... Women with lupus often start going thru menopausal changes early, even in 30's, so an estradiol level may be helpful to see if hormonal. ... (9 replies)
... of an extremity. More evidence that your disease is ramping up and you need aggressive treatment. The pneumonia COULD be lupus pneumonitis, which looks similar to pneumonia on xray, symptoms are similar, but there is no germ involved. ... (32 replies)
... For example, many people with lupus also are hypothyroid. ... (11 replies)
... exist with lupus or appear "standalone". ... (1 replies)
... of state for a new job and school. I am going to appointments and dealing with this all myself, and I am very nervous. Also have a rhuematologist appointment in early February. Any advice would be greatly appreciated. ... (2 replies)
... Hello and welcome to the boards. You do have symptoms suggestive of possible lupus, with facial rash, rash after sun exposure joint pain, fatigue, and many with lupus are also B12 deficient. ... (2 replies)
... Like you, I had signs early on. ... (2 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma.
I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)
... Vee, you have no idea how helpful you've been. Thanks for the great info. about facial rashes.
As far as my lung situation, I had hilar adenopathy that finally resolved on its own. None of my docs know for sure what was/is in my lungs because we decided against invasive thoracoscopy surgery. And because my lung function tests came out above average, we took a wait and... (11 replies)
... AJ, hi. I've read that testing facial rashes is less straightforward, as your rheumie stated. First off, it's your face, which is probably harder to biopsy. Then there's the cosmetic consideration (scarring) to consider. And if the dr. chooses to biopsy some OTHER area (i.e., a lupus band test, done on nonlesional skin), I think results there are positive in a much lower... (11 replies)
... Any insight would be great. I'm an unusual case, I guess. And I feel guilty that I am a probable lupus patient who feels great and has never had joint pain or other lupus symptoms like lack of energy. ... (11 replies)
... I am 34, I recently went to the Mayo clinic for "EDEMA". I was then diagnosed with early lupus. ... (1 replies)
... What are the EARLIEST symptoms of Lupus?
I sometimes get these bright red patches on my cheeks,which are hot to the touch,and a little irritated.
Somebody at work mentioned LUPUS...I am not that familiar with the disease.
I also am always fatigued,stiff in the morning,some joint aches,but nothing that I can't manage.
I am just wondering about those patches on my face.
... (4 replies)
... Twelve years ago, I was tested for Lupus after symptoms of joint pain. My ANA test came back positive and no diagnosis was made because of no other symptoms. ... (1 replies)
... Of the specialized tests you'll probably have, one key one is ANA, a test that detects autoantibodies. However, ANA isn't specific to lupus because it may be positive in quite a few other conditions. ... (2 replies)
... t levels. So maybe next week when you go in you'll be more symptomatic and additional tests will show something. That is awesome she spent so much time with you. Early on, many people with lupus and other autoimmune disorders test negative, but eventually things start to show up to confirm what is going on. ... (21 replies)