what it might be, like gallbladder. He checked it and it's normal and my kidneys are normal. Now he is suggesting ulcers, which they would have seen along time ago. There is so much more to my story, it's crazy. He says that he would like to keep monitoring me and continue blood work because he doesn't think it's causing me pain. When I told him about the info on the internet, he got really nasty about it. I guess it's because he is misinformed and doesn't know what he is talking about.

We can make a difference if we work together. So now I am back a square one trying to find a good doctor to understand what the hell I am going through.

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[QUOTE=vm93;5189508]Hi i am veronica I am a 36 year old female and I found out I had a mass on my liver when they were performing gastric bypass on me in 2005. At that point, there was only one and 6.25 cm in size. My gastric bypass doctor was going to cut it out, but didn't feel comfortable doing this because it was covered in veins. I was taking birth control pills at the time and switched to the depo provera because I was told that sometimes birth control is not as effective anymore after that kind of surgery and that deop is more effective. So immediately after surgery, I switched to depo and have been on it ever since.

I have had back pain ever since my surgery and thought that it was from that until last August 2012. I went to the ER with extremely bad back pain, bloating in my ribs and what felt like labor pains in my back. They did another scan and found out that I have gone from one lesion to now having seven. The first one has now grown from 6.25 to 8.3 cm and I have another that is a 4.3 cm and I think the third is like 2.3 cm and the rest are small. I was referred to a digestive specialist in November 2012 who told me that the extremely excruciating back pain was because I needed to build my back muscles and as far as the lesions, that I needed to stop my birth control immediately. This was before he saw my MRI results.

So I left it at that. He made it sound so cut and dried that I've continued to deal with the pain, but no matter what I do, it comes on sitting, standing, sleeping it doesn't matter. It will wake me in the middle of the night like someone has been boxing me in my right side of my back all night. I get pain in my abdomen from where my liver starts on left side and it radiates to the right where my biggest tumor is. I feel this fullness sometimes so much that I feel like I have a full term baby stuck in the right side of my body between my rib cage and hip. I feel sick on and off and I'm bloating sometimes so bad that I will look pregnant. I feel uncomfortable on the right side under my ribs and it's just annoying. I'm tired all the time and I am so tired of it.

The surgeon I was referred to isn't trying to do surgery and I am so frustrated. I can't take the pain anymore. I thought I was the only one until I started researching this after getting a letter from the the digestive disease doctor I saw a year ago. After a whole almost year he sends a letter saying that after reviewing my MRI, I need a liver biopsy. His medical assistant forgot to send me the letter back in November 2012 and I just received it May 2013. I was just like what?

I started looking it up and that's how I found all of you here. This is not rare and I would like to know if anyone has tried to go after these drug companies or if anyone is interested. I have a daughter who is on birth control now and I'm scared for her. I don't want her to end up like me. This is not rare. There is so many of us out here and they're not listening and not educated on what is truly going on here and they won't, until we as women speak up about these pills and what they are doing to us.

I am so angry. The only warning that was listed on my depo that they highlighted as important was the risk of bone loss, which is very, very minor compared to what is happening to my liver right now. If we just sit here and just keep posting, our voices are not really being heard. I want to speak up for myself and my two daughters. We have to do something. I plan on it and if any of you need my help or want to speak out, post here.

My afp is 6.1, which is borderline. I just had a biopsy few days ago, which I didn't want to do because of the way the procedure was done and the pain after they were finished. I spoke to my surgeon, who just told me that depending on the results of the biopsy, he may not operate which is bull. I can't keep going through this pain and he doesn't think my liver is causing it, so he is making all these other excuses of what it might be, like gallbladder. He checked it and it's normal and my kidneys are normal. Now he is suggesting ulcers, which they would have seen along time ago. There is so much more to my story, it's crazy. He says that he would like to keep monitoring me and continue blood work because he doesn't think it's causing me pain. When I told him about the info on the internet, he got really nasty about it. I guess it's because he is misinformed and doesn't know what he is talking about.

We can make a difference if we work together. So now I am back a square one trying to find a good doctor to understand what the hell I am going through.

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So sorry to hear of your dilemma! What kind of liver lesions have you been diagnosed with? Are they cyst or tumors? I have had a Simple Liver Cyst since 1997....it was found when I had a partial hysterectomy (leaving me one ovary)...my GYN went ahead and took a biopsy during surgery & it was benign which from what I'm reading, simple cyst always are. In 2008 I had the other ovary removed & went on hormones. I had a CT scan in 2012 for other reasons and it picked up the cyst which was 5.3 cm...I asked my Gastro Dr. of the Estrogen could be causing it to grow and he said no...it has no affect on cyst, just tumors but sent me to a liver specialist who suggest monitoring. I just had my six month check up with the liver specialist and the US shows it has grown from 5.3 to 6.6 in less than a year. The liver doc says it is unknown why they grow but he too said hormones do not cause cyst to grow & told me to come back in 6 months since I have no pain, etc......but I believe Estrogen plays a role in the growth of liver cyst. It's not just coincidence that this cyst stayed 3 cm for all those years and started growing when I started on Estrogen. It's hard to believe that I can get on Google and read about other doctors talking about studies on how hormones do play a role in this yet liver doctors say they have never heard of it....HOW IS THIS??? I have stopped my Estrogen & hopefully, when I go back in six months the cyst will have decreased in size. Just for the record, I wasn't on pills but estrogen cream which still goes into the blood stream & is broken down by liver. Also found out the compounding pharmacies use Propylene Glycol to make the hormone cream....Propylene Glycol is a harmful chemical that is documented to cause liver abnormalities. Anyone else have you liver lesions/cyst grow when on hormones? I would love to hear your story.... Thanks!!!!





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