... up came around, she still had it. The doctor we saw that day just told me she had tracheo malacia, that it wasn't anything serious or dangerous, she would simply outgrow it and that I could read about it online. ... (10 replies)
I accidentially ran across this post and just had to say something. My oldest daughter, now 30, was born not being able to breathe good, turning purple, stopped breathing several times a day, and could not swallow.
She was sent home like that as the doctor just "knew" it was malacia. Right! We spent the next 7 months in and out of his office clearing up one lung... (10 replies)
... Hi guys i am furious that so many mothers have been brushed off, as i also was, my youngest son was born 2006 and no doctor listened to me for seven weeks, my son had pretty much all the same symptoms as your children, only it has proven to be more sever!!!!My son is still undiagnosed but he has complete airway collapse, so from the larynx rite to the ends of his broncial... (10 replies)
... She is 17yrs old now and anyone can still hear she has the Tracheo, All Drs i spoke to said it wasnt Tracheo as all babies grow out of it by their first birthday, well my baby is now 17yrs, so they were wrong again. ... (10 replies)
... e a rare condition. My daughter had a sort of noisy breathing for years, then started to get asthma. They done a bronchoscopy aged7 and diagnosed her with marked Tracheo Malacia, Laryngo Malacia and Malacia of the left main Bronchus. They normally grow out of it. ... (1 replies)
... my daughters doctor told me that my daughters nasal passages were small and that is why she breaths wierd. then the next visit he told me that she has laryngo tracheo malacia....what should i do? ... (1 replies)
... My niece also has laryngo malacia but you would not know as it has never ever caused a single problem ever. ... (10 replies)
... my daughter is 4 and a half months old. She started having "breathing fits" when she was just a few days old. when i was concerned about it.. at her 2 week apt they told me it was her forgetting how to breath... and then when she realizes it she takes a loud deep breath in. well a few weeks ago it wasnt going away only getting worse. so I brought her to the doc's and of... (10 replies)
... I don't have the other conditions but I do have very severe asthma and I am seen at National Jewish for it. There I met a boy who had these disorders. He was being evaluated for severe asthma, but in reality he had laryngomalacia! Was your daughter premature or ever had to be on a ventilator as a child? I am betting her desaturation was due to her asthma, though I'm sure... (10 replies)
... Hi, i have posted this on the chidlrens board but then found this subject so am posting here too. I have a 13 yr old with Tracheo and Laryngo Malcaia and malacia of left main Bronchus, and Asthma, but in all her life i have never found anyone else with this conditions, is there anyone else on here with it? ... (10 replies)
... Hi bakingnut, Well it just goes to show doesn't it. Us mums are right when we feel something is wrong. Why do the Dr's not realise this. I cannot believe that your poor daughter has been left like this, does she cope ok, can she lead a near normal life.!
I am so glad my kids are now 15 and 17, because when they were little the doctors always thought i was just saying things... (10 replies)
... Hi ticp5 , i am sorry to hear how badly affected your baby is, it is such a worry and struggle isnt it. All the Dr's have said that the windpipe strengthens and should be near normal by the time they are 12 months old. So that is something to look forward to.
My daughter is now 17, and lives a near normal life, but she is one that didnt grow out of it. My thoughts are with... (10 replies)
... Hi bneamom, it might help if i add that my i used to have the name cazajacks, but am now willowthewisp as i could not remember my password!!! (10 replies)