... Hi. I've had similar crushing fatigue and pain episodically, from early adolescence onward. ... (5 replies)
... By early 40's, fully mature form of SCLE annular rash. At age 48, dx'ed with lupus. ... (1 replies)
... Ive read the alternative criteria! I match 5 of them. I agree I need to find a rheum that knows about unusual cases! Hope I can...
Im seeing a gastroenterologist that is specialist in Inflammatory bowel diseases. ive done a bunch of tests (colonoscopy, asca and anca,etc) but all inconclusive...
She diagnosis me with SIBO after a breath test. I was on antibiotics and... (14 replies)
... Hello. I've had health issues for years and became I'll again early in June. ... (5 replies)
... kidney involvement in lupus is usually described as asymptomatic, meaning causing few physical symptoms. Yesterday, was it protein or was it blood in your urine, do you know? ... (7 replies)
... I cannot find the sticky notes you are referring to but I can say it makes sense that sypmtoms manifest itself very early on before diagnosis is made. When i was younger tests showed up protein in my urine. ... (14 replies)
... One of my lupus hardcovers discusses GI problems in lupus. ... (14 replies)
... and nothing called lupus band test, but i think i find a laboratory that does what they call "direct immunofluoressence" and in the description they say it can diagnosis lupus. ... (14 replies)
... migraines from early 30's on, photosensitive rashes starting in late 30's, hair loss, weight loss, ETC. ... (14 replies)
... CCP is a test for early RA. ... (4 replies)
... negative lupus nephritis is interesting. ... (8 replies)
... or symptoms. There's a lot of symptom overlap, unfortunately, among lupus and its "close cousins". ... (15 replies)
... Hi everyone, new here! I've been reading these boards for a few months but I've been feeling kind of alone since meeting with my rheum and I thought it might be helpful to talk with other people who understand what I'm going through. Even though I have a wonderful support system with my family and boyfriend, I'm sure it's hard for them to fully grasp how I feel. A little... (9 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma.
I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)
... Vee, you have no idea how helpful you've been. Thanks for the great info. about facial rashes.
As far as my lung situation, I had hilar adenopathy that finally resolved on its own. None of my docs know for sure what was/is in my lungs because we decided against invasive thoracoscopy surgery. And because my lung function tests came out above average, we took a wait and... (11 replies)
... AJ, hi. I've read that testing facial rashes is less straightforward, as your rheumie stated. First off, it's your face, which is probably harder to biopsy. Then there's the cosmetic consideration (scarring) to consider. And if the dr. chooses to biopsy some OTHER area (i.e., a lupus band test, done on nonlesional skin), I think results there are positive in a much lower... (11 replies)