... My dx was lupus. I'd had problems from early childhood, then a terrible hit at 13, then more problems over the next 35 years. ... (8 replies)
... page by using sentence fragments, bulleted lists, etc. Early life, I kept very short. ... (8 replies)
... one if that joint persistently hurts. An unusual but serious condition can occur, called avascular or asceptic necrosis, that must be ruled out. Also, since your early skin biopsies showed psoriasis, psoriatic arthritis should be considered as well. ... (21 replies)
... specific skin problems. The number and variety of lupus rashes certainly surprised me! ... (2 replies)
... So glad I found this forum. I'll try to make this as brief as possible!!
November of last year I completely stopped having periods. Fast forward to January and my hair began falling out. I probably lost half of my hair. Then, in April I got shingles in my scalp, face and jaw line into my chin and lips. I was told the nerve pain would last awhile. Last month, I had my annual... (2 replies)
... Hi everyone, new here! I've been reading these boards for a few months but I've been feeling kind of alone since meeting with my rheum and I thought it might be helpful to talk with other people who understand what I'm going through. Even though I have a wonderful support system with my family and boyfriend, I'm sure it's hard for them to fully grasp how I feel. A little... (9 replies)
... Hi. There's a "sticky post" (permanent info post) on skin problems in lupus. (Stickies are right above the user threads.) Do any sound like your splotches? What are yours like? What color? Are they round? Solid or targetlike? Raised or flat? Do they sting, itch, burn? Scale (flake)? Do they fade, then brand-new ones appear? If any have faded, did those leave scars or... (21 replies)
... early lupus are quite hard to differentiate. Since you have swollen hands, it kind of makes sense to me that a dr. ... (14 replies)
... organ issues or joint pain. I have seen two rheumatologists now, and they both agree on the wait and see approach since I don't fulfill all the ACR criteria for lupus or scleraderma. And I, fortunately, still feel fine enough to jog and hike frequently. But the docs are testing my blood frequently for any changes. ... (11 replies)
... You would probably be on a very low dose Prednisone. I took really high doses of Prednisone for 13 years for severe asthma, now my asthma is doing better and I only take 5 mg of Prednisone for my lupus and scleraderma as opposed to 60mg - 80 mg for my asthma.
I know it sound scarey to have to start Prednisone being a steriod and all that you hear about it. I felt the same... (11 replies)
... nil. I was disappointed when I asked her about people going into remission. She made it sound like a miracle if that would happen. I have two friends who have lupus who went into remission though. But I don't know the specific type they have. That's great that you have a teaching hospital to go to in Boston. ... (11 replies)
... Vee, you have no idea how helpful you've been. Thanks for the great info. about facial rashes.
As far as my lung situation, I had hilar adenopathy that finally resolved on its own. None of my docs know for sure what was/is in my lungs because we decided against invasive thoracoscopy surgery. And because my lung function tests came out above average, we took a wait and... (11 replies)
... AJ, hi. I've read that testing facial rashes is less straightforward, as your rheumie stated. First off, it's your face, which is probably harder to biopsy. Then there's the cosmetic consideration (scarring) to consider. And if the dr. chooses to biopsy some OTHER area (i.e., a lupus band test, done on nonlesional skin), I think results there are positive in a much lower... (11 replies)
... Any insight would be great. I'm an unusual case, I guess. And I feel guilty that I am a probable lupus patient who feels great and has never had joint pain or other lupus symptoms like lack of energy. ... (11 replies)
... I am 34, I recently went to the Mayo clinic for "EDEMA". I was then diagnosed with early lupus. ... (1 replies)
... What are the EARLIEST symptoms of Lupus?
I sometimes get these bright red patches on my cheeks,which are hot to the touch,and a little irritated.
Somebody at work mentioned LUPUS...I am not that familiar with the disease.
I also am always fatigued,stiff in the morning,some joint aches,but nothing that I can't manage.
I am just wondering about those patches on my face.
... (4 replies)
... I'm a 27 year old female, 10 weeks postpartum. I have been suffering with many symptoms over the last 9 years after a severe case of mono. As far as the lupus criteria I have definitely met more then four of them over the years. ... (1 replies)
... Hi & welcome! I'm sorry you're having issues & are starting the 'ole diagnostic two-step. This dance can last awhile, unfortunately! I can only speak from my own experience with my own labs, but my rheum seems to pretty much ignore values that aren't literally flagged high. *If* your rheum thinks similarly, this would mean only ANA and anti-La... But I believe people can have... (3 replies)
... nysue, oops, silly me, I just assumed NYS, but I think living in Cleveland gives you a big advantage, given its highly regarded medical facilities.
Re: B12, my lowest was a little lower than your 244, and my Vit D dropped to 10 or so. In those years, I had so much neuro-like tingling and weakness that I suspected MS. Once I was dx'ed with lupus, started Plaquenil, and... (28 replies)
... 1. No ulcers in my nose (yet!)
2. I have always thought that my skin reacted normally to sun (BURN) and sore for ages. My face always has a pinkish tinge across my nose and on both sides of my nose No where else to I have this. When I say always, it's more apparent when I'm warm.
3. I asked my rheum whether I tested my ANA was centromere antibody positive or just... (73 replies)