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Pages: 1 Showing 1 - 20 of 26 for diagnosing antiphospholipid syndrome. (0.017 seconds)

... If you have possible Lupus, then you are more predisposed to a syndrome called Antiphospholipid Syndrome. It can occur with Lupus or without, and is also known as sticky blood. ... (0 replies)
... You say your knee problem is keeping you awake at night. I am not diagnosing of course but the way you describe it, it might even be a Bakers Cyst. Only your doctor can check this for you, you must go and see him as soon as you can. ... (16 replies)
... Hi and welcome. One thing that stands out to me is a positive anti-La coupled with negative anti-Ro. (I was the opposite, Ro-positive and La-negative.) The literature I've read says yours is an extremely rare finding for these 2 tests, but I'm not sure what that signifies, if anything (sorry). While some symptoms sound particularly lupus-like (onset of pain at puberty,... (9 replies)

... be APS, antiphospholipid syndrome. APS is a blood clotting syndrome seen in a fair number of lupus patients, or occasionally "standalone", I think. There's a sticky on APS, too, where you can read about symptoms, etc. ... (3 replies)
... Hi & welcome. I'll keep this quick, because I just want to point you to a few things you can read. I hope you'll post more soon. There are three "sticky posts" (permanent info posts) at the top of the thread list. One has the Am. College of Rheumatology criteria for diagnosing & classifying systemic lupus (SLE). You generally must meet at least 4* of the 11, but not... (8 replies)
... unfortunately! The other two "sticky posts" discuss various tests, symptoms, and criteria used in diagnosing lupus. Once you read the ACR criteria, you'll see that some are skin problems, some are systemic problems, and the remainder are lab criteria. ... (3 replies)
... Mojosfire, hi & welcome! Obviously I'm ONLY a patient, but several of your points rang bells with me... Have you read the three "sticky posts" (informational posts) at the top of the thread list? One lists the ACR criteria for diagnosing & clasifying systemic lupus (SLE). Generally you must meet 4 (or more) of the 11, not necessarily all at once; so visualize checking... (6 replies)
... Jo, Hello & welcome! I'm so sorry to read about the very tough problems you've been having. I'm merely a patient, but it makes sense to me that you see a rheumatologist. If you don't want to say you've been reading online, you could say that a friend (or co-worker, etc.) zoned in on something you cited (rash, joint pain, miscarriages, etc.) and reeled off some autoimmunes... (9 replies)
... I second the motion to have your daughter tested for antiphospholipid syndrome. I was disappointed to read that this test was not done the first time around, especially with several of the symptoms your daughter has mentioned. ... (11 replies)
New to Lupus
Apr 21, 2008
... Jessica, Hi & welcome. I'm sorry you're having such a time of it. If I were in your shoes, I'd be wondering about the following. First, ANA can fluctuate. But according to Dr. Wallace in his lupus hardcover (available in most libraries), it isn't a strong indicator of the disease process. And because it's a titer test, different labs could get different results from a... (3 replies)
New to board
Mar 2, 2008
... Annie, welcome! I'm only a patient, and obviously only your doctor(s) can provide valid info. But I hope some of what follows can help pad out the questions you're already developing. I had widespread tingling, which *may* have been B12/Folate anemia related. Also, my tingling was the worst in my rash areas (upper arms/torso, later determined to be subacute cutaneous... (8 replies)
Is this it??
Nov 17, 2007
... They're permanent informational posts. One lists the criteria for diagnosing systemic lupus. You must meet at least 4 to support a Dx of SLE, but not necessarily all at once. ... (1 replies)
... criteria for antiphospholipid syndrome, which you already have a Dx for. ... (3 replies)
... Hi, Minerva. I'm sorry you've been going thru this without getting clarity. About RF: My understanding is that it can be positive in lupus, as well as in RA. Have you seen Dr. Daniel Wallace's book on lupus? It's a great source & does speak to this point. About diagnosing RA: I think its diagnostic standards are complex and layered. For example, you must meet some... (5 replies)
... although I'm still far from back to normal. After a year, I pinned him down for a diagnosis, and finally got what I knew all along. I have lupus and antiphospholipid syndrome. This is after 9 years of having 6 out of the 11 diagnosing criteria, and 15 years after starting with symptoms. So don't get discouraged!! ... (4 replies)
... e.g., lupus, antiphospholipid syndrome, RA, etc. ... (2 replies)
... Dear Tanya, welcome! Here's a reading suggestion: there are several "sticky posts" at the top of the Board's message list. They contain the critetria for diagnosing lupus & also antiphospholipid syndrome (a clotting disorder seen in many lupus patients). You could read these---then fire off more questions, depending on what most catches your eye. Also, have you seen a... (2 replies)
... I think that you need to be tested for Antiphospholipid Syndrome. Please read "Neurological symptoms and possible Lupus? ... (1 replies)
... also known as Hughes Syndrome was first found in patients with Lupus in the 1980's by Dr. ... (35 replies)
... Its a syndrome that involves dry eyes and dry mouth etc Every area that can become dry does! ... (7 replies)

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