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... with my other symptoms the malar rash certainly makes sense. i've read many posts about people being negative early on in the course of their disease. ... (10 replies)
... at a very low level. That is certainly longer than usual, but it is not unusual for people early on especially to lack the classic lab evidence. As the disorder evolves, it becomes more likely to show up somewhere, sometimes only intermittently. ... (10 replies)
... Sockie, the medical term for sausage-like fingers is dactylitis. (And no, I didn't remember, I only remembered the "sausage" part. :D) It's apparently seen in only several conditions; psoriatic arthritis and sarcoidosis are two that I saw mentioned. ... which brings up an interesting concept re: AB tests. In the presence of certain symptoms, when repeated tests can't turn... (10 replies)

... Interestingly, waaaaay back, when I was in my early teens, I had horrendously heavy and painful periods that lasted weeks. ... (5 replies)
... were aware they had mono or not. The EBV infection is considered to be a possible trigger for the development of lupus. So I hope that is helpful and you get the lupus vs. chronic EBV question settled with your Dr. If you had a recent mono infection, then I would say these results are normal for recent infection. ... (1 replies)
... called "alternative criteria", listing things that happen earlier in life in people who develop lupus later on. Well, guess what? ... (3 replies)
Support system
Jun 27, 2014
... Hi and welcome! Glad you found us. Of course we want hubby to "get it", but getting it can take years of practice, I think. My husband has evolved over time, and other women in my age bracket speak similarly about their own marriages. Early on, my husband's way of dealing with EVERYTHING (not just my health) was NOT to deal. He huffed, he paced, he shut down. He's not the... (2 replies)
... But there are causes besides lupus for blood in urine. And unlike lupus, these could cause fairly immediate kidney pain. As you said, kidney or bladder infection, and kidney or bladder stones. ... (6 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma. I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)
... Vee, you have no idea how helpful you've been. Thanks for the great info. about facial rashes. As far as my lung situation, I had hilar adenopathy that finally resolved on its own. None of my docs know for sure what was/is in my lungs because we decided against invasive thoracoscopy surgery. And because my lung function tests came out above average, we took a wait and... (11 replies)
... AJ, hi. I've read that testing facial rashes is less straightforward, as your rheumie stated. First off, it's your face, which is probably harder to biopsy. Then there's the cosmetic consideration (scarring) to consider. And if the dr. chooses to biopsy some OTHER area (i.e., a lupus band test, done on nonlesional skin), I think results there are positive in a much lower... (11 replies)
... Any insight would be great. I'm an unusual case, I guess. And I feel guilty that I am a probable lupus patient who feels great and has never had joint pain or other lupus symptoms like lack of energy. ... (11 replies)
... I am 34, I recently went to the Mayo clinic for "EDEMA". I was then diagnosed with early lupus. ... (1 replies)
... What are the EARLIEST symptoms of Lupus? I sometimes get these bright red patches on my cheeks,which are hot to the touch,and a little irritated. Somebody at work mentioned LUPUS...I am not that familiar with the disease. I also am always fatigued,stiff in the morning,some joint aches,but nothing that I can't manage. I am just wondering about those patches on my face. ... (4 replies)
... Babs, I have been out of commission for a bit, but normally active on this board. Your dry eyes sound like Sjogren's. an autoimmune disorder that affects the tear glands and saliva glands (dry mouth) and sometimes dry vagina. I would be sure your Dr checked you for SSA and SSB the two antibodies sometimes positive in Sjogren's. The hives brought on by sun exposure sound like... (11 replies)
Mar 22, 2014
... Thanks ladies!! Vee I gave my dad one of those looks he used to give me when I was a kid & over stepping my boundaries. He got the picture real quick lol. I had a pretty good birthday me & the hubby celebrated thurs instead of Fri since we both got off early. He brought me the Coach glasses I've been wanting FOREVER since my eyes have been being so dry I've been wearing my... (76 replies)

Associated Tags: auto-immune, lupus, muscle pain

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