... RBILD stands for respitory bronchiolitis interstial lung disease. From what Ive heard there is no cure as it is rare. It is caused by smoking. It supposedly is to slow down when you quit smoking. I have done numerous times and it does not seem to be slowing at all. My doctor told me when I was diagnosed at 30yrs old, you basically suffocate. This scares me to death. What it... (2 replies)
... Hiya, Firstly I am so so sorry to hear of your situation, a lot of people I think don't realise how horrible Emphysema is.
I am in a similar situation in some ways. My dad was diagnosed with the disease 5 or 6 years ago, however, neither or my parents told me about it until about a year and a half ago. His condition has majorly deteriorated since they told me, he has a... (2 replies)
... Hi I am new here. Just looking for answers or maybe just needing to vent. My Mom was diagnosed with emphysema about 15years ago. She is now 72years old and I feel is starting to fade. =(
In the past 15years she has had her fair share of hospital stays and on the vent more times than i can count. Her most recent bout was about a month ago in February.
She was not... (2 replies)
... My mother just passed at the end of April due to the congestive heart failure the copd caused. I know this is going to sound awful, but let him smoke. Your dad sounds as if he was right where my mom was 2 months before she passed. ... (7 replies)
... e...we do everything from fixing his food to pouring his coffee, I don't know how much more I can take...Any suggestions, Do you think he is getting close to his death or am i just being paranoid? ... (7 replies)
... Proud Daughter, what I have learned is that we show our love by feeding them. Food gives and sustains life therefore we feel we have to feed them. I do know that the calories COPD'ers burn just trying to breathe is as if you and I just ran a mile, and that's them just sitting at the table. Imagine trying to eat a beef roast with all the fixings if you just ran that mile?
... (9 replies)
... She keeps this up I will lose her to COPD before Christmas of this year. The doctor says shes at the severe stages. It saddens me that even with my help shes giving up on life. ... (9 replies)
... more confused than I thought I was. My mom is 63 and has been told she's in "end stage" COPD. Hospice is in our home but after reviewing Hospice's criteria for COPD patients it's not the typical 6 month time frame used by their assessment teams. Her pulmonologist has said 8 months maybe. ... (9 replies)
... isease is a group of diseases that includes asthma, bronchitis,emphysema, and bronchiectasis. At one end we have asthma, at the other end we have pure emphysema. Copd is the major cause of disablility and death in the USA. Two or more obstructive diseases may be present at the same time. ... (4 replies)
... Thanks Amy! It is one of the hardest things I have been through. From what I have read she is at the end of this disease. I understand the end can be quick or drawn out. I pray that my Mom doesn't suffer.
Our work schedules do not allow us to provide 24 hour care. Mom is too weak to stay alone now. We know she has fallen at least one time while home alone. She has had... (9 replies)
I also needed in the worst way to know how much longer my Mother would live. I wanted her suffering to end and I could not understand what kept her going on and on. Every case is different so there is no simple answer to the question. The end stages when things get really bad can go on much longer than you would think possible. Some COPD'ers pass sooner from... (9 replies)
... WOW! I can relae to these posts about COPD. My mom has been suffering so long from this terrible disease. She has been on oxygen for 5+ years and has only left her home to be taken to the Dr or hospital. We (my sisters and I) have been preparing Mom's meals since before Thanksgiving. We place in small freezer containers and label. She only has remove and heat in the mircowave.... (9 replies)
... Her breathing worsened to the point that she was winded after only a few steps. But the worst part of her illness was the deterioration in her mental status. COPD robbed my Mother of her mind. She hallucinated, seeing people who were not there, hearing sounds that only she could hear. ... (9 replies)
... I am also seeing this same thing happen with my mom.I am told she dont have much time left.but she is still holding on. (9 replies)
... What can I expect when death is near with COPD? ... (0 replies)
... Actually I made a career change after my Mother's death and spent seven years working in Hospice. ... (4 replies)
... dalton12399, I genuinely understand your questions here. This is exactly what I am going through with my Mother. She can be at death's door for two or three days. You think the end is near, you're making funeral plans, you're preparing yourself. Then the next day she's up and eating and you can't believe it is the same person. This cursed disease is so unpredictable, so... (4 replies)
... I don't know what you mean by "phase". I was diagnosed with emphysema COPD
16 years ago at the age of 40. Recently my breathing seems to be harder but I
attribute that to holiday weight gain and not exercising as much as I should.
You have to have a positive outlook. You can't sit back and resign yourself. You
have to exercise...it's a must....even it it's just... (10 replies)
... She said last night before we went to bed that she can't wait for the nurse to take her cathater out so she can finally walk to the bathroom. She is fighting death and it is making hard on all of us. I just hate to see someone live this way. ... (4 replies)
... Hi Everyone! I need someones advice out there. My mother-in-law has moved into my home on October 15th because we were told she is in her final stages of COPD. She is bed ridden, has a cathader and a diaper on and can't walk anymore. We originally were going to go with Home Health Care Nurse but they only come out 2 times a week and when they where here they said she... (4 replies)