... Hi 😊,
It's a long shot that you will see this as your post was from three years ago. I have recently been diagnosed with LAM and would love to talk to you. It's so lonely going through this and not having anyone to talk to and to discuss the disease. If by chance you see this message I would love to be able to chat, I hope you're keeping well,
Victoria (4 replies)
... I've opened this thread because the other similar ones are closed and I wanted to leave a thank you message to those who have discussed their problem in the past. ... (0 replies)
... I just want to know how you're doing. Have you had the surgery? Do you have a diagnosis? Whatever the diagnosis you have options and the people here can help you.
Please let us know, we care (1 replies)
... because I know I won't be able to enjoy either being so tired and no energy most of the time. I hope you figure out what's going on. I'm new as of today to this message board and hope to get, and give answers as much as possible. I am 61, you did not mention your age and if you have other health problems. Good luck! ... (1 replies)
... I'm new to this site and may have already posted this message. My oxygen level is good, no apparent cause for this condition.
Docs don't know and treat symptoms with prednisone, etc., which doesn't help.
Anyone out there who can help? (2 replies)
... sms were found. I still feel horrible and am so scared they are going to come back or that I am not healing properly. I would love to chat more... feel free to message and vent! ... (1 replies)
... accidentally posted that last message twice. How can you delete a message? ... (5 replies)
I meant to ask you if you have had an x-ray or scan of your chest and lungs.
I take it you have if you have been in Hospital.
Were you told the results.
I believe you mentioned about some deterioration in your lungs. Did you ask what that meant,
Solofelix. (12 replies)
... Hi cazajacks,
Sorry for not getting back to you, I have just returned today from a week in Portugal.
I'm so sorry to hear you are still struggling to breathe.
Has there been any improvement since your message of the 31/8/14.
It's hard to figure out what your problem is as medication doesn't seem to be doing much for you.
I've always found Steroid treatment in Asthma or... (12 replies)
... a bit flustered when it happened. Never once did I hear "Oh this happens with some people". My primary care doc said that all it is is that my brain is getting a message that something is being force up it. Is there a way to tolerate this better ? ... (0 replies)
... most drs have an answering service and can get a message to them. ... (12 replies)
... Hi! I know the chances of you seeing this message are slim but I have to try. ... (10 replies)
... Hello and welcome to the message boards. ... (1 replies)
... :eek::eek::eek::eek:***first time posting on any message board ever-please be nice***
Have been dealing w/diaphragm paralysis for about a year...it's been very hard to handle....complete lifestyle changes in a short period of time.
Would like to visit/talk/whine with others in the same boat.
Somebody call the whambulance!
parker1261 (0 replies)
... I appreciate your message very much lady bud. ... (3 replies)
... So glad that I found this message board. ... (7 replies)
... Hi, new to the message boards - but about 2 to 3 months ago I had a CT scan done on my abdomen - picked up a lung nodule on right lung. Had a repeat scan again on abdomen and again showed the lung nodule except it was 4mm now is 6mm. Been reading up and honestly none of it looks real good - I go to a specialist early Feb - not sure exactly what to expect - was hoping to get... (0 replies)
... New at message boards, sorry for mistakes. ... (3 replies)
... s. I have been having a hard time logging back into this site to reply . . .today was my first success after many attemps . . I had given up as I kept getting a message that I was not a registered user. ... (3 replies)
... I am going to work on getting this message out...maybe an investative type show...12years ago I coughed for over two years...cracked 4 ribs coughing thought it was pulled muscles! became incontinent... ... (0 replies)