... Hi! I'm new to this board and have never posted before but hoping I can get some answers and support from this to make myself not feel crazy. I've been experiencing pain in my hands for a year or so now. I have a pacemaker due to Inappropriate Sinus Tachycardia—paroxysmal A-V junctional tachycardia. I've had several ablations and was diagnosed with IBS in 2007 and my dad has... (0 replies)
... Hi, I know how you feel. I'm 58, went to the Rhemy with joint pain, swelling, stiffness. I was already going to Rhemy for fibromyalgia. My CPR was positive as well as ANA 1:160 homogeneous. Also my anti-smith, rnp, and scl-70 were extremely high with anemia. But doctor won't diagnosis, says the lab work is puzzling. He admits high anti-smith is "virtually diagnostic of... (10 replies)
... I've been scouring these boards since first getting diagnosed by my local PCP's office (including a rheumatologist) with having LUPUS and have found a tremendous amount of valuable information here and hopefully someone can provide me with some insight.
After my diagnosis, I decided to go to a major hospital in the area that had an area dedicated to LUPUS for ongoing... (8 replies)
... Also, some people have a somewhat elevated ANA due only to aging, to a family tendency, or to a passing bacterial or viral infection. ... (8 replies)
... She is going to retest in two months. She said this could be a false reading. I'm not sure why she said that because my ANA was the same last summer. ... (8 replies)
... Just got a call from my doctor's office stating that my lab results showed ana 1-160, WBC 2.9, and vitamin D 19. Lets just say...... that I hate lupus!!! (1 replies)
... Obviously the elevated ANA means something right. ... (3 replies)
... and had an ANA come back negative. i was on Prednisone at the time for a bad headache that I had. ... (0 replies)
... nysue, I'm just a patient but I think your labs and symptoms could be suggestive of lupus, but only depending on your lab levels. To put your lab results into context, you really do need the reference ranges. Also, there are OTHER tests typically run when lupus is suspected, so you'd want to know what ELSE was run. Could you procure hardcopy of your labs?
To illustrate.... (28 replies)
... Retired, I understand being upended by the word "lupus". I was, too. I headed to the library & borrowed hardcovers with greater detail that you can find online. From them I was able to see if I did have lupus (and I'd had a whole slew of on-off symptoms since early childhood), that even so, it was likely on the milder side. Why? Because my major organs were OK.
Yes,... (8 replies)
... write back before now! Anyhow, ANA is only a general test that can be positive in a wide variety of conditions, not just lupus. The ANA test involves doing successive dilutions, and inspecting the sample at each point to see if "fluoresced material" still shows up. ... (1 replies)
... This was a test to confirm Lupus but Normal titer was <1:80. With a titer of <1:160 be positive and what is Nucleolr (1 replies)
... Other findings beyond ANA would be required to be diagnosed with any of the AI's. ... (4 replies)
... Hi blessedbeauty,
I thought I would reply through this thread because I don't know how to message people, but I have crohns (for 8 yrs starting at 15) and am being tested for lupus now too.
I had a positive ana at 1:160 but they say that it could also be from remicade, I'm awaiting more specific results too. This past year I've also had joint pain in hands (unusual for... (1 replies)
... Could a cold virus make my ANA titer number shoot up that high? ... (2 replies)
... If there is anyone out there that can offer and info to me, I would be grateful. I have been feeling sick for about 4 years now; mostly fatigue, joint pain & stiffness, had a low grade fever in the evening for about 2 years (that has gotten better), been losing hair in clumps for about 2 years, some dizziness, now with new dr., I Waas found to have a positive Ana 1:160, and... (7 replies)
... Can all this really be from anxiety and stress. Would all the stress ect cause the positive ANA test. ... (3 replies)
... loveand light, hi & welcome! Having been thru many years of problems, I found out I didn't ask the right questions. But I'm only a patient, so please read what I write in that light, OK?
First off, have you seen the sticky posts = permanent info posts, at the top of the thread list? They have info on tests, comprehensive books you can borrow from your local library, etc.... (3 replies)
... Hi, I'm a newbie here and have some questions about Lupus which I'd be most grateful for any info. I've been reading a bit on various sites. I've had chronic fatigue for years but just put it down to being a busy single mum of three,with an active lifestyle, I use a chainsaw, chop wood, do heavy gardening work, car mechanics,diy etc. Since Christmas I felt more tired than... (4 replies)
... and my sister has it as well!! However, neither of us has any symptoms of lupus...and my sister has had her ANA levels fluctuate throughout the last 10 years. She is now 45 years old...and has still never had any symptoms of lupus. ... (17 replies)