It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board


Lupus Board Index
Board Index > Lupus | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


Hi Angelic,

Thank you for your response. Please don't apologize for not responding. I know we are all busy and don't expect someone to rearrange their schedule for me. Thank you for getting back to me as soon as you did :-)

Before I go on, you know what confuses me about having Raynaud's - IF I do? Well everywhere I read it says it's about feeling cold and trying to keep warm. Well when my palms turn blue I NEVER felt cold. I never felt hot or cold. And what's weird is both the symptoms and descriptions AND the dr. told me it has to do with one extreme weather condition to another - going from hot to cold and vice versa. But it's SO not true. I never experienced the blueness going from hot to cold or anything extreme. My showers were never SO hot - they were totally warm - even a bit cooler. So I don't get that. I don't get any colder outside than I am inside. If that's something internal that my fingers and toes feel without my knowledge then I don't know. Another thing is my fingers don't turn pale then blue then red like the websites suggest. My dr. told me that it IS turning colors I just don't see it. I mean what's that all about? It is but I don't see it? The best I can describe it is my palms look blue. My veins are more visible. They are not bulging. I will say these 2 things. The veins do bulge in the inside of my wrist. You know your vein going straight up the inside of your arm? Well the bottom part closer to the wrist DOES bulge when it gets darker blue. But not my palm veins. Another thing. The past couple of days I DO feel really cold but my husband told me so does he. It's just normally I can walk in a t-shirt and never get cold even throughout the winter in my house. MY fingers and toes - the tips are cold now. But what's weird is the times they are cold my veins are fine. Nothing is happening at the same time. It's not like I am hot then moving to a colder climate then the veins get blue. Know what I mean?

I did print out a couple of things from Lupus but I don't know for sure. It's one of those things where it's a fine line. For example the following:

Achy joints - ok I have pain in my hands and ankles though the ankles are not as bad the past day or two. But I don't know if it's considered my joints.

Fever - don't have any.

Arhtritis - well again swollen - yes the top of my hand seems swollen but is it the hand or the veins or is it that I am always on the computer.

Fatigue - it says extreme or prolonged. I am more tired than usual but I think I am more stressed out and I just want to sleep and forget it all.

Skin rashes - no but that time I had that thing across my neck in July and August - I don't know is that a sign or not.

Anemia - I don't know.

Kidney - I don't know. I had a ctscan in the summer and the scan showed my organs are fine but I don't know how they are functioning.

Pain in the chest on breathing - yes but not all day and not everyday. It could be my stress or if I have some kind of gastritis. Remember I did have H. Pylori that could totally cause it too.

Butterly shaped rash - nope

Hair loss - nope but I always had thinner hair but I am not losing any now.

Blood clotting - I don't know obviously yet

Raynaud's - I don't know because my fingers don't turn white or blue in the cold. They do it no matter what.

Seizsures - nope

Mouth or nose ulcers - nope

Sunlight - I work from home so I am not out much anyway except the weekend. I haven't looked at my hands but if you mean while I am out does it bother me - not unless it's glaring.

I read another criteria I think you said 11 somewhere but I don't have that in front of me now I don't know if I printed it or not. I did start eating more fiber and pineapple and taking one Bayer a day - and it doesn't do anything for me. I stopped having any seltzer which I love and caffeine because it suggests you don't do that. I followed it but I don't see what it's doing for me.

When you say the symptoms don't have to occur right now. How does someone know if they have it if it doesn't occur. I don't know 10 years from now - lol. It is hard to figure this out isn't it - wow.

The above I posted from my printout now I will answer your questions - k? :-)

Have you ever had mouth sores? - NO

Do you get very tired really easy? The past 2 days because I am worried about all this. But normally no.

Do you get black circles under your eyes, and do people ask you if you aren't feeling well? No and No.

Have you ever had kidney inflammation episodes, or documented inflammation of the heart, lungs, or other major organ? Not that I know of and I have been to doctors a lot in 2 years for follow ups and all that stuff. Many blood tests that are fine.

Do you get headaches? Not really.

Do you feel like your eyes are dry or get the feeling that there is something in them? No.

What happens to you when you are in the sun? Nothing as far as I know but all my life I get car sick when it's really sunny. But so does my younger sister. Since we were 4 years old or so. I don't vomit or anything but the movement in the heat bothers me if it's really hot but that's not so strange. I know plenty of people who that happens to.

What happens to your skin in the cold? I don't know since I haven't checked but the past few days when I am cold, I am just cold. My skin doesn't do anything. When it turns blue it's the veins in my palms and I do notice that the veins in my legs are more apparent. But with my legs I don't know if it wasn't always like that. I normally don't stare at my body - lol.

Have you ever had a positive ANA (anti-nuclear antibody), or other autoimmune tests? (like thyroid, etc) - actually because I try to lose weight all the time and it comes off so slowly or doesn't at all, I went to have my thyroid checked a few times. I got a negative for like 3 years than last year I got one positive then 2 tests after that were negative recently. The only thing that was high but within 2 weeks changed was my prolactin hormone level. It was VERY SLIGHTLY high so they rechecked it 2 weeks ago and it was perfect.

Thanks for the quesionnaire - I appreicate it. I should be sorry for writing you novels - lol.

I am honest over the years I have NEVER been ill. NEVER. Before I got married, no problems whatsoever. Four years ago when I got married the only 2 things that I can remember are my periods would be like 3 weeks late most of the time except for one or two months which were on time. That's actually why I made them check my hormones last month. I never bothered asking before I thought maybe my weight gain since marriage did that with my period. That's usually irregular except this month it was a day early :-) Perfect so happy about that. The only other thing I can notice is I have dryer skin - lol. That's really it. My first and only problems started this summer with my chest pains and they did 3 ekg's so far and an echocardiogram - I was perfectly fine.

I don't have stomach problems that I know of. My stomach never hurt and I NEVER have heartburn. That's why when the dr. said I could have gastritis and ulcer related stuff I laughed. I NEVER get heartburn but he said that's irrelevant. Then he found out I had h. pylori which technically the meds should have cleared up by now. I will follow up with an endoscopy to make sure. Otherwise I feel totally fine in the stomach area.

The only other thing I can possibly think of is back aches every other day. But that can also be the way I sleep, move, I am in a chair all day typing and don't sit up the way I should, I need to lose like 40 lbs. that could do it. That's the problem all my symptoms except the blueness can be SO many other things - right?

Thank you so much for your response and for your help and for your kindness. I feel so comforted knowing you guys are here. I will surely update you tomorrow night after my nerve conduction test. Also, the rheumy called today - they moved up my appt. to Dec 11th (my bday :-) I am hoping she says I have nothing - lol. I am so sorry for my mega long post. I assure you from now on it will be shorter. I just wanted to get all the info to you so you have a better idea. I hope we can continue posting to each other even if I don't have it. I am not the type to skip out on friends. I am busy so I can't write everyday but I will try my best to keep in touch anyway. I'd love your advice on this post of course :-)

Thx.





All times are GMT -7. The time now is 04:23 AM.





2018 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!