... fatigue from early adolescence. ... (6 replies)
... Babs, I have been out of commission for a bit, but normally active on this board. Your dry eyes sound like Sjogren's. an autoimmune disorder that affects the tear glands and saliva glands (dry mouth) and sometimes dry vagina. I would be sure your Dr checked you for SSA and SSB the two antibodies sometimes positive in Sjogren's. The hives brought on by sun exposure sound like... (8 replies)
... Thanks ladies!! Vee I gave my dad one of those looks he used to give me when I was a kid & over stepping my boundaries. He got the picture real quick lol. I had a pretty good birthday me & the hubby celebrated thurs instead of Fri since we both got off early. He brought me the Coach glasses I've been wanting FOREVER since my eyes have been being so dry I've been wearing my... (76 replies)
... by using sentence fragments and bulleted lists. I kept early history very short. ... (16 replies)
... Yes, Happy Birthday! I developed lupus in my early thirties and am still going at 64! With good treatment, you should be able to enjoy a normal life expectancy, grandkids and all. ... (76 replies)
... etata, hi & welcome. I can truly sympathize because I had on/off problems from early childhood, including 22 years of chronic IBS-like problems, severe enough to require hospitalization several times. Like your doctors, my gastros ruled out the INFLAMMATORY bowel diseases (ulcerative colitis and Crohn's).
First thought. Have you been tested for Celiac?
Second thought.... (1 replies)
... What other early onset signs would signal something in a lupus patient? ... (7 replies)
... Hi Angie, Sorry you are dealing with increasing problems. The symptoms of nephritis early on are just blood and protein found in the urine, and sometimes casts. ... (1 replies)
... my rheum made an offhand remark one day that "lupus loves hormonal fluctuations". Certainly UV light can cause lupus to flare. ... (5 replies)
... Having any lupus rash means you have lupus to some degree, meaning Cutaneous vs. Systemic. ... (5 replies)
... Women with lupus often start going thru menopausal changes early, even in 30's, so an estradiol level may be helpful to see if hormonal. ... (9 replies)
... of an extremity. More evidence that your disease is ramping up and you need aggressive treatment. The pneumonia COULD be lupus pneumonitis, which looks similar to pneumonia on xray, symptoms are similar, but there is no germ involved. ... (32 replies)
... For example, many people with lupus also are hypothyroid. ... (11 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma.
I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)
... Vee, you have no idea how helpful you've been. Thanks for the great info. about facial rashes.
As far as my lung situation, I had hilar adenopathy that finally resolved on its own. None of my docs know for sure what was/is in my lungs because we decided against invasive thoracoscopy surgery. And because my lung function tests came out above average, we took a wait and... (11 replies)
... AJ, hi. I've read that testing facial rashes is less straightforward, as your rheumie stated. First off, it's your face, which is probably harder to biopsy. Then there's the cosmetic consideration (scarring) to consider. And if the dr. chooses to biopsy some OTHER area (i.e., a lupus band test, done on nonlesional skin), I think results there are positive in a much lower... (11 replies)