... Hi everyone,
I just skimmed through a few posts and one that hit me was the following.....
grammy1954 06-02-2004 10:42 PM
Re: MAC ?(Mycobaterium avium complex)
Yes, I have MAC. Finally got a definite diagnosis of this disease today after going to 3 Pulmonologists in the past 15... (237 replies)
... I've heard the same thing about getting it from hot tubs. I haven't ever actually been in a hot tub. I think I got it because of the weak spot in my lung due to having bronchiectasis. I do eat a lot of raw vegetables in salads mostly at work so I don't know if they are clean or not. I doubt it. I have read so much about all this stuff, I can't remember all I read. I did see... (104 replies)
... Hi Ann and Sharon,
The loss of a family member is always difficult, my sympathy and prayers go out to you and your family. I was never fortunate enough to have a brother or sister in my life but I certainly can understand what you are going through.
Sharon, I wonder why the doctor is waiting two months to do a lung scan. In the event the bacteria are still there and... (104 replies)
... Thanks for your empathy. I don't have too much faith in doctors. I am thankful that I am getting better, however, I was like you about my lung problem. I kept telling the docs that what ever was wrong with me was in my lungs but they wouldn't listen to me. I am a firm believer in being in tune with your body. I am constantly reading health sites to learn about health... (104 replies)
... I am so sorry to hear about your brother, Sharon. Sometimes, I wonder about the Drs. or maybe it is the expensive machinery that just doesn't detect everything. I have made a believer out of my Dr. When I tell him something now he believes what I am saying since he didn't send me to a lung Dr. when I told him something was wrong in my lungs. He thought I was a hypochondriac.... (104 replies)
... Hey Ann, hope you have a wonderful and safe Thanksgiving. Enjoy your time with your sis. I forgot to tell You and Peggy that my brother passed away on November 13th. He only lived about 8 weeks after the docs gave him the diagnosis of Lung Cancer. He tried to find out what was causing his pain from March until August and then finally the docs told him the 23rd of August... (104 replies)
... Hi to you both,
I am just trying to get finished with my job and then I will have more time to get back on the healthboards with you all and let you know what is going on. After the 30th with the exception of 1 day in Jan., I will have all the time I need to do things that I like to do. Trying to get packed now to go to my sisters at Wrightsville Beach tomorrow til Sunday. I... (104 replies)
... Peggy, I am so glad that you are doing better. I think you are right too about my doctors taking me off these meds so quickly. I am going to talk to my pulmonologist in a couple of weeks and tell her of my concern. My Infectious Disease doc stated that my areas were wide spread and he didn't think the areas where I had Mac was very large so he felt that 6 months on the meds... (104 replies)
... Hi Anne and Sharon,
I had a lung scan last week and saw my pulmonary doctor today. He was pleased with the scan results. Apparently the shadows in the scan are bacteria clusters and they have lessened. They are still there but are responding to the antibiotics. He said it is a nasty bug and takes at least a year to 18 months of antibiotics to get rid of it. Sharon, that... (104 replies)
... Sharon, so glad your lungs are feeling better. That's great. I've been on the meds one more month (I think) than you but have not noticed any lung improvement. As Anne says, it is difficult to tell which lung problem is causing what symptoms. I was hoping some of my symtoms were a result of the MAC instead of the COPD since then there was a chance to get better. I seem to have... (104 replies)
... So glad your tests turned out o.k. But I am also like you about wondering if they are done correctly. I had a stool specimen done to make sure I didn't have yeast and it was o.k.
My humble opinion, if that is worth anything") I think it is still your meds doing that to your mouth because my mouth was doing that too and the corners were splitting UNTIL....I bought these... (104 replies)
... Hello Sharon & Peggy,
I am so glad you both seem to feel better. Sharon, I am sorry to hear about your brother. My sister is going thru the same thing with her husband. He has melanoma and is now undergoing radiation treatments 5 days a week for about six weeks.
I was able to get my flu shot at work. Can't tell much difference in the way I feel. The stool sample... (104 replies)
... Hey Ann & Peggy, I wanted to a check in and see how you were both doing. I hope your lungs & all over health is continuing to improve. My lungs seem to be much better. I don't have to go back to my infectious disease doc until March. He wanted me to continue my meds till the end of December & then quit them. SO that means I will only be taking them for a total of 6... (104 replies)
... Sharon, so sorry to hear about your brother. That is tough to deal with. Glad your tests came out so well.
I know what you mean about the flue. I kid you not, last year I was very close to death with it and I don't think that is an exaggeration. I read in the paper today they are stopping the shots at local grocery stores, etc. (finally!!!) and will make the vaccine... (104 replies)
... Checking in Ladies, How are you? I didn't get notified by email of the lasts posts so I didn't know you had posted. I went to the pulmonologist Monday and she said that my lungs sound great. Bloodwork checked out fine. I had a stool specimen for yeast and it was fine. I have not and do not know where to get a flu shot. The vaccine had not arrived at Vanderbilt so the... (104 replies)
... Hi Peggy & Sharon,
Glad your bloodwork checked out okay Peggy and hopefully the MAC is gradually going away. I am like you. I am confused out the bacteria and the bronchieactasis and what shows up as what on the CT scans, etc. I did ask my regular Doctor today about what it is that comes up out of my lungs every night when I lie down and he said it is coming from the... (104 replies)
... Hi Ann and Sharon, I saw my Infectious Disease Specialist today. My blood work came back okay and he is pleased. I feel like I'm doing lousy but he reminded me how powerful these meds are and that they can cause terrible side effects. He says mine (that would be all of ours - so far!) are mild. He said again, that I must stay on them for the full year and even then there is no... (104 replies)
The feeling I had in my chest like bronchitis beginning never amounted to anything. I have strange feelings in my bronchial tubes periodically like I am coming down with a chest cold or something and then it will go away.
I stay pretty tired feeling all the time and especially in my back. I don't sleep well at night either. I get up at least 4 times most every night... (104 replies)
... Hi Ann and Sharon,
Ann, before I started the meds, I walked on my treadmill 3-4 miles, three times a week. Now I don't walk at all. I know I need to get back to it, but just don't seem to have the energy.
Sharon, the exhaustion all at once question. I guess sometimes that is the case. I feel so crummy most of the time, sleepy and tired (but still have huge problems... (104 replies)
... Hey Ann & Peggy,
I don't understand why my docs are only having me take the meds for 6 months either. I see the infectious disease doc in November so I am going to tell him about both of you & how long you have been on the drugs and then ask him why he is taking me off of the drugs so early. Yes, I want off of these high risk drugs but I also want this junk gone forever... (104 replies)