... fective if given very early, like 2 days into an outbreak. I can't get the shingles VACCINE to lower odds of getting shingles, because it's a LIVE vaccine, which lupus patients alas can't do... ... (11 replies)
... ccc, my problem didn't hit until I was older. Same with two friends, both in my age bracket. At first I ascribed it to lupus, too, but that didn't really make sense, since I'd had some symptoms of lupus since early adolescence, decades before the on/off congested sinuses. My friend laughed, said her husband & she had been fine until post-50 and that LOTS of people have this... (3 replies)
... Hi everyone, new here! I've been reading these boards for a few months but I've been feeling kind of alone since meeting with my rheum and I thought it might be helpful to talk with other people who understand what I'm going through. Even though I have a wonderful support system with my family and boyfriend, I'm sure it's hard for them to fully grasp how I feel. A little... (9 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma.
I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)
... Vee, you have no idea how helpful you've been. Thanks for the great info. about facial rashes.
As far as my lung situation, I had hilar adenopathy that finally resolved on its own. None of my docs know for sure what was/is in my lungs because we decided against invasive thoracoscopy surgery. And because my lung function tests came out above average, we took a wait and... (11 replies)
... AJ, hi. I've read that testing facial rashes is less straightforward, as your rheumie stated. First off, it's your face, which is probably harder to biopsy. Then there's the cosmetic consideration (scarring) to consider. And if the dr. chooses to biopsy some OTHER area (i.e., a lupus band test, done on nonlesional skin), I think results there are positive in a much lower... (11 replies)
... Any insight would be great. I'm an unusual case, I guess. And I feel guilty that I am a probable lupus patient who feels great and has never had joint pain or other lupus symptoms like lack of energy. ... (11 replies)
... I am 34, I recently went to the Mayo clinic for "EDEMA". I was then diagnosed with early lupus. ... (1 replies)
... What are the EARLIEST symptoms of Lupus?
I sometimes get these bright red patches on my cheeks,which are hot to the touch,and a little irritated.
Somebody at work mentioned LUPUS...I am not that familiar with the disease.
I also am always fatigued,stiff in the morning,some joint aches,but nothing that I can't manage.
I am just wondering about those patches on my face.
... (4 replies)
... Hi. I've had similar crushing fatigue and pain episodically, from early adolescence onward. ... (5 replies)
... I know the rheum has talked to me about both Lupus and Ulcerative Colitis since my dad has that but I don't have any of the other symptoms of that but he said it could be the early start of it so we shall see. ... (7 replies)
... CCP, a test for early Rheumatoid Arthritis. ... (7 replies)
... Since then I have been to my rheumatologist twice. My first visit he drew a ton of lab work for lupus anticoagulant. All labs came back normal but I felt fine during that visit. He put me on 7.5 mg of Meloxicam which has helped with my joint pain and stiffness. ... (7 replies)
... CCP that's considered a pretty good marker for early RA. Has it been run? ... (1 replies)
... welcome! Lupus actually has a very wide age continuum, and even things deemed "rare" can happen. ... (10 replies)
... I am looking for the same answer concerning a positive Ana and anti chromatin levels. I was wondering if you have found any answers yet about the possibility of early lupus or just a false positive? ... (3 replies)