... Twelve years ago, I was tested for Lupus after symptoms of joint pain. My ANA test came back positive and no diagnosis was made because of no other symptoms. ... (1 replies)
... Of the specialized tests you'll probably have, one key one is ANA, a test that detects autoantibodies. However, ANA isn't specific to lupus because it may be positive in quite a few other conditions. ... (2 replies)
... t levels. So maybe next week when you go in you'll be more symptomatic and additional tests will show something. That is awesome she spent so much time with you. Early on, many people with lupus and other autoimmune disorders test negative, but eventually things start to show up to confirm what is going on. ... (21 replies)
... TG. Many people with lupus have Hashimoto's also. Since you forget to mention symptoms and ask some of your ? ... (5 replies)
... flu, sometimes one after another, despite taking antibiotics. On the other hand, if this is lupus, people with lupus do get an abnormal number of infections, e.g. ... (5 replies)
... located right above the posts, and you could find the criteria for RA elsewhere. Once you read the lupus criteria, drop another line if you want to discuss them, or anything else. Keep us posted, OK? ... (4 replies)
Thank you both for your replies! I really appreciate any insight I can get. I feel like I put so much pressure on these half hour appointments and forget to ask half the things I wonder or to tell her about half of my symptoms.
I have been looking as well about this whole tapered finger thing and I have found nothing on line about it. She kept calling it a "soft... (5 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... or diagnose any lupus rash visually, for that matter. The only sure way is skin biopsy with immunofluorescent stain tests. ... (5 replies)
... re fatigue. I do hope that someone has tested your thyroid in the meantime. I have never heard of tapered fingers being suggestive of lupus. It is true that many lupus patients are sensitive to Sulfa, but so are lots of other people, so I wouldn't give much weight to that. ... (5 replies)
... I just have a few questions. About two years about ago (when I was 25) I was really sick with a flu like cold for about 2-3 months. When I finally got better I headed back to the gym but I couldn't do all the things I could before. I was weaker and my flexibility was gone. I figured it was the time off but instead of getting better I got worse. I have been gaining weight... (5 replies)
... specific rash, you have lupus to some degree. ... (8 replies)
... P.S. I had a slew of signs from early childhood but wasn't diagnosed with lupus for decades. I'll never know whether I was a "slow evolver" or whether it was present for some of those years. ... (8 replies)
... Cari, I'm really sorry you're struggling with so much & glad you're seeing a rheum this week. Is this your first rheum? I'd expect him to run all new tests; they often do, using labs that they know are skilled at the AI tests.
Have you seen the sticky posts (permanent info posts) located above the user threads? They contain basic info on lupus: diagnostic criteria, common... (14 replies)
... a few years later I got pregnant, my waters broke early and my son was born prematurely and died. I was told it was a one off. I pushed for tests and got a positive ana. ... (6 replies)
... The thing that scares many patients about Plaquenil is potential eye toxicity, but my favorite lupus author explained this in a way that quelled my fears. ... (7 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma.
I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)