... My niece also has laryngo malacia but you would not know as it has never ever caused a single problem ever. ... (10 replies)
... dnt do it there. I even imatated the sound and she said it was fine... it wasnt until she walked out of the room when my daughter did it.. she yelled in that was laryngo malacia.. i knew something was up, and as did you cazajacks i felt like an inconvience.. email me back with response.. not sure how often i will come on here.. ... (10 replies)
I accidentially ran across this post and just had to say something. My oldest daughter, now 30, was born not being able to breathe good, turning purple, stopped breathing several times a day, and could not swallow.
She was sent home like that as the doctor just "knew" it was malacia. Right! We spent the next 7 months in and out of his office clearing up one lung... (10 replies)
... Hi guys i am furious that so many mothers have been brushed off, as i also was, my youngest son was born 2006 and no doctor listened to me for seven weeks, my son had pretty much all the same symptoms as your children, only it has proven to be more sever!!!!My son is still undiagnosed but he has complete airway collapse, so from the larynx rite to the ends of his broncial... (10 replies)
... We found out that our 5 month old daughter has tracheo malacia when she was at her 2 month check-up. I had asked to doctor at the hospital about her breathing noises the day after she was born, he brushed me off and said it was probably just a little bit of mucus left in her lungs and not to worry she would expell it in a few days. But when her 2 month check-up came around,... (10 replies)
... Hi, i have posted this on the chidlrens board but then found this subject so am posting here too. I have a 13 yr old with Tracheo and Laryngo Malcaia and malacia of left main Bronchus, and Asthma, but in all her life i have never found anyone else with this conditions, is there anyone else on here with it? ... (10 replies)
... Hi bakingnut, Well it just goes to show doesn't it. Us mums are right when we feel something is wrong. Why do the Dr's not realise this. I cannot believe that your poor daughter has been left like this, does she cope ok, can she lead a near normal life.!
I am so glad my kids are now 15 and 17, because when they were little the doctors always thought i was just saying things... (10 replies)
... Hi ticp5 , i am sorry to hear how badly affected your baby is, it is such a worry and struggle isnt it. All the Dr's have said that the windpipe strengthens and should be near normal by the time they are 12 months old. So that is something to look forward to.
My daughter is now 17, and lives a near normal life, but she is one that didnt grow out of it. My thoughts are with... (10 replies)
... Hi bneamom, it might help if i add that my i used to have the name cazajacks, but am now willowthewisp as i could not remember my password!!! (10 replies)
... Hi bneamom
Isnt it just so annoying when no one listens to you, a mum always knows when something is wrong with their child and Dr's should listen to us.
My Daughter even went in for tests in a Londond heart hospital aged 18months and STILL they found nothing wrong.
She is 17yrs old now and anyone can still hear she has the Tracheo, All Drs i spoke to said it wasnt Tracheo... (10 replies)
... n. My daughter had a sort of noisy breathing for years, then started to get asthma. They done a bronchoscopy aged7 and diagnosed her with marked Tracheo Malacia, Laryngo Malacia and Malacia of the left main Bronchus. They normally grow out of it. ... (1 replies)
... I don't have the other conditions but I do have very severe asthma and I am seen at National Jewish for it. There I met a boy who had these disorders. He was being evaluated for severe asthma, but in reality he had laryngomalacia! Was your daughter premature or ever had to be on a ventilator as a child? I am betting her desaturation was due to her asthma, though I'm sure... (10 replies)
... my daughters doctor told me that my daughters nasal passages were small and that is why she breaths wierd. then the next visit he told me that she has laryngo tracheo malacia....what should i do? ... (1 replies)