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I have been ill with a "mystery illness" for about 2 1/2 years now. My primary symptoms have been gastrointestinal-- diarrhea, abdominal pain, malabsorption, vomiting, nausea, etc.-- but so far, colonoscopies and endoscopies have not revealed a cause.

I do have some lab results-- particularly a consistently elevated neutrophil count and a persistently lowered lymphocyte count-- that point towards autoimmune illness. My other symptoms include severe, chronic fatigue; frequent migraines; history of autoimmune, HYPERthyroidism (though now testing normal); and lots of rashes as a child and teen (but not the "classic" butterfly rash.

I was wondering if others have had gastrointestinal symptoms as a main component of their lupus? Have you heard of lupus presenting like this? Right now, doctors haven't been able to offer much in the way of treatment, because we are unsure of the cause. I'm hoping that if I can get a diagnosis, treatment might be a little bit easier.

From the stickies, here are the lupus criteria that I meet (I put a "*" by the ones that apply to me) :


[QUOTE]ACR CRITERIA FOR DIAGNOSING SLE
Malar Rash
*Discoid Rash-- I had some type of rash like this on my hands for several months. I can't confirm that it was a discoid rash, though.
Photosensitivity
*Oral Ulcers-- Yes, and also nasal (and vaginal ulcers-- confirmed not to be herpes)
Arthritis
*Serositis (pleuritis or pericarditis)-- I believe I have had pleurisy before, but again, not medically confirmed at the time.
Renal Disorder (persistent Proteinuria in the urine or cellular casts)
Neurological disorder (seizures or psychosis)
*Hematologic disorder (anemia, Leukopenia or lymphopenia on two or more occasions, thrombocytopenia-- consistent lymphopenia, occasional thrombocytopenia
Immunologic disorder (positive LE cell preparation, abnormal anti-DNA or ANTI-Sm values, False postive VDRL (syphilis test)-- not done yet
Abnormal ANA Titre[/QUOTE]

[QUOTE]
And I have to add that the team of doctors at St Thomas' Hospital in London England (Including Dr. Graham Hughes, leading Rheumatologist) compiled a list of Criteria to correspond with the one I just posted. It is:

ST THOMAS HOSPITAL CRITERIA FOR DIAGNOSING SLE

1. Teenage "growing pains"

*2. Teenage migraine

*3. Teenage "glandular fever"

*4. Severe reaction to insect bites

5. Recurrent miscarriages

*6. Premenstrual exacerbations

7. Septrin (and sulphonamide allergy)
[I don't know that I've had Septrin. I'm allergic to penicillin.]

*8. Agoraphobia

9. Finger Flexor Tendonitis

*10. Family history of autoimmune disease

11. Dry Shirmer's Test

12. Borderline C4
[don't think I've had this]

13. Normal CRP with raised ESR
[very low CRP....not sure about ESR...just had that one re-tested and results aren't back yet]

*14. Lymphopenia


[/QUOTE]





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