... years, confirmed by a lupus band test. ... (18 replies)
... I'm searching my memory for what my mother's signs early were. ... (11 replies)
... Hi and "hmmmmm". That's good in one way, but frustrating in another! In your first post, you said you have many lupus symptoms. ... (4 replies)
... r her health at appropriate intervals, and be supportive without focusing on what name to give the illness. I know, after living through 10 years like this in my early 30's, how hard it is, but I hope you can move in that direction. ... (15 replies)
... DNA is the autoantibody most associated with lupus nephritis, which comes on insidiously, meaning, unlike many manifestations of lupus, in early stages nephritis simply doesn't cause pain or other totally obvious symptoms. It's far sneakier! ... (15 replies)
... Thank you David for pointing me toward the mitochondrial dysfunction- I am going to research that; I haven't had time yet but am going to check today.
Vee, the two illnesses my rheumatologist thinks I may have are fibromyalgia and CFS. I've been diagnosed with fibromyalgia via the trigger points test; also several doctors have agreed that CFS fits too. In fact, if anything... (7 replies)
... My SIL is a PA and I've been asking her a lot of questions. She's not comfortable with lupus due to my lack of inflammatory markers. ... (10 replies)
... That's the goal, actually, to suppress the production of unwanted autoantibodies. I've taken Plaquenil for almost 15 years, and my values went negative fairly early on and have stayed negative. ... (1 replies)
... side effects. It does take a while to work but as I said before, it helps even though you may not notice it. Should you be diagnosed with an autoimmune disease, early treatment is very important. ... (27 replies)
... Hi everyone, new here! I've been reading these boards for a few months but I've been feeling kind of alone since meeting with my rheum and I thought it might be helpful to talk with other people who understand what I'm going through. Even though I have a wonderful support system with my family and boyfriend, I'm sure it's hard for them to fully grasp how I feel. A little... (5 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma.
I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)
... Vee, you have no idea how helpful you've been. Thanks for the great info. about facial rashes.
As far as my lung situation, I had hilar adenopathy that finally resolved on its own. None of my docs know for sure what was/is in my lungs because we decided against invasive thoracoscopy surgery. And because my lung function tests came out above average, we took a wait and... (11 replies)
... AJ, hi. I've read that testing facial rashes is less straightforward, as your rheumie stated. First off, it's your face, which is probably harder to biopsy. Then there's the cosmetic consideration (scarring) to consider. And if the dr. chooses to biopsy some OTHER area (i.e., a lupus band test, done on nonlesional skin), I think results there are positive in a much lower... (11 replies)
... Any insight would be great. I'm an unusual case, I guess. And I feel guilty that I am a probable lupus patient who feels great and has never had joint pain or other lupus symptoms like lack of energy. ... (11 replies)
... I am 34, I recently went to the Mayo clinic for "EDEMA". I was then diagnosed with early lupus. ... (1 replies)
... What are the EARLIEST symptoms of Lupus?
I sometimes get these bright red patches on my cheeks,which are hot to the touch,and a little irritated.
Somebody at work mentioned LUPUS...I am not that familiar with the disease.
I also am always fatigued,stiff in the morning,some joint aches,but nothing that I can't manage.
I am just wondering about those patches on my face.
... (4 replies)