... Hi and welcome. Glad you found us. I've read articles about the challenges of differentiating APS lupus (lupus with antiphospholipid syndrome), CNS lupus (lupus with central nervous system involvement), and MS. To be honest, I'd never known that MS can cause, at least early on, a positive ANA in 1/4 or more of MS patients. Researchers may have studied whether ANA in MS stays... (3 replies)
... never have a positive ANA. Your RF is elevated which could be significant for rheumatoid arthritis. Some people, like me, have both lupus and RA. It took 10 years for my ANA to turn positive after I had full blown symptoms of lupus for that long. ... (1 replies)
... CCP that's considered a pretty good marker for early RA. Has it been run? ... (1 replies)
... Glad to see your update and that your new rheum is very interested in getting to the bottom of this. I had symptoms from my early teen years but was hard to diagnose, too. Speaking of which... ... (4 replies)
... welcome! Lupus actually has a very wide age continuum, and even things deemed "rare" can happen. ... (10 replies)
... certain symptoms are also criteria, so a doctor assessing for lupus must ALWAYS look beyond mere labs. ... (20 replies)
... It seems you have identified a possible genetic link with your illness and your Mom's. I am so sorry you lost her at an early age due to possible missed diagnosis of lupus. Some of her symptoms and autopsy findings could fit, especially the cardiomyopathy, renal disease and malar rash. ... (3 replies)
... Hi everyone, new here! I've been reading these boards for a few months but I've been feeling kind of alone since meeting with my rheum and I thought it might be helpful to talk with other people who understand what I'm going through. Even though I have a wonderful support system with my family and boyfriend, I'm sure it's hard for them to fully grasp how I feel. A little... (9 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma.
I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)
... Vee, you have no idea how helpful you've been. Thanks for the great info. about facial rashes.
As far as my lung situation, I had hilar adenopathy that finally resolved on its own. None of my docs know for sure what was/is in my lungs because we decided against invasive thoracoscopy surgery. And because my lung function tests came out above average, we took a wait and... (11 replies)
... AJ, hi. I've read that testing facial rashes is less straightforward, as your rheumie stated. First off, it's your face, which is probably harder to biopsy. Then there's the cosmetic consideration (scarring) to consider. And if the dr. chooses to biopsy some OTHER area (i.e., a lupus band test, done on nonlesional skin), I think results there are positive in a much lower... (11 replies)
... Any insight would be great. I'm an unusual case, I guess. And I feel guilty that I am a probable lupus patient who feels great and has never had joint pain or other lupus symptoms like lack of energy. ... (11 replies)
... I am 34, I recently went to the Mayo clinic for "EDEMA". I was then diagnosed with early lupus. ... (1 replies)
... What are the EARLIEST symptoms of Lupus?
I sometimes get these bright red patches on my cheeks,which are hot to the touch,and a little irritated.
Somebody at work mentioned LUPUS...I am not that familiar with the disease.
I also am always fatigued,stiff in the morning,some joint aches,but nothing that I can't manage.
I am just wondering about those patches on my face.
... (4 replies)
... I am looking for the same answer concerning a positive Ana and anti chromatin levels. I was wondering if you have found any answers yet about the possibility of early lupus or just a false positive? ... (3 replies)
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