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Lung & Respiratory Disorders / COPD Board Index
Pages: 1 2 3 4 5 6 7 8 9 Showing 1 - 20 of 185 for mai complex. (0.002 seconds)

... scan and noted bronchiectasis and suggested the possibility of an MAI infection. A respirologist did a bronchoscopy and confirmed the diagnosis. I had a lung function test and it was normal. ... (0 replies)
... Research. I feel SO blessed to have found him as he specializes in MAI or MAC. If anyone can have a reaction to any drug .. especially antibiotics .. in the past it has been me! I am now in the 2nd month on 4 antibiotics .. ... (2 replies)
... Hi Daph, It is my understanding that MAC (specifically Microbacterium Avium Complex)is one of the bacterial lung infections that can actually be cured. I once read the cure rate was between 30 and 40% specifically for MAC itself, but recently read the success rate was higher. I'm more inclinded to believe the smaller numbers. One of the big problems after having MAC is that... (73 replies)

... gene - I took the rifampin daily and by the 4th day, woke up in the middle of the night with fever, vomiting and shaking and chills. I was unable to get up out of bed for several days. The doctor wanted me to try again - he thought I had a virus - so I did try again - in fact I tried 2 more times and each time the same thing happened - vomiting, fever and chills. And I was... (85 replies)
... gene - I know a quite a few people who have had MAC and are in remission. I think the doctors call it "remission" instead of a "cure". I think if this disease is caught in the early stages, you have a good chance of being cured. However, it is harder if you have had it longer with no treatment. When I was diagnosed in 2002, I was treated here where I live but was... (85 replies)
... Yes, he did say I had bronchiactis. After all the research I've done on MAC/MAI over the past few days, I am pretty discouraged - seems to be a lot of possible complications. Reactions to the antibiotics, the bacteria becoming resistant, etc. Seems like many people are stuck with this for life rather than being cured. What are the chances of actually conquering this... (85 replies)
... I'm wondering if these could be false positives, and if MAI mimics some of the characteristics of these. With three diseases, it is hard to figure out what causes what. ... (85 replies)
... my first post. While researching Mycobacterium Avium Complex I came upon this message board. Finding other people that can relate to this disease is comforting, but I'm sorry you all have MAC too. ... (85 replies)
... Good to hear from you again jazzyj. Unfortunately it isn't with the best circustances. Have you been taking MAC meds and still got the psuedomonas ? I figured the big three kept my system from getting anything else. The doc insisted I have a flu and pneumonia vaccine last fall so maybe that did help. I used to get bronchitis a lot but since I was diagnoised with the MAC/MAI it... (85 replies)
... Welcome pegkro! Your story is so familiar!! I am fighting to gain weight.I just keep eating mac and cheese and ice cream and popcorn. Not much else seems to have any flavor. Several on this board have suggested the high protein drinks but if I have one it fills me up for the day.Maybe you could try it though? I am 60 but some days feel like 160! I get so fatigued it's an... (85 replies)
... Welcome to gaga413. Sorry you have to be here but you will find us a rather nice group. Yes MAI/MAC is also sometimes known as Lady Windermere Syndrome. It is derived by a play of that name from the 1930's by Oscar Wilde. It mentions a fastedious older women who will not shake hands when introduced. You can looked it up on your computer.The name is seldom used now,do you have... (85 replies)
... Welcome Spooner44! You sound almost as confused and confounded as I did when first diagnoised back in June '06.That was before I found the other ladies here and keep learning everything I can about the evil MAC/MAI bacteria. I had a bronchopsy 2 years previous to my diagnoises and nothing grew in the cultures and all my CTScans showed no remarkable growth. Then I had a... (85 replies)
... I was diagnosed in November of last year after having part of my lung removed for a suspected lung cancer, it turned out to be MAC or MAI as we know it. As Sharon mentioned many of us are thin and younger than it used to hit women. I'm 43 and 5'2" and thin. ... (85 replies)
... better after taking the antibiotics. I just started having the exhaustion and coughing ugly looking sputum occasionally that led me to believe the MAI was active again. As for your bronchitis not giving you problems, it could be the antibiotics you are taking was helping to keep it away. ... (85 replies)
... What would we do with all the extra time not spent with tests, doctors or taking drugs??!! Good news. Last week the neuro doc finally figured out my perpherial neuropathy. It is not from taking the ethambutol, although that might have contributed to it because the inflammation might have increased from taking the drugs. Bad news. It seems it's all from the spinal issues I've... (85 replies)
... your fevers, I would be weary of these. I started running my fevers again too but the doctor didn't seem to care. When I run a fever then it is a sure sign my MAI is active. The exhaustion has started on me again. In the afternoon I am totally wiped out. ... (85 replies)
... It is so great having imput from everyone. I had no problem with the rafampin except for the orange draining from my pores. It was the ethambuol that gave me major difficulty with my night vision. I also had to take the azithromycin after food to avoid tummy trouble. It still isn't clear if the ethambutol has caused the neuropathy in my feet or if it's the spinal stenosis or... (85 replies)
... Good to hear from you again Sue. The immune system is a bit off. It is probably with all of us. Why else would we be some of those select few that got MAC-attacked? There are so many different thoughts about wearing masks. One doc said they are useless the other said they won't stop the germs but will help prevent all that dust and whatever from going into the already... (85 replies)
... Allegra, Yes, I had the open thorocotomy procedure. For suspected malignancy. The reason I couldn't have the VATS procedure(because I DID ask for that) was because I had another "micro nodule" right where the upper and middle lobe meets as well. SO the surgeon explained that he wouldn't be able to get a good enough view of that nodule doing the VATS. They ended up doing a... (85 replies)
... Reading the past posts got me so upset. I can't believe how the doctors are treating some of you!..or should I say NOT treating you!! That is so awful. I am so very very blessed that I have doctors who actually listen and care! My primary doc always gives me all the options then asks me how I want to go about treatment. He knows all the things wrong with me but not how they... (85 replies)

Associated Tags: mac, mai

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