... Hi, I know how you feel. I'm 58, went to the Rhemy with joint pain, swelling, stiffness. I was already going to Rhemy for fibromyalgia. My CPR was positive as well as ANA 1:160 homogeneous. Also my anti-smith, rnp, and scl-70 were extremely high with anemia. But doctor won't diagnosis, says the lab work is puzzling. He admits high anti-smith is "virtually diagnostic of... (9 replies)
... I've been scouring these boards since first getting diagnosed by my local PCP's office (including a rheumatologist) with having LUPUS and have found a tremendous amount of valuable information here and hopefully someone can provide me with some insight.
After my diagnosis, I decided to go to a major hospital in the area that had an area dedicated to LUPUS for ongoing... (5 replies)
... Hi Gypsie Girl,
I am no expert, but I can tell you that my rheum told me an ANA of 1:160 is significant. It sounds like you might have some of the symptoms of lupus as well. Hopefully the other lab results will give you more of a clear understanding of what is going on. It sounds like you have good doctors that are taking this seriously. I would be interested to know what... (6 replies)
... Funny thing is that I have a very unique name and I was accidentally put in as a new patient due to a spelling error and they were only going to rerun the ANA until I stated that Dr "H" had previously diagnosed me with fibromyalgia. ... (6 replies)
... like you mentioned. I'm not sure how lupus patients can tolerate not having a diagnosis for many years like you did. Thank you for clarifying and sharing how the Ana test works in people with lupus. ... (9 replies)
... The ANA levels typically fluctuate over time, not rise in a linear fashion. ... (9 replies)
... Also, some people have a somewhat elevated ANA due only to aging, to a family tendency, or to a passing bacterial or viral infection. ... (8 replies)
... She is going to retest in two months. She said this could be a false reading. I'm not sure why she said that because my ANA was the same last summer. ... (8 replies)
... Just got a call from my doctor's office stating that my lab results showed ana 1-160, WBC 2.9, and vitamin D 19. Lets just say...... that I hate lupus!!! (1 replies)
... Obviously the elevated ANA means something right. ... (3 replies)
... and had an ANA come back negative. i was on Prednisone at the time for a bad headache that I had. ... (0 replies)
... nysue, I'm just a patient but I think your labs and symptoms could be suggestive of lupus, but only depending on your lab levels. To put your lab results into context, you really do need the reference ranges. Also, there are OTHER tests typically run when lupus is suspected, so you'd want to know what ELSE was run. Could you procure hardcopy of your labs?
To illustrate.... (28 replies)
... Retired, I understand being upended by the word "lupus". I was, too. I headed to the library & borrowed hardcovers with greater detail that you can find online. From them I was able to see if I did have lupus (and I'd had a whole slew of on-off symptoms since early childhood), that even so, it was likely on the milder side. Why? Because my major organs were OK.
Yes,... (8 replies)
... write back before now! Anyhow, ANA is only a general test that can be positive in a wide variety of conditions, not just lupus. The ANA test involves doing successive dilutions, and inspecting the sample at each point to see if "fluoresced material" still shows up. ... (1 replies)
... This was a test to confirm Lupus but Normal titer was <1:80. With a titer of <1:160 be positive and what is Nucleolr (1 replies)
... Other findings beyond ANA would be required to be diagnosed with any of the AI's. ... (4 replies)
... Hi blessedbeauty,
I thought I would reply through this thread because I don't know how to message people, but I have crohns (for 8 yrs starting at 15) and am being tested for lupus now too.
I had a positive ana at 1:160 but they say that it could also be from remicade, I'm awaiting more specific results too. This past year I've also had joint pain in hands (unusual for... (1 replies)
... Could a cold virus make my ANA titer number shoot up that high? ... (2 replies)
... If there is anyone out there that can offer and info to me, I would be grateful. I have been feeling sick for about 4 years now; mostly fatigue, joint pain & stiffness, had a low grade fever in the evening for about 2 years (that has gotten better), been losing hair in clumps for about 2 years, some dizziness, now with new dr., I Waas found to have a positive Ana 1:160, and... (7 replies)
... Can all this really be from anxiety and stress. Would all the stress ect cause the positive ANA test. ... (3 replies)