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Hi Debbie! :)

You certainly can have Lupus without the fevers and rash. Sometimes, the fevers can be just a low grade one that you can barely tell that you have. They can occur in the afternoon and evening. A good thing to try is taking your temperature in mid afternoon (about 3ish) and then again around 9pm to see what it is at. Just to make sure! Let me know what your temp is at.

The reason why they make the criteria list is because there are so many people with different symptoms. 4 out of 11 of the criteria lead to a diagnosis of Lupus. Talk to you soon!!

~Luv, Dana
Aha! That is what I suspected. When people read "fever" they think that it has to be over 100 degrees! With Lupus, generally it can be under 99 but still be considered "low grade". Thanks for taking your temp.. that will help lots too! I am looking forward to hearing about your test results Debbie. Remember that even if they are negative right now, it does not "rule out" APS completely because there are people (like me!) that have the symptoms but the blood work is negative. I am still being treated and let me tell you, I am a lot better off that's for sure!! Anyway- can't wait to hear.. please let me know as soon as you can :)

~Luv, Dana XO
That is what I suspected. When people read "fever" they think that it has to be over 100 degrees! With Lupus, generally it can be under 99 but still be considered "low grade". Thanks for taking your temp.>>>>

I have a question. If you take your temp when you are up and around in the afternoon, wouldn't that be 'falsely' elevated just due to the activity? I was taught a true temp reading was at rest.

Also, my temp jumps a full degree after I ovulate so how do I know which temp to go by...the times before I ovulate or after?
Dear AngelaA,

A huge pet peeve of mine, too: all those misunderstandings by doctors (who should know better :eek: ) about lupus & rashes! There are more lupus-specific rashes than "malar" (butterfly, on face) and "discoid" (in the depigmenting, scarring sense of the word "discoid").

* There's one called SCLE = subacute cutaneous LE, which favors upper arms and torso & is nonscarring and non-depigmenting. It can be ringlike or small-bumpish-like. Many folks with it have Ro &/or La antibodies, but some don't.
* There's another called "tumid" lupus.
* There's another called "bullous" lupus.
* And then there are a whole lot of people who NEVER get any rash, just as you state.

I hope you set that doctor straight! Never a pleasant thing to try, huh?!

Best wishes to all, with or without rashes! from Vee (many years of SCLE rash & two really hideous "bullous" ones, too)





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