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Lung & Respiratory Disorders / COPD Message Board


Lung & Respiratory Disorders / COPD Board Index


RBILD and COPD
Dec 13, 2012
Hi I was diagnosed in oct 2006 with RBILD. I was devasted as I was only 30yrs old. I have 3 kids and did not want to miss them growing up. I quit smoking for 1 1/2yrs. This did not help my lungs. I have been progressivly getting worse. In 2010 the Drs. added COPD to my list of problems. I lived in Florida all my life and the humidity seemed to be making my breathing worse. We moved to Colorado 1 1/2yrs ago and it is still getting worse. I started seeing a new DR. in Sept 2012 and she put me on oxygen to try and help. I have been on numerous inhalers over the years to no avail they do not help at all. I started smoking after I put on 60lbs and the weight was causing me lung and heart problems. It seems like either I smoke or gain weight which is both doing damage. The last time I had an MRI the nodules were 6mm in size. My new Dr does not seem to understand the affect this has had on me emotionally or physically. I dont know how to find a Dr here that knows about this disease and the new one. I havent had an MRI since 2010 so I dont know how bad it is now. Just that they now say i have COPD. Being that it progressed to COPD in 4 yrs I dont know how to find out how long I have with my family. I have seen many doctors over the past 6yrs and alot of them are scared of me because of my medical history. It has gotten to the point that its hard to get dressed, talk on the phone etc. My anxiety is so bad I just cry at the drop of a hat. I have asked my dr to give me something for the anxiety and she gave me wellbutrin for the smoking and said it should help with the anxiety but it doesnt. I have tried to get disability and of course was denied 2 weeks ago. Now I have to get this Dr to write me a letter. I doubt she will do that being she doesnt want to treat my other issues. I dont know what to do. I have no social life because I am scared of getting sick. My dr in Florida told me to stay away from anyone sick because it could be very detremential for me if I get sick. So I have no friends or anything here. I dont know what to do or if there is a Dr here in Colorado that knows how to treat both of these lung diseases. I did see a pulmo Dr in Sept and she just agreed to the oxygen and said see you in 6months.





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